Health-related quality of life in adolescent and young adult cancer survivors

Harju, Erika; Roser, Katharina; Dehler, Silvia; Michel, Gisela

doi:10.1007/s00520-018-4151-z

Cited by 33 publications

(70 citation statements)

References 32 publications

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“…Participants received a questionnaire covering the following topics: health status, psychological distress, quality of life, and preferences for the organization and content of long‐term follow‐up care …”

Section: Methodsmentioning

confidence: 99%

The long‐term impact of cancer: Evaluating psychological distress in adolescent and young adult cancer survivors in Switzerland

et al. 2019

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Objectives Adolescents and young adults (AYAs) are diagnosed with cancer during a critical life period full of psychosocial challenges. They may experience a significant impact of the cancer diagnosis on their psychological health, also in the long term. We aimed to (a) evaluate psychological distress in AYA cancer survivors and compare levels of distress with controls and (b) describe socio‐demographic and cancer‐related characteristics associated with psychological distress. Methods We sent a questionnaire to AYA cancer survivors (aged 16‐25 y at diagnosis, survived ≥5 y) registered in the Cancer Registry Zurich and Zug, Switzerland. Psychological distress was measured using the Brief Symptom Inventory‐18 (BSI‐18) assessing anxiety, depression, and somatization and a global severity index (GSI) (cutoff score indicating psychological distress: T ≥ 57). Distress levels were compared between survivors and controls. We used logistic regression to determine associations of socio‐demographic and cancer‐related characteristics with distress. Results Of 160 AYA cancer survivors, 34 (21%) reported being distressed (27% in women, 17% in men; P = 0.129). Compared with controls, survivors did not report higher levels of distress (all P values > 0.05). Survivors with migration background and survivors with late effects reported higher levels on GSI, somatization, and anxiety. Higher levels of depression were associated with being female, not being in a partnership, and having late effects. Conclusions A substantial subgroup of AYA cancer survivors reported psychological distress. Systematically screening for distress and providing psychological follow‐up for survivors at risk may help to provide adequate psychological support.

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Section: Methodsmentioning

confidence: 99%

The long‐term impact of cancer: Evaluating psychological distress in adolescent and young adult cancer survivors in Switzerland

et al. 2019

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“…In Canada, nearly 8000 adolescents and young adults (AYAs) (ages 15-39 years) are diagnosed with cancer each year. 1,2 Survival rates among this unique population are relatively high and, as a result, most AYAs who are diagnosed with cancer will survive; most AYA cancer survivors will live for 50 to 60 years beyond their diagnosis and treatment. 3 Although survival rates are impressive, the cost of survival is high.…”

Section: Introductionmentioning

confidence: 99%

“…11 However, those authors included patients who were currently undergoing treatment within their sample, making it difficult to interpret the long-term effect of cancer on QoL after treatment has ended. 11 Finally, whereas other examinations of QoL have been undertaken across Europe 2,12,13 and the United States, including the Livestrong Survey for People Affected by Cancer, 14,15 we have yet to produce similar data from Canada.…”

Section: Introductionmentioning

confidence: 99%

Quality of life among survivors of adolescent and young adult cancer in Canada: A Young Adults With Cancer in Their Prime (YACPRIME) study

Schulte

Chalifour²,

Eaton³

et al. 2020

Cancer

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BACKGROUND:The quality of life (QoL) among survivors of adolescent and young adult (AYA) cancer may be compromised compared with that in the general population. In this study, the authors: 1) assessed for differences in QoL among a national study of AYA cancer survivors compared with the Canadian population and 2) explored the factors associated with poorer QoL in AYA cancer survivors. METHODS: For the current research, data from the Young Adults With Cancer in Their Prime study were used. QoL was measured using physical and mental component scores from a 12-item short-form health status measure. A comparison group was derived from the Canadian Community Health Survey. RESULTS: AYAs (n = 195; 17.8% male; mean ± SD: 35.62 ± 6.89 years on study, 6.48 ± 5.73 years from treatment) were compared with a comparison sample (n = 665; 21.2% male). Among survivors, 31.8% reported poor physical health, and 49.7% reported poor mental health. Compared with the general population, AYAs had significantly lower physical health (F[1,818]

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“…[12] Adolescence is one of the most important and a crucial period of all individuals' life, and passing it successfully guarantees a healthier future. [13] According to the definition of World Health Organization, adolescence refers to age group between 10 and 19 years. [14] Self-care in adolescents is considered as a useful activity to promote health of society.…”

Section: Introductionmentioning

confidence: 99%

Experience of Adolescent Survivors of Childhood Cancer about Self-Care Needs: A Content Analysis

Valizadeh

Zamanzadeh

ghahremanian

et al. 2020

Asia-Pacific Journal of Oncology Nursing

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Objective:In cancer care management, patients or their family are usually responsible for continuing health care. Achieving this goal requires identification of their self-care needs. The purpose of this study is to explore the perception of self-care needs of adolescent cancer survivors.Methods:This study was conducted by the qualitative content analysis method. Participants were 19 adolescent childhood cancer survivors and six parents, nurses, physicians, and charity institution staff from children teaching hospitals in Iran. Participants were selected through purposeful sampling, and individual semistructured interviews were used for data collection. Graneheim and Lundman stages of content analysis were employed for data analysis. Data were managed with the MAXQDA10 software.Results:Content analysis revealed nine subcategories as follows: (1) nutritional protection, (2) prevention from infection, (3) prevention from physical damage, (4) control over cancer recurrence, (5) informational needs, (6) pain management, (7) releasing positive thoughts, (8) continuing routine life, and (9) family protection. The first six subthemes were related to protection against physical distress, and the final three ones were related to protection against psychological distress. These two categories form one theme: “protective self-care need” as an essential self-care need in adolescent cancer survivors.Conclusions:Pediatric and school health nurses can prepare strategies to meet these needs by providing effective informational and psychosocial supports, and healthcare providers are able to check periodically the status of survivors care to provide second or third level of care to prevent escalation and incidence of the adverse outcomes of the disease.

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Health-related quality of life in adolescent and young adult cancer survivors

Abstract: Results emphasize the need for individualized support services to improve survivors' HRQoL in vulnerable subgroups. We recommend adapted care for women and migrants, in addition to educational and employment support systems.

Cited by 33 publications

References 32 publications

The long‐term impact of cancer: Evaluating psychological distress in adolescent and young adult cancer survivors in Switzerland

The long‐term impact of cancer: Evaluating psychological distress in adolescent and young adult cancer survivors in Switzerland

Quality of life among survivors of adolescent and young adult cancer in Canada: A Young Adults With Cancer in Their Prime (YACPRIME) study

Experience of Adolescent Survivors of Childhood Cancer about Self-Care Needs: A Content Analysis

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