Healthcare and data privacy requirements for e-health cloud: A qualitative analysis of clinician perspectives

Chomutare, Taridzo; Yigzaw, Kassaye Yitbarek; Olabarriaga, Sílvia D.; Makhlysheva, Alexandra; Oliveira, Marcela T. de; Silsand, Line; Krefting, Dagmar; Penzel, Thomas; Hillen, Christiaan; Bellika, Johan Gustav

doi:10.1109/healthcom49281.2021.9399006

Cited by 2 publications

(1 citation statement)

References 14 publications

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“…At the beginning of the project, we collected health care and data privacy requirements from the potential stakeholders: professionals from call centers, ambulance services, and hospitals. The requirement was first published by Chomutare et al [ 28 ] and Reis et al [ 29 ]. Table 1 summarizes the requirements for the Acute Stroke Care demonstrator.…”

Section: Introductionmentioning

confidence: 99%

Perceptions of a Secure Cloud-Based Solution for Data Sharing During Acute Stroke Care: Qualitative Interview Study

Oliveira¹,

Reis²,

Marquering³

et al. 2022

JMIR Form Res

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Background Acute stroke care demands fast procedures performed through the collaboration of multiple professionals across multiple organizations. Cloud computing and the wide adoption of electronic medical records (EMRs) enable health care systems to improve data availability and facilitate sharing among professionals. However, designing a secure and privacy-preserving EMR cloud-based application is challenging because it must dynamically control the access to the patient’s EMR according to the needs for data during treatment. Objective We developed a prototype of a secure EMR cloud-based application. The application explores the security features offered by the eHealth cloud-based framework created by the Advanced Secure Cloud Encrypted Platform for Internationally Orchestrated Solutions in Health Care Horizon 2020 project. This study aimed to collect impressions, challenges, and improvements for the prototype when applied to the use case of secure data sharing among acute care teams during emergency treatment in the Netherlands. Methods We conducted 14 semistructured interviews with medical professionals with 4 prominent roles in acute care: emergency call centers, ambulance services, emergency hospitals, and general practitioner clinics. We used in-depth interviews to capture their perspectives about the application’s design and functions and its use in a simulated acute care event. We used thematic analysis of interview transcripts. Participants were recruited until the collected data reached thematic saturation. Results The participants’ perceptions and feedback are presented as 5 themes identified from the interviews: current challenges (theme 1), quality of the shared EMR data (theme 2), integrity and auditability of the EMR data (theme 3), usefulness and functionality of the application (theme 4), and trust and acceptance of the technology (theme 5). The results reinforced the current challenges in patient data sharing during acute stroke care. Moreover, from the user point of view, we expressed the challenges of adopting the Advanced Secure Cloud Encrypted Platform for Internationally Orchestrated Solutions in Health Care Acute Stroke Care application in a real scenario and provided suggestions for improving the proposed technology’s acceptability. Conclusions This study has endorsed a system that supports data sharing among acute care professionals with efficiency, but without compromising the security and privacy of the patient. This explorative study identified several significant barriers to and improvement opportunities for the future acceptance and adoption of the proposed system. Moreover, the study results highlight that the desired digital transformation should consider integrating the already existing systems instead of requesting migration to a new centralized system.

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Section: Introductionmentioning

confidence: 99%

Perceptions of a Secure Cloud-Based Solution for Data Sharing During Acute Stroke Care: Qualitative Interview Study

Oliveira¹,

Reis²,

Marquering³

et al. 2022

JMIR Form Res

View full text Add to dashboard Cite

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Perceptions of a secure cloud-based solution for data sharing during acute stroke care: qualitative interview study (Preprint)

Oliveira¹,

Reis²,

Marquering³

et al. 2022

Preprint

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BACKGROUND Acute stroke care demands fast procedures carried out through the collaboration of multiple professionals across multiple organisations. Cloud computing and the wide adoption of electronic medical records (EMR) enable healthcare systems to improve data availability and facilitate sharing among professionals. However, designing a secure and privacy-preserving EMR cloud-based application is challenging because it must dynamically control the access to the patients' EMR according to the needs for data during treatment. OBJECTIVE We developed a prototype of a secure EMR cloud-based application. The application explores security features offered by the eHealth Cloud-based framework created by the ASCLEPIOS Horizon2020 project. This research aimed to collect impressions, challenges and improvements for the prototype when applied to the use case of secure data sharing among acute care teams during emergency treatment in the Netherlands. METHODS We performed eleven semi-structured interviews with medical professionals with four prominent roles in acute care. We used in-depth interviews to capture their perspectives on the application's design and functions, the implemented design, and its use in a simulated acute care event. We employed thematic analysis of interview transcripts. The recruitment of participants ended when the collected data reached thematic saturation. RESULTS The participants' perceptions and feedback are presented as five themes identified from the interviews: (T1) current challenges, (T2) quality of the shared EMR data, (T3) EMR data integrity and auditability, (T4) application usefulness and functionality, and (T5) trust and acceptance of the technology. The results reinforced the current challenges for patient data sharing during acute stroke care. Moreover, we expressed the challenges of adopting the ASCLEPIOS acute stroke care application in a real scenario, from the user point of view, and suggestions for improving the proposed technology's acceptability. CONCLUSIONS This study has endorsed a system that supports data sharing among acute care professionals with efficiency but without compromising the security and privacy of the patient.

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Healthcare and data privacy requirements for e-health cloud: A qualitative analysis of clinician perspectives

Cited by 2 publications

References 14 publications

Perceptions of a Secure Cloud-Based Solution for Data Sharing During Acute Stroke Care: Qualitative Interview Study

Perceptions of a Secure Cloud-Based Solution for Data Sharing During Acute Stroke Care: Qualitative Interview Study

Perceptions of a secure cloud-based solution for data sharing during acute stroke care: qualitative interview study (Preprint)

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