Health-Related Quality of Life of Sickle Cell Disease Patients and Families in Colombia

Abstract

some kind of CAM for their disease. A wide range of CAM was used by patients to reduce side effects due to conventional therapies. Data analysis revealed a total of three themes: patient's understanding towards CAM, reasons of using or rejecting CAM and barriers to the CAM use. Patients recognize CAM as traditional ways of healing with not much scientific evidence. Those reported to use CAM were in favor to boost body's own resources to improve hemoglobin together with conventional therapies. Lack of scientific evidence was given as major reasons of not using CAM. Fear of CAM interaction with the conventional therapies was among other few reasons of not using CAM. Slow progression of CAM modalities and cost was given as a major barrier to CAM use. ConClusions: In conclusion, slow progression of CAM effects and treatment cost were among the major barrier to CAM use. Further investigations are required to establish the scientific evidence on the type of CAM used by Thalaseemia patients. Patients should be advised to disclose their CAM use to their health care professionals to avoid any harmful interactions.

Assessment of Quality of Life Related to the Health of People Suffering from Chronic Diseases in Ouémé Department of Benin

“…Allergic rhinitis and rhinosinusitis have caused a decrease in HRQoL in Korean adults (Shin et al, 2018). Sickle cell patients in Colombia have low levels of HRQoL (Romero, Sanabria & Huerfano, 2016). The work reported in the literature on sinusitis and sickle cell disease has mostly been limited to determining the influence of these diseases on HRQoL and has not focused the residential environment effect.…”