Health‐related quality of life in preschool children with Type 1 diabetes

Sundberg, Frida; Sand, Peter; Forsander, Gun

doi:10.1111/dme.12557

Cited by 13 publications

(11 citation statements)

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“…However, research is inconclusive on whether QoL of children with T1D differs from peers. Several studies state that children with T1D experience a lower QoL (ie, parent and child report), with the largest differences found in young children, while other studies report similar QoL levels in youth with and without T1D (ie, parent and child report) . Contradictory findings may be due to sample differences, and research should examine which variables (eg, HbA1c, child age) relate to lowered QoL in children with T1D.…”

Section: Introductionmentioning

confidence: 99%

Families with pediatric type 1 diabetes: A comparison with the general population on child well‐being, parental distress, and parenting behavior

et al. 2019

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Aims: The aim of this study was to compare families with a child (2-12 years) with type 1 diabetes (T1D) to families which are not confronted with chronic illness, with regard to children's well-being, parental distress, and parenting behavior. In addition, differences were explored between families whose child has optimal vs suboptimal glycemic control.Methods: Mothers, fathers, and children of 105 families with pediatric T1D completed questionnaires assessing child well-being, parental distress, and parenting. The control group consisted of 414 families without chronic illness.Results: With regard to child well-being, children with T1D had more adjustment difficulties (as reported by mothers) and lower quality of life (QoL) (as reported by mothers and fathers), whereas children themselves (8-12 years) reported higher QoL compared to controls. In terms of parental distress, mothers, but not fathers, of children with T1D reported more stress, anxiety symptoms, and depressive symptoms than controls. With regard to parenting behavior, parent reports revealed less protectiveness in fathers and less autonomy support and responsiveness in both parents as compared to controls. No differences were found in parent-reported psychological

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Section: Introductionmentioning

confidence: 99%

Families with pediatric type 1 diabetes: A comparison with the general population on child well‐being, parental distress, and parenting behavior

et al. 2019

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“…[9][10] Younger children with diabetes, and their parents, also experience lower diabetes-specific HRQOL due to the increased burden the disease and its treatment entails, compared to healthy children and their parents. 11 Shortening the stay at the hospital, and offering home-based care at the time of diagnosis, is believed to be a safe and efficient alternative to conventional hospital-based care for children who are clinically stable at the time of diabetes onset. 6,[12][13][14] By minimising the time at hospital, to the benefit of care in a home-like environment, children and parents are given the opportunity to find day-to-day routines more quickly.…”

Section: Introductionmentioning

confidence: 99%

Health-related quality of life in children with Type 1 diabetes: an RCT of hospital-based care and hospital-based home care at diagnosis

Astermark

Bramhagen

Hallström

et al. 2017

International Diabetes Nursing

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Introduction: When a child is diagnosed with type 1 diabetes it involves extensive lifestyle changes for the whole family. There is limited knowledge of the impact the initial care has for children and parents over time. The aim was to compare children's diabetes-specific healthrelated quality of life in hospital-based care and hospital-based home care, 12 and 24 months after the onset of type 1 diabetes. The aim was also to compare the children's and parents' proxy-report of the children's diabetes-specific health-related quality of life after 12 and 24 months, regardless of the form of care. Method: The trial took place at a university hospital in Sweden and had a randomised controlled design evaluating the hospital-based care and hospital-based home care (HBHC), referring to specialist care in a home-based setting. Children aged 5-16 and their parents answered the PedsQL TM 3.0 Diabetes Module, 12 months and 24 months after the onset of the illness. Results: The results showed no difference regarding the children's diabetes-specific healthrelated quality of life. However, 12 months from diagnosis, the children and parents who received HBHC experienced more worry than those who had received hospital-based care at diagnosis (p = 0.012). Irrespective of the form of care, children reported more discomfort of the disease than their parents reported that the children would have (p = 0.017). Conclusion: Overall, the result indicates that both hospital-based care and HBHC provide equivalent outcomes in terms of the children's diabetes-specific health-related quality of life. However, a more home-based model of care might put more strain on some families. Those families need to be identified and the routines should be flexible in order to meet each family's need.

