Health-Related Quality of Life Measure for Children with Epilepsy (CHEQOL-25): Preliminary data for the Serbian version

Cross-cultural adaptation of the Malay version of the parent-proxy Health-Related Quality of Life Measure for Children with Epilepsy (CHEQOL-25) in Malaysia

“…Our participants rated a higher HRQOL score in the interpersonal/ social and future worries subscales compared to other studies [4,6,29]. This may be because most children in our study (70%) had their seizures under control and were, therefore, able to perform more activities with their peers.…”

“…The only exception was the present worries subscale, which only had a Cronbach's α value of 0.67. Previous studies also found a lower Cronbach's α value in the present worries subscale [4,6,29]. This may be because the questions asked in the present worries subscale covered many different aspects of a child's worry, such as "having to think about epilepsy before doing things", "parents being worried ⁎ Epilepsy syndrome severity score was calculated based on the score developed by Austin et al 2000 [21].…”

“…Our instrument was translated according to international guidelines [20] as per previous cultural adaptations of the CHEQOL-25 [6,29]. The cognitive debriefing from the pilot study demonstrated that the Malay parent-proxy CHEQOL-25 was easy to understand, indicating that our questionnaire had reached semantic and content equivalence to the English version.…”

Children's perspective of quality of life in epilepsy

“…20 The main outcome was QOL, measured using the Child Epilepsy QOL Questionnaire, 21 developed for children with epilepsy and subsequently validated in multiple studies and languages. [21][22][23][24][25] The questionnaire has 25 items and includes the epilepsy-specific QOL domains of Intrapersonal, Secrecy, Interpersonal, Present Worries, and Normality. 21 To measure child mental health, we used standardized scales that assessed both externalizing problems (attention problems, oppositional behavior, and conduct problems) and internalizing problems (mood and anxiety).…”

Quality of life in childhood and adolescence: From concept to practice

“…In everyday practice these groups, or more precisely the areas of research on childhood and adolescence are: children and adolescents in social welfare system, children and adolescents with disabilities or special needs and their families 10 , and children and adolescents with different chronic health conditions and their families [12][13][14][15] . In everyday practice these groups, or more precisely the areas of research on childhood and adolescence are: children and adolescents in social welfare system, children and adolescents with disabilities or special needs and their families 10 , and children and adolescents with different chronic health conditions and their families [12][13][14][15] .…”