Health-Related Quality of Life in Overweight/Obese Children Compared With Children With Inflammatory Bowel Disease

Faus, Amy L.; Turchi, Renee M.; Polansky, Marcia; Berez, Andrea L.; Leibowitz, Karen L.

doi:10.1177/0009922814562555

Cited by 10 publications

(19 citation statements)

References 36 publications

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“… Severe Obsity 120 67.8 ∧19.7 Faus et al. [20] BMI >85% for age; Convenience Sample. New Jersey Obese 60 76.42 Not reported Gastrointestinal Illness Varni et al.…”

Section: Data Descriptionmentioning

confidence: 99%

“…(Chronic constipation >3 months sx's with <3 BMs/week) Chronic Constipation 80 70.4 12.2 IBD, New diagnosis 42 83.8 13.2 GERD (Bx proven w/sx's) 56 79.9 14 Kunz et al [23] IBD patients recruited from 3 american sites IBD- Remission 79 86.67 13.31 IBD- Mild-Severe 42 78.57 17.99 Faus et al. [20] IBD pts: 80% remission, 20% mild; Convenience Sample; NJ, USA IBD 60 79.3 Not reported Dierderen et al. [5] IBD pt's: 63% patients in remission; Cross-sectional study of online questionnaires in Netherlands.…”

Section: Data Descriptionmentioning

confidence: 99%

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Pediatric Quality of Life InventoryTM version 4.0 short form generic core scale across pediatric populations review data

Smyth

Jacobson

2021

Data in Brief

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The Pediatric Quality of Life Inventory TM Version 4.0 Short Form Generic Core Scale (PedsQL TM ) is a validated and widely used tool assessing the quality of life (QoL) of children and youth. It has been used extensively across healthy populations as well as those with chronic and acute illnesses, allowing for comparison of the psychosocial impact of chronic illness between pediatric disease cohorts. As part of the QoL initiative undertaken at the British Columbia Children's Hospital (BCCH) Inflammatory Bowel Disease (IBD) program and published in the Journal of Pediatrics titled “Cross-Sectional Analysis of Quality of Life in Pediatric Patients with IBD in British Columbia, Canada,” a limited literature review was conducted using Embasse and Ovid. Studies using the English version of the PedsQL TM short form generic scale (not a disease specific scale) were identified. Studies with populations greater than 50 patients with robust subgroup sample size were included, with an emphasis on studies with well-defined patients with chronic disease. These data were compared to the BCCH population, as discussed in the aforementioned journal article. Analysis within the BCCH cohort is described separately. Comparison between different populations from the existing literature was qualitative only, with no statistical analysis done given the heterogeneity of populations and studies. In a study of patients from the emergency department at BCCH ( n= 178), the mean (SD) QoL scores of the healthy patients was 89.2 (10.3). In a group of self-identified healthy patients in California ( n= 5079), their mean QoL score was 83.9 (12.5). Separating the BCCH IBD population by disease activity, those in remission ( n= 220, 84.4 (12.8)) have similar QoL scores to these healthy cohorts, though their scores remain slightly below the previously published BCCH cohort. For children with any degree of active IBD ( n= 98, 75.6 (15.8)), their QoL scores are below the healthy means and are lower than other groups with self-identified “chronic illnesses” ( n= 367, 77.2 (15.5)), diabetes ( n= 418, 82.3 (13.5)), mild asthma ( n= 281, 85.5 (13.3)), or Canadian patients 4 weeks post-concussion ( n= 1157, 80.3). BCCH IBD patients with moderately to severely active disease have QoL scores well below the other disease groups ( n= 33, 63.1 (18.8)); lower than oncology patients on induction chemotherapy regimens ( n= 105, 68.9 (16.0)), acute inpatients ( n= 359, 63.9 (20.3)), and asthmatics with moderate-severe, persistent asthma ( n= 86, 67.1 (18.6)). This data is useful for clinicians treating pediatric patients looking at how QoL is influenced by chronic illness and by factors...

