Healthcare professionals’ perceptions of dignity-preserving care for older home-dwelling women with incurable cancer in Norway

Abstract

Municipal end-of-life care for older home-dwelling patients with cancer is a complex matter requiring healthcare professionals (HCPs) to recognize gender differences in a social, historical and organizational context. A qualitative approach was chosen to explore and identify HCPs valuebased principles and organizational conditions promoting dignitypreserving care practice for these women. HCPs recognized the importance of sheltering the women's identity, their sense of being home and acknowledged their personal preferences as value-based principles, whereas creating a flexible culture of care, establishing a functional professional collaboration and developing individualized plans of care, were crucial organizational conditions influencing the practice of dignity-preserving care.

Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR) Part 2

“…Moreover, we wished to invite our coresearchers to be coauthors of the Dying With Dignity publications. [17][18][19] However, because of the burdensome experiences related to illness and the everyday challenges of their life situations, we decided to omit the PAICPAIR coresearchers from this stage of the research process.…”

“…In the previous section, we have described and discussed how the coresearchers in our study have contributed to defining the research questions, participated and assisted in the interpretation and writing of this project. Moreover, we wished to invite our coresearchers to be coauthors of the Dying With Dignity publications 17-19. However, because of the burdensome experiences related to illness and the everyday challenges of their life situations, we decided to omit the PAICPAIR coresearchers from this stage of the research process.…”

“…The PAICPAIR framework has been developed as a parallel process with the Dying With Dignity project [17][18][19] and has enriched the process and outcome of this latter empirical study through the valuable contributions and insights of the patient in a palliative phase and an informal caregiver who were our coresearchers. 12 First, we established a steering group to help us make sound decisions in our ongoing evaluation and adjustment processes during this research.…”