Abstract:Health research with data and biosamples in a time of privacy: what information do patients want? 2 Background: Patients value transparency concerning the potential use of their clinical data and samples in research. However, it is usually impossible to indicate for which future studies they will be used. To ensure patients will receive the information that they need, and to safeguard the continuation of trust in research, it is essential to investigate what patients consider to be an adequate type and level o… Show more
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