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“… Severe Obsity 120 67.8 ∧19.7 Faus et al. [20] BMI >85% for age; Convenience Sample. New Jersey Obese 60 76.42 Not reported Gastrointestinal Illness Varni et al.…”

Section: Data Descriptionmentioning

confidence: 99%

Section: Data Descriptionmentioning

confidence: 99%

Pediatric Quality of Life InventoryTM version 4.0 short form generic core scale across pediatric populations review data

Smyth

Jacobson

2021

Data in Brief

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“…QoL is a useful indicator in patient care because its improvement can lead to better outcomes. QOL, as defined by the World Health Organization, is "an individual's perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns" [8]. Health-related quality of life (HRQOL) focuses more specifically on the physical, mental, and emotional aspects of one's life that can affect and be affected by health status directly [8].…”

Section: Introductionmentioning

confidence: 99%

Health-Related Quality of Life in Pediatric Inflammatory Bowel Disease Patients: A Narrative Review

Ahmed¹,

Alam²,

Alsabri³

2022

Cureus

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Inflammatory bowel disease (IBD) is a chronic autoimmune condition that can have a wide range of symptoms among pediatric patients. Although clinical symptoms like hematochezia, diarrhea, and abdominal pain are commonly addressed, health-related quality of life (HRQOL) is often overlooked in patients with IBD and pediatric patients with chronic disease in general. Examining HRQOL can help improve patient outcomes, but it has been studied sparingly. In this review, we aim to compare HRQOL between pediatric patients suffering from IBD and healthy children, as well as those suffering from other illnesses. We searched through peer-reviewed primary literature related to IBD and HRQOL and selected 10 articles from the PubMed database to be reviewed. Our inclusion criteria included articles published after the year 2000 in English, primary studies, and those that corresponded to the aim of this review. Case reports and secondary and tertiary articles were excluded from our review. We found that patients with IBD reported worse HRQOL in terms of overall health and in various subdomains, including physical health and fatigue, compared to their healthy counterparts. However, children with IBD demonstrated a comparable HRQOL with children suffering from functional abdominal pain (FAP) and obesity. Additionally, children with IBD displayed a greater HRQOL than pediatric patients with gastroesophageal reflux disease (GERD) and chronic constipation. In addressing the aim of this review, we found that children with IBD had a lower HRQOL when compared to healthy children, but a comparable or greater HRQOL than other sick children. Some factors associated with a reduced HRQOL include disease activity, age, fatigue, gender, psychological variables, and associated symptoms. Going forward, HRQOL should be considered by practitioners when caring for pediatric IBD patients in a clinical setting as it can help improve patient care. More studies need to be conducted to further explore HRQOL in pediatric patients. This can help implement early psychosocial interventions in children to reduce the disease burden.

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“…Quality of life, as de ned by the World Health Organization, is "an individual's perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns" [10]. Health related quality of life (HRQOL) focuses more speci cally on the physical, mental, and emotional aspects of one's life that can affect and be affected by health status directly [10]. Some factors encompassed by HRQOL are symptoms of disease, treatment side effects, treatment satisfaction, life satisfaction, and emotional wellbeing.…”

Section: Introductionmentioning

confidence: 99%

A Review of Health Related Quality of Life in Pediatric Inflammatory Bowel Disease Patients

Ahmed

Alam

Alsabri³

2022

Preprint

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Background:Inflammatory bowel disease (IBD) is a chronic autoimmune condition that can have a wide range of symptoms and a taxing clinical course for pediatric patients. Although clinical symptoms like hematochezia, diarrhea, and abdominal pain are commonly addressed, health related quality of life (HRQOL) is often overlooked in patients with IBD and pediatric patients with chronic disease in general.Methods:We searched through peer-reviewed primary literature related to IBD and health related quality of life, and selected 11 articles from the PubMed database to be reviewed.Results: We found patients with IBD reported worse overall HRQOL than their healthy counterparts, but greater or comparable HRQOL relative to other sick pediatric patients, including those with gastroesophageal reflux disease and chronic constipation. Some factors associated with a reduced HRQOL include disease activity, age, fatigue, gender, psychological variables, and associated symptoms.Conclusion: Examining HRQOL can improve symptoms for these patients and chart better outcomes. Thus, HRQOL should be considered by practitioners when caring for pediatric IBD patients in a clinical setting. Further, more studies, particularly prospective cohort studies and those with large and diverse samples, should be conducted to examine HRQOL in pediatric patients with chronic disease. Findings from these studies can help elucidate clinical management and early psychosocial interventions in children to reduce disease burden.

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Health-Related Quality of Life in Overweight/Obese Children Compared With Children With Inflammatory Bowel Disease

Cited by 10 publications

References 36 publications

Pediatric Quality of Life InventoryTM version 4.0 short form generic core scale across pediatric populations review data

Pediatric Quality of Life InventoryTM version 4.0 short form generic core scale across pediatric populations review data

Health-Related Quality of Life in Pediatric Inflammatory Bowel Disease Patients: A Narrative Review

A Review of Health Related Quality of Life in Pediatric Inflammatory Bowel Disease Patients

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