Abstract:BACKGROUND:Adolescents and young adults (AYA) ages 15 to 29 years who are diagnosed with cancer are at risk for long‐term morbidity and mortality associated with treatment of their cancer and the cancer itself. In this article, the authors describe the self‐reported health status of AYA cancer survivors.METHODS:The authors examined 2009 data from the Behavioral Risk Factor Surveillance System, including demographic characteristics, risk behaviors, chronic conditions, health status, and health care access, amon… Show more
“…1,2 Caught between the worlds of pediatric and adult medical providers, young adults with cancer who are 18-39 years of age are less likely to access optimal medical and psychosocial services, compared to other age groups. 3 While the 5-year survival rates for some common young adult malignancies such as thyroid and testicular cancer exceed 80%, the survival rates for diseases such as leukemia remain less than 60%, with survival rates for some solid tumors even lower.…”
Background: Evidence suggests nonelderly adults with cancer are likely to receive aggressive treatment in their last month of life and less likely to receive hospice and/or palliative services. Young adults with cancer (18-39 years) are a unique population, and little is known about the characteristics of their end-of-life care trajectories when they die in the hospital. Objective: The purpose of this descriptive pilot study was to explore the characteristics of death among young adults with cancer who died in a tertiary academic hospital in order to elucidate their end-of-life trajectories. Methods: A retrospective chart review was conducted among hospitalized young adults with a primary cancer diagnosis who died in the hospital within a 10-year period. Study variables were abstracted for quantification and medical record notes were reviewed for validation. Results: A review of 61 patient records indicate that young adults commonly received cancer treatment within weeks of death and that do-not-resuscitate orders were frequently written only when death appeared imminent. Palliative care teams were frequently consulted for management of physical symptoms but often within days of death and most commonly on the day of death. Conclusions: Findings suggest palliative care was initiated late in the care trajectory for young adults with cancer who died in the hospital. This study highlights the need for further inquiry into end-of-life care for young adults with cancer so that interventions can be developed to meet the physical, emotional, social, and spiritual needs of this unique group of patients, their families, and friends.
“…1,2 Caught between the worlds of pediatric and adult medical providers, young adults with cancer who are 18-39 years of age are less likely to access optimal medical and psychosocial services, compared to other age groups. 3 While the 5-year survival rates for some common young adult malignancies such as thyroid and testicular cancer exceed 80%, the survival rates for diseases such as leukemia remain less than 60%, with survival rates for some solid tumors even lower.…”
Background: Evidence suggests nonelderly adults with cancer are likely to receive aggressive treatment in their last month of life and less likely to receive hospice and/or palliative services. Young adults with cancer (18-39 years) are a unique population, and little is known about the characteristics of their end-of-life care trajectories when they die in the hospital. Objective: The purpose of this descriptive pilot study was to explore the characteristics of death among young adults with cancer who died in a tertiary academic hospital in order to elucidate their end-of-life trajectories. Methods: A retrospective chart review was conducted among hospitalized young adults with a primary cancer diagnosis who died in the hospital within a 10-year period. Study variables were abstracted for quantification and medical record notes were reviewed for validation. Results: A review of 61 patient records indicate that young adults commonly received cancer treatment within weeks of death and that do-not-resuscitate orders were frequently written only when death appeared imminent. Palliative care teams were frequently consulted for management of physical symptoms but often within days of death and most commonly on the day of death. Conclusions: Findings suggest palliative care was initiated late in the care trajectory for young adults with cancer who died in the hospital. This study highlights the need for further inquiry into end-of-life care for young adults with cancer so that interventions can be developed to meet the physical, emotional, social, and spiritual needs of this unique group of patients, their families, and friends.
