Health Related Quality of Life in a Dutch Rehabilitation Population: Reference Values and the Effect of Physical Activity

Krops, Leonie A; Jaarsma, Eva A.; Dijkstra, Pieter U.; Geertzen, Jan H. B.; Dekker, Rienk

doi:10.1371/journal.pone.0169169

Cited by 11 publications

(16 citation statements)

References 46 publications

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“…No relationship was found between the amount of PA and mental health in former rehabilitation patients. 22 Barriers and facilitators regarding sports ii participation in physically disabled people were described in a systematic review and a questionnaire study. 23 Most emphasised barriers were disability, health, lack of facilities, transport and difficulties with accessibility.…”

Section: Methods and Analysesmentioning

confidence: 99%

Development of an intervention to stimulate physical activity in hard-to-reach physically disabled people and design of a pilot implementation: an intervention mapping approach

et al. 2018

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IntroductionPhysically disabled people are less physically active compared with healthy people. Existing physical activity (