Health-related quality of life in children with newly diagnosed cancer: a one year follow-up study

Abstract

Background: Most studies on health-related quality of life (HRQOL) in children with cancer focussed on survivors. Only few studies have evaluated patients during ongoing oncological treatment. The aim of this study was a prospective assessment of HRQOL in children during the first year after diagnosis of cancer and an examination of demographic, medical, and parental predictors of HRQOL.

Eficacia de intervenciones psicológicas dirigidas a promover el ajuste de niños con cáncer y de sus padres: una revisión

“…About this issue, our review suggests that the effectiveness of children interventions could be improved if we involve parents in the process, something which there is little consensus about. Some researchers argue that parents care would be sufficient to improve the children's adjustment (Hastings & Beck, 2004), while others seem to be favorable to a joint intervention (Barakat, Lutz, Nicolaou & Lash, 2005;Fuemmeler et al, 2003;Klassen et al, 2011, Landolt, Vollrath, Niggli, Gnehm & Sennhauser., 2006 and a third group claims that there is no relationship between improvement of children and parents (Grootenhuis & Last, 1997;Lutz, Barakat, Smith-Whitley & Ohene-Frempong, 2004;Robinson et al, 2007).…”

Intensity of Treatment and Health-Related Quality of Life in Pediatric Cancer: Findings From the Portuguese Version of Intensity of Treatment Rating Scale 3.0

“…Vários estudos salientam o impacto de algumas características clínicas na ansiedade, na depressão (Robinson, Gerhardt, Vannatta, & Noll, 2007) e, mais recentemente, na QdVrS de crianças/adolescentes com cancro (Landolt, Vollrath, Niggli, Gnehm, & Sennhauser, 2006). A QdVrS tem sido definida como a perceção de bem-estar dos pacientes em funções físicas, mentais e sociais, tratando-se de um conceito subjetivo e multidimensional (Bullinger, Schmidt, Petersen, Erhart, & Ravens-Sieberer, 2007;Varni, Burwinkle, Katz, Meeske, & Dickinson, 2002).…”

“…De forma consistente, a literatura indica que crianças/adolescentes em tratamento relatam pior qualidade de vida quando comparadas com crianças/adolescentes fora de tratamento e com a população geral (por exemplo, Varni et al, 2002). Do mesmo modo, camente em relação à QdVrS, alguns estudos indicam que crianças/adolescentes com tratamentos mais intensivos apresentam níveis mais baixos de QdVrS (Landolt et al, 2006;Magal-Vardi et al, 2004), mesmo depois de terminarem os tratamentos (Speechley, Barrera, Shaw, Morrison, & Maunsell, 2006). Contudo, outros estudos apontam para a inexistência desta influência em adolescentes em tratamento (Barakat et al, 2010), bem como em sobreviventes de cancro pediátrico .…”

Sustainability and Quality of Life Modeling the Complexity of Governance

“…What is defined as sustainability is the measurement of the quality of the political system, as mentioned in the report on the United Nations Conference on Environment and Development (Landolt, and all, [9]). A more detailed definition is postulated by Afgan and Carvalho, ( [10]): "the measure of the quality of our society is its ability to secure, and not compromise, the right of future generations to have a quality of life, at least equal to that of its own generation".…”

“…It is based on links between health, medicine and QoL (Pena, in The Economist Intelligence Unit). The cost of a treatment is usually measured by the cost per QALY, or per DALY (Bergner) with links on QoL (Landolt, [9]). All the authors relate the permanent confusion with well -being in patient perceptions of heath included in QoL.…”