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“…Following diagnosis, parents and young children must adapt to the diagnosis of a chronic disease with significant implications for their health and quality of life (Sundberg, Sand, & Forsander, 2015; Whittemore, Jaser, Chao, Myoungock, & Grey, 2012). Parents report being in a constant state of vigilance (Niedel, Traynor, McKee, & Grey, 2012; Sullivan-Bolyai, Deatrick, Gruppuso, Tamborlane, & Grey, 2003), and must rapidly become expert in their child’s T1D management while simultaneously teaching others about proper care (Sullivan-Bolyai & Lee, 2011).…”

Section: Parenting Challenges During the Newly Diagnosed Periodmentioning

confidence: 99%

The feasibility of a pilot intervention for parents of young children newly diagnosed with type 1 diabetes.

Mackey¹,

Herbert²,

Monaghan³

et al. 2016

Clinical Practice in Pediatric Psychology

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Objective-Evaluate the feasibility, acceptability, and indicators of preliminary efficacy of the pilot of a parent-focused, phone-based intervention to improve glycemic control and parental and child well-being in young children newly diagnosed with type 1 diabetes (T1D).Methods-Thirty mothers of young children ages 1-6 diagnosed with T1D for less than 6 months were randomized to either a phone-based intervention or physical activity education comparison program. Child HbA1c and parent report of depressive symptoms, stress, social support, and child quality of life were assessed at baseline, 1, 6, and 12 months post intervention.Results-The program was feasible, as the majority of participants completed more than 80% of the intervention or comparison education sessions and reported high levels of satisfaction. Overall, there was a significant time by treatment intervention where the intervention group demonstrated improved social support and quality of life over time as compared to the comparison education group. The intervention demonstrated a trend towards moderating the association between baseline maternal depressive symptoms and prospective worsening of HbA1c.Conclusions-Parents of young children newly diagnosed with T1D can be engaged in a phonebased program to provide support during this vulnerable period. KeywordsType 1 diabetes; young children; newly diagnosed; parent intervention Type 1 diabetes (T1D) is a lifelong metabolic disorder that affects 1 out of every 400-600 American children each year. The incidence of T1D is on the rise (Dabelea et al., 2014) and although children are most often diagnosed between the ages of 10-14 years old, recent trends indicate that children are being diagnosed at significantly younger ages (Dahlquist, Nystrom, & Patterson, 2011;Patterson et al., 2009), with many new diagnoses now occurring in children under age 5 (Dabelea et al., 2007).Please address all correspondence to Randi Streisand, Ph.D., Children's National Health Systems, 111 Michigan Ave. NW, Washington, DC, 20010, rstreis@childrensnational.org. HHS Public Access Author Manuscript Author ManuscriptAuthor Manuscript Author ManuscriptAdherence to a complex and time-consuming daily medical regimen is required to delay or prevent the onset of acute and chronic T1D-related complications (Bade-White & Obrzut, 2009;Silverstein et al., 2005). Until 2015, the American Diabetes Association (ADA) had outlined specific BG level and glycemic control goals for young children when the standards of care were made more universally applicable to all children (HbA1c <7.5%; American Diabetes Association, 2015). A recent examination of a large T1D registry found that 73% of youth ages 1-6 failed to meet glycemic targets with the new guidelines applied (Wood et al., 2013). Early intervention closer to diagnosis may positively impact the glycemic trajectory. Parenting Challenges During the Newly Diagnosed PeriodFollowing diagnosis, parents and young children must adapt to the diagnosis of a chronic disease with significant...

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Health‐related quality of life in preschool children with Type 1 diabetes

Abstract: This study shows a significantly lower level of generic health-related quality of life in very young children with diabetes in comparison with healthy children. We suggest screening for health-related quality of life in children of all ages with Type 1 diabetes mellitus.

Cited by 13 publications

References 10 publications

Families with pediatric type 1 diabetes: A comparison with the general population on child well‐being, parental distress, and parenting behavior

Families with pediatric type 1 diabetes: A comparison with the general population on child well‐being, parental distress, and parenting behavior

Health-related quality of life in children with Type 1 diabetes: an RCT of hospital-based care and hospital-based home care at diagnosis

The feasibility of a pilot intervention for parents of young children newly diagnosed with type 1 diabetes.

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