Health Related Quality of Life in children with Autism Spectrum Disorders: The clinical and demographic related factors in Turkey

Köse, Sezen; Erermiş, Serpil; Öztürk, Önder; Özbaran, Burcu; Demiral, Nagehan; Bildik, Tezan; Aydın, Cahide

doi:10.1016/j.rasd.2012.09.009

Cited by 34 publications

(26 citation statements)

References 32 publications

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“…Stokes et al (2017) learned that both groups did not use the PedsQL TM differently, which corresponds with the literature, although their score may be different. Kose et al (2013) focused on studying the quality of life regarding health which is related to clinical variables. Their research included 102 children with ASD.…”

Section: Pedsql Tm In Autismmentioning

confidence: 99%

Use of validated PedsQL<sup>TM</sup> questionnaires regarding children with ADHD and autism

Baloun¹,

Velemínský²

2019

Kontakt

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The assessment of the quality of life of children is continuously connected to their chronic health problems. In our opinion, the optimal indicator of the quality of life of children is the Pediatric Quality of Life Inventory TM questionnaire (PedsQL TM ) because foreign literature is rich in its results. The validated PedsQL TM questionnaires are used to assess the quality of life of children and adolescents and their families.The goal of this article is to broaden the knowledge of medical and social workers in using these questionnaires in the case of selected disorders (ADHD and autism). The objective of this study is to verify the content and reliability of questionnaires that are used for the assessment of the quality of life. This study focuses on children with chronic disorders of ADHD and autism. We used the method of document content analysis. We searched for relevant sources in scientific databases -WOS, Pubmed, ScienceDirect, Scopus.PedsQL TM questionnaires are globally used for children with ADHD and autism. They are used for the assessment of the quality of life of children with the mentioned disorders and their families.The questionnaires do not focus only on the quality of life of individuals but families in total. It is one of the few questionnaires that assess the impact of such disorders on families.

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Section: Pedsql Tm In Autismmentioning

confidence: 99%

Use of validated PedsQL<sup>TM</sup> questionnaires regarding children with ADHD and autism

Baloun¹,

Velemínský²

2019

Kontakt

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“…As shown in Table 2, studies examining the QL of children with the following diagnoses of mental disorder were included: attention deficit hyperactivity disorder (ADHD; n = 27) [18; 32-57]; autism spectrum disorder (n = 10) [58][59][60][61][62][63][64][65][66][67]; Gilles de la Tourette syndrome or other tic disorder (n = 6) [68][69][70][71][72][73]; bipolar spectrum disorders (n = 5) [74][75][76][77][78]; enuresis (n = 3) [79][80][81]; separation anxiety disorder and anxiety disorders (n = 3) [82][83][84]; eating disorders (n = 2) [85][86]; major depressive disorder (n = 2) [87][88]; conduct disorder (n = 1) [89]; obsessive-compulsive disorder (n = 1) [24]; and learning disabilities (n = 1) [90]. Five studies included diverse diagnoses of a mental disorder [13-14, 23, 91-92].…”

Section: Description Of Studiesmentioning

confidence: 99%

“…The reviewed studies were conducted in several countries, including the US (n = 26) [24, 32-33, 37, 43, 45-47, 51, 53, 59-60, 63-64, 67-68, 72-74, 76-78, 86-87, 89, 91]; Germany (n = 6) [40,44,48,54,79,92]; Switzerland (n = 3) [23, 82,84]; the Netherlands (n = 4) [13,38,52,66]; Australia (n = 3) [14,[49][50]; Turkey (n = 3) [41,61,80]; Brazil (n = 2) [39,83]; Spain (n = 2) [36,85]; Italy (n = 2) [70,71]; Taiwan (n = 2) [55][56]; Iran (n = 1) [42]; UK (n = 1) [69]; Norway (n = 1) [35]; Hungary (n = 1) [88]; France (n = 1) [58]; Canada (n = 1) [18]; Japan (n = 1) [81]; Greece (n = 1) [90]; and Mexico (n = 1) [57]. Four studies were conducted in two or more countries [34,62,65,75].…”

Section: Description Of Studiesmentioning

confidence: 99%

Applying a developmental approach to quality of life assessment in children and adolescents with psychological disorders: challenges and guidelines

Carona

Silva

Moreira

2014

Expert Review of Pharmacoeconomics & Outcomes Research

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Research on the quality of life (QL) of children/adolescents with psychological disorders has flourished over the last few decades. Given the developmental challenges of QL measurements in pediatric populations, the aim of this study was to ascertain the extent to which a developmental approach to QL assessment has been applied to pedopsychiatric QL research. A systematic literature search was conducted in three electronic databases (PubMed, PsycINFO,SocINDEX) from 1994 to May 2014. Quantitative studies were included if they assessed the self or proxy-reported QL of children/adolescents with a psychological disorder. Data were extracted for study design, participants, QL instruments and informants, and statistical approach to age-related specificities. The systematic review revealed widespread utilization of developmentally appropriate QL instruments but less frequent use of both self and proxy reports and an inconsistent approach to age group specificities.Methodological guidelines are discussed to improve the developmental validity of QL research for children/adolescents with mental disorders.

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“…The measure is reported to have excellent reliability and validity, in terms of proxy and self-report Shipman et al, 2011). Researchers have found that children with ASD have lower physical health, psychosocial health, and total summary scores on the PedsQL than typically developing children (Kose et al, 2013). Kose and colleagues (2013) also found that children with autism had lower psychosocial, social, school functioning, and total scores than those with Asperger syndrome and pervasive developmental disorder not otherwise specified (PDD-NOS) and that scores on the PedsQL were negatively correlated with the Childhood Autism Rating Scale, indicating a relationship between ASD symptoms and HRQOL.…”

Section: Introductionmentioning

confidence: 99%

Reliability and Validity of the Pediatric Quality of Life Inventory With Individuals With Intellectual and Developmental Disabilities

Viecili¹,

Weiss²

2015

American Journal on Intellectual and Developmental Disabilities

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The Pediatric Quality of Life Inventory (PedsQL) measures health-related quality of life, a growing area of research, particularly among individuals with disabilities. This research is necessary to fully understand the varied needs of the population and, ultimately, ensure that those needs are being met. The current study assessed the reliability and validity of the PedsQL in individuals with intellectual and developmental disabilities, including individuals with autism spectrum disorder. Participants included 359 caregivers of children, youth, and young adults with IDD. Caregivers completed the PedsQL 4.0 Generic Core Scales questions regarding the individual's physical health and the Strengths and Difficulties Questionnaire. The PedsQL achieved excellent reliability across scales, and distinguished healthy individuals from those with chronic health conditions, as well as individuals with ASD from those without. Factor analysis confirmed a 5-factor model, with moderate to high criterion validity. The PedsQL shows sound psychometric properties and may be a useful tool to measure psychosocial functioning in this population.

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Health Related Quality of Life in children with Autism Spectrum Disorders: The clinical and demographic related factors in Turkey

Cited by 34 publications

References 32 publications

Use of validated PedsQL<sup>TM</sup> questionnaires regarding children with ADHD and autism

Use of validated PedsQL<sup>TM</sup> questionnaires regarding children with ADHD and autism

Applying a developmental approach to quality of life assessment in children and adolescents with psychological disorders: challenges and guidelines

Reliability and Validity of the Pediatric Quality of Life Inventory With Individuals With Intellectual and Developmental Disabilities

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