“…(Dieluweit et al, 2011) The ability to work has been shown to improve cancer survivors' quality of life, reduce social isolation, and increase self-esteem. Spelten, 2002) A recent study reported that survivors of AYA cancer are significantly more likely to experience disability and unemployment than healthy controls (24% vs. 14%) (Tai et al, 2012); however, it is unclear why this disparity exists and what factors may be associated. into adulthood.…”
The number of cancer survivors living in the U.S. is dramatically increasing. Cognitive decline is a commonly reported and burdensome symptom of cancer survivors. In addition, many cancer survivors experience difficulty maintaining employment. This dissertation addresses gaps in the literature of cognitive and occupational function of cancer survivors, with particular emphasis on the understudied population of cancer survivors diagnosed as an adolescent or young adult (AYA). For this dissertation, a series of studies were conducted to 1) explore the association between occupation and symptom burden in breast cancer survivors, 2) synthesize the evidence of cognitive outcomes in survivors of AYA cancer, and 3) describe cognitive and occupational function in survivors of adolescent cancer compared to healthy controls.To address aim one, a secondary analysis of data from early-stage breast cancer survivors explored the relationship between occupation and symptom burden. Breast cancer survivors employed in lower skill level jobs reported greater symptom burden over the first year of anastrozole treatment than women employed at the higher skill level. Survivors employed at lower skill levels had higher levels of fatigue and worse depressive, musculoskeletal, vasomotor, and gastrointestinal symptoms.To address aim two, an integrative review synthesized the current state of science in terms of cognitive outcomes of those diagnosed with cancer as an AYA. Survivors of AYA cancer tended to experience cognitive difficulties; however, to date, no study has focused exclusively on those diagnosed as an AYA or encompassed the entirety of the AYA age range. Future iv studies are needed because cognitive outcomes of survivors of AYA cancer have been largely neglected.Lastly, a cross-sectional, descriptive comparative study described cognitive and occupational function in survivors of adolescent cancer compared to healthy controls. Survivors of adolescent cancer perceived greater cognitive difficulty than healthy peers, although there were not significant measurable differences in performance on neuropsychological tests. Survivors of adolescent cancer also reported poorer work output than healthy controls.This dissertation contributes to the growing body of literature pertaining to health and well-being of cancer survivors, in particular cognitive and occupational function, and unique considerations needed for those diagnosed with cancer as an AYA.v Study 2. While there is a growing body of literature suggesting that many cancer survivors may experience cognitive decline after cancer diagnosis and treatment, much less is known about the cognitive outcomes of those diagnosed during the AYA timeframe. Therefore, the second study of this dissertation is an integrative review to summarize and appraise the current state of published literature involving cognitive function in those diagnosed during adolescence and young adulthood. While the review is a distinct study within the dissertation project, it provides a critically important ...
“…5 Adolescent and young adult (AYA) survivors, a substantial and growing population, 6 demonstrate poor adherence to these recommendations, [7][8][9][10] which is alarming given their increased risk for cancer recurrence, long-term health problems, and poor quality of life. [11][12][13][14][15][16][17][18][19][20] While AYA oncology guidelines stipulate that patients should receive nutrition and exercise guidance, 21 there are limited evidence-based interventions tailored for this group and limited literature on how best to deliver health interventions to AYA survivors. 22 Before designing such interventions, consistent with the Intervention Mapping framework, 23,24 it is important first to identify the barriers to and facilitators of survivors' health behaviors.…”
Purpose: This study uses qualitative methods to identify barriers to and facilitators of exercise and healthy eating among adolescent and young adult (AYA) cancer survivors (survivors currently aged 18-39 years and diagnosed with cancer anytime in their lives), as reported by survivors and their primary supporters. Methods: Survivors (M age = 27.6 years, SD = 6.6 years) had completed active cancer therapy. Survivors and supporters (i.e., nominated by survivors as someone who was a main source of support) attended separate focus group sessions (five survivor focus groups, five supporter focus groups) and were asked to complete a selfreported questionnaire assessing demographic and cancer history and engagement in exercise and healthy eating. Results: In total, 25 survivors and 19 supporters participated. The three overarching themes identified were barriers to exercise and healthy eating (e.g., lack of resources, negative thoughts and feelings, negative social and environmental influences), facilitators of exercise and healthy eating (e.g., cognitive motivators, tools for health behavior implementation, social relationships), and intervention implications (e.g., informational needs, desire for social support). Conclusion: AYA cancer survivors and their supporters identified barriers to and facilitators of healthy lifestyle behaviors, which should be considered when designing interventions to improve the long-term health of survivors.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.