Health-related Quality of Life of Children with Newly Diagnosed Specific Learning Disability

Karande, Sunil; Bhosrekar, Kirankumar; Kulkarni, Madhuri; Thakker, Arpita

doi:10.1093/tropej/fmn099

Cited by 52 publications

(58 citation statements)

References 12 publications

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“…ES are organized by size, with the ES of the total HRQOL score (bold and italic) reported first, followed by the ES of higher-order HRQOL scales (bold) and then the different subscales. ES ≥ 0.5 are underlined because they are considered to be clinically relevant [20]. An overview about the HRQOL measurements that were used in the included studies is provided in Table 2.3.…”

Section: Comparing the Hrqol Of Children With Mental Disorders Versusmentioning

confidence: 99%

Health-related quality of life among children with mental disorders: a systematic review

2012

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PURPOSE: To systematically review studies about the quality of life (QOL) of children with various mental disorders relative to healthy controls and to describe limitations in these studies. METH-ODS: Relevant articles were searched using different databases, by checking reference lists and contacting experts. We included articles that either compared children with mental disorders to healthy controls/norm values or made such a comparison possible. RESULTS: Sixteen out of 4,560 articles met the pre-defined inclusion criteria. These studies revealed that the QOL of children with various mental disorders is compromised across multiple domains. The largest effect sizes were found for psychosocial and family-related domains and for the total QOL score, whereas physical domains generally were less affected. The most important limitations in the existing literature include the lack of study samples drawn from the general population, the failure to use self-ratings, not considering item overlap between measuring QOL and assessing for the presence of a particular mental disorder, and not determining whether the children were receiving medication for their mental disorder. CONCLUSIONS: Children with mental disorders experience a considerable reduction in QOL across various domains. Research studies that avoid previous limitations are crucial to fill existing knowledge gaps. Results: Sixteen out of 4,560 articles met the pre-defined inclusion criteria. These studies revealed that the QOL of children with various mental disorders is compromised across multiple domains. The largest effect sizes were found for psychosocial and family-related domains and for the total QOL score, whereas physical domains generally were less affected.The most important limitations in the existing literature include the lack of study samples drawn from the general population, the failure to use self-ratings, not considering item overlap between measuring QOL and assessing for the presence of a particular mental disorder, and not determining whether the children were receiving medication for their mental disorder. Conclusions:Children with mental disorders experience a considerable reduction in QOL across various domains. Research studies that avoid previous limitations are crucial to fill existing knowledge gaps.

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Section: Comparing the Hrqol Of Children With Mental Disorders Versusmentioning

confidence: 99%

Health-related quality of life among children with mental disorders: a systematic review

2012

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“…However, various reasons have been quoted for such referrals by other authors, including academic, behavioural, non academic, even medical ones or a combination of these. 2,16,18 Majority students were referred for either academic or both academic and behavioural reasons. 14 We noticed a significant delay in referral in many children, which shows lack of awareness about the disorder among parents, inadequately trained teachers for identifying and referring the child for assessment, waiting to the extent until the situation become unmanageable, lack of knowledge in health professionals and inadequate resources.…”

Section: Discussionmentioning

confidence: 99%

Specific learning disability: a 5 year study from India

Singh

Sawani²,

Deokate³

et al. 2017

Int J Contemp Pediatr

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Background: Specific learning disability (SLD) is an important cause of academic underachievement among children, which often goes unrecognized, due to lack of awareness and resources in the community. Not much identifiable data is available such children, more so in Indian context. The objectives of the study were to study the demographic profile, risk factors, co-morbidities and referral patterns in children with specific learning disability.Methods: The study has a descriptive design. Children diagnosed with SLD over a 5 years’ period were included, total being 2015. The data was collected using a semi-structured proforma, (based on the aspects covered during child’s comprehensive assessment at the time of visit), which included socio-demographic aspects, perinatal and childhood details, scholastic and referral details, and comorbid psychiatric disorders.Results: Majority of the children were from English medium schools, in 8-12 years’ age group, with a considerable delay in seeking medical help, were referred mostly by the teachers for academic issues. Most of them had all the three disabilities-dyslexia, dysgraphia and dyscalculia. 38.56% of children had ADHD. Psychological maternal stress, developmental issues and various co-morbidities were accompanying in many cases, of which speech delay and fine motor issues were more in children having comorbid ADHD.Conclusions: Awareness, early identification and referral to appropriate services is crucial to deal with the challenge of learning disability. Health professionals should look for early signs in routine visits of children and co-morbidities, particularly ADHD, should be adequately taken care of. Role of media and education system is crucial for its destigmatization in community.

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“…Children with SpLD invariably fail to achieve school grades at a level that is appropriate for their intelligence (Karande and Kulkarni 2005;Shaywitz 1998). Their "academic problems" also have an adverse impact on their self-image, peer and family relationships, and social interactions (Karande et al 2009a;Shaywitz 1998).…”

Section: Clinical Features Of Spldmentioning

confidence: 99%

“…A child or adolescent with SpLD or ADHD or both has to cope with its psychological, social, and physical consequences. In general, there have been few studies in the world, not just in India, which have analyzed the quality of life (QoL) of children having SpLD or ADHD (Karande et al 2009a). This chapter describes the QoL of Indian children with SpLD or ADHD, the factors which affect their QoL and steps that need to be taken to further improve their QoL.…”

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confidence: 99%

Quality of Life in Children Diagnosed with Specific Learning Disability or Attention-Deficit/Hyperactivity Disorder

Karande

2012

Handbook of Children With Special Health Care Needs

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Specific learning disability (SpLD) and attention-deficit hyperactivity disorder (ADHD) are the most common neurodevelopmental disorders in children which impair their academic and social functioning. Almost 20% of children with SpLD have co-occurring ADHD and vice versa. Both SpLD and ADHD significantly affect the quality of life (QoL), especially the psychosocial domains, of an afflicted child's life. Both disorders also impact the QoL of parents and siblings, causing disturbances to family functioning. SpLD even with optimum management often is a lifelong disorder. ADHD too may persist into adulthood causing disruptions to both professional and personal life. This chapter describes the QoL of Indian children with SpLD or ADHD, the factors which affect their QoL and steps that need to be taken to improve their QoL.

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Health-related Quality of Life of Children with Newly Diagnosed Specific Learning Disability

Cited by 52 publications

References 12 publications

Health-related quality of life among children with mental disorders: a systematic review

Health-related quality of life among children with mental disorders: a systematic review

Specific learning disability: a 5 year study from India

Quality of Life in Children Diagnosed with Specific Learning Disability or Attention-Deficit/Hyperactivity Disorder

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