Health-Related Quality of Life in Patients Reliant Upon Mitrofanoff Catheterisation

Smith, Gigi; Carroll, Denise; Mukherjee, Sushant; Aldridge, Robert W; Jayakumar, S.; McCarthy, Lauren; Chandran, H.; Parashar, Kuhuk

doi:10.1055/s-0031-1275748

Cited by 6 publications

(6 citation statements)

References 4 publications

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“…Smith, et al evaluated 19 patients older than 16-years-old with the SF-36 health survey Version 2®. The score for Physical Functioning (PF=50.4), Role Physical (RP=53.8), Bodily Pain (BP=55.6), Vitality (VT=56.9), Social Functioning (SF=51.5), Role Emotional (RE=52.2), and Mental Health (MH=54.6) were all higher than those reported within the normal population (normal=50.0) and found the same results when compared against age-matched controls (9). This results are comparable with ours.…”

Section: Discussionsupporting

confidence: 56%

“…Ease of catheterization had roughly been described in patients with CUD with the Mitrofanoff principle and had been more focused on the type of stoma (Umbilical, V-Quadrilateral-Z (VQZ) plasty (Figure -1) and V-Quadrilateral (VQ) flaps) being easy in most patients (5,7). Cosmesis and satisfaction had been described to be satisfactory or excellent in most patients but doing emphasis on the type of stoma (1,5,(7)(8)(9) The aim of this article is to determine HRQoL, ease of catheterization, and self-perception of global satisfaction and cosmetic outcomes in a subset of patients with CUD with the Mitrofanoff principle and to compare the results in patients with umbilical stomas and V-Quadrilateral-Z (VQZ) plasty stomas.…”

Section: Introductionmentioning

confidence: 99%

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Self-perception, quality of life and ease of catheterization in patients with continent urinary diversion with the mitrofanoff principle

et al. 2020

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Purpose: Continent urinary diversion (CUD) with the Mitrofanoff principle stands as an alternative to urethral catheterization by a route other than the urethra. The aim of the study was to determine self-perception of health-related quality of life (HRQoL), ease of catheterization and global and cosmetic outcomes in patient’s dependent on Mitrofanoff catheterization. Materials and methods: Records of all patients who underwent CUD with the Mitrofanoff principle between 2012 to 2018 were reviewed. Data were collected and analysed retrospectively from medical charts. We assessed HRQoL with the EuroQol EQ-5D-3L questionnaire, cosmetic and global satisfaction with a questionnaire designed by the reconstructive urology board and ease of catheterization with a Likert questionnaire adapted from the Intermittent Catheterization Difficulty Questionnaire (ICDQ) validated in patients reliant on retrograde CIC. Results: A total of 25 patients requiring CUD with the Mitrofanoff principle between 2012 and 2018 were assessed, the group was composed mainly of: appendiceal conduits 18 patients (72%) and 7 ileal conduits (Yang-Monti) and three of those requiring Casale (Monti Spiral) and 1 a double Monti technique. Median follow-up was 57 months, median age was 30 years. Visual Analogue Scale (VAS) of the EQ-5D-3L reported a Global health score of 86.5%. Fifty nine percent of the patients had no pain or bleeding with catheterizations. Regarding global satisfaction and cosmetic perception 91% were satisfied with their CUD. Conclusions: CUD is associated with good HRQoL, global satisfaction, ease and painless catheterization, adequate self-perception of cosmetic outcomes and a low complication rate, remaining a safe and viable option.

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Section: Discussionsupporting

confidence: 56%

Section: Introductionmentioning

confidence: 99%

Self-perception, quality of life and ease of catheterization in patients with continent urinary diversion with the mitrofanoff principle

et al. 2020

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“…Smith et al assessed 19 patients over the age of 16 using the SF-36 Health Survey, version 2. Physical Functioning (PF = 50.4), Role Physical (RP = 53.8), Bodily Pain (BP = 55.6), Vitality (VT = 56.9), Social Functioning (SF = 51.5), Role Emotional (RE = 52.2), and Mental Health (MH = 54.6) all scored higher than in the normal population (normal = 50.0), and the same results were found when compared to age-matched controls [ 20 ].…”

Section: Discussionmentioning

confidence: 68%

Quality of Life in Pediatric Patients with Continent Urinary Diversion—A Single Center Experience

Ciongradi

Benchia

Stupu

et al. 2022

IJERPH

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Background and Objectives: The advancement of surgical strategies in various types of urological conditions has resulted in improved functional outcomes, but the issues of patient perception and life quality remain difficult to assess, particularly in pediatric populations. We aimed to critically analyze the outcomes of urinary continent diversion in pediatric patients treated in our institution for various bladder conditions. Materials and Methods: We conducted a cross-sectional study, reviewing the records of patients treated for bladder evacuation problems between 2003 and 2014, and analyzing the data of those with continent urinary diversion. We used two types of questionnaires to assess the impact on life quality: the Qualiveen-30 and the SF-36 Health Survey. Results: The study included one hundred thirty-four patients with bladder conditions, and eight underwent urinary diversion, at a median age of 6.5 years. Seven of them, aged 10–23 years, completed questionnaires, with all seven scoring high on physical functioning scale but low on the social functioning scale. Conclusions: Continent urinary diversion remains the treatment of choice in well selected patients, but the results must be considered both in terms of functional outcomes and the impact on these patients’ emotional and mental health.

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Section: Discussionmentioning

confidence: 99%

“…The psychosocial impact of Mitrofanoff continence should not be underestimated. Successful CCUD continence can restore quality of life to levels comparable to those of the general population [17]. Chabchoud et al [18] evaluated 57 patients with Mitrofanoff channels and found that a successful channel enabled 94% of patients to return to work, 79% to return to schooling (where relevant) and 83% to continue a satisfactory sex life.…”

Section: Discussionmentioning

confidence: 99%

Long‐term efficacy of polydimethylsiloxane (Macroplastique^®) injection for Mitrofanoff leakage after continent urinary diversion surgery

et al. 2014

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ObjectiveTo assess the long-term efficacy of polydimethylsiloxane (Macroplastique ® ) injection (MPI) in the treatment of Mitrofanoff leakage secondary to valve incompetence. Patients and MethodsBetween 1995 and 2012, the records of 24 consecutive patients who underwent MPI for Mitrofanoff urinary leakage after continent cutaneous urinary diversion (CCUD) surgery were examined. All patients had a valve deemed of sufficient length (>2 cm) to attempt Macroplastique coaptation. Treatment outcomes were divided into three categories based on physician assessment: success (dry), partial success (>50% reduction in incontinence pads) and failure. Success rates were assessed according to the type of reservoir and conduit channel. ResultsThe mean (range) follow-up was 30 (6-96) months. One patient had initial difficulty catheterising, and subsequently required major revision surgery. In all, 12 patients (50%) failed the treatment and subsequently underwent operative revision to the channel. Three patients (12.5%) achieved complete success; one patient had an appendix channel through native bladder and the remaining two had Monti channels through colon. Nine patients (37.5%) had partial success; success rates were higher with appendix channels (four of six) and colonic reservoirs (six of seven) when compared with Monti channels (eight of 18, 44%) and ileal reservoirs (zero of two). Five of the nine patients with partial success eventually required further surgical revision for deteriorating continence at a mean (range) of 41 (14-96) months, whilst the other four have maintained sufficient continence with MPI alone. ConclusionMacroplastique bulking cured only 12.5% patients, but leakage was substantially improved in a further 37.5% allowing major surgery to be avoided or postponed in one half of the cohort. Appendix Mitrofanoffs do better than the Monti Mitrofanoff, with channels through colonic segments generally doing better than those through ileal bladders. MPI should be considered as a less invasive alternative to avoid or delay major reconstructive surgery.

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Health-Related Quality of Life in Patients Reliant Upon Mitrofanoff Catheterisation

Cited by 6 publications

References 4 publications

Self-perception, quality of life and ease of catheterization in patients with continent urinary diversion with the mitrofanoff principle

Self-perception, quality of life and ease of catheterization in patients with continent urinary diversion with the mitrofanoff principle

Quality of Life in Pediatric Patients with Continent Urinary Diversion—A Single Center Experience

Long‐term efficacy of polydimethylsiloxane (Macroplastique^®) injection for Mitrofanoff leakage after continent urinary diversion surgery

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Health-Related Quality of Life in Patients Reliant Upon Mitrofanoff Catheterisation

Cited by 6 publications

References 4 publications

Self-perception, quality of life and ease of catheterization in patients with continent urinary diversion with the mitrofanoff principle

Self-perception, quality of life and ease of catheterization in patients with continent urinary diversion with the mitrofanoff principle

Quality of Life in Pediatric Patients with Continent Urinary Diversion—A Single Center Experience

Long‐term efficacy of polydimethylsiloxane (Macroplastique®) injection for Mitrofanoff leakage after continent urinary diversion surgery

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Long‐term efficacy of polydimethylsiloxane (Macroplastique^®) injection for Mitrofanoff leakage after continent urinary diversion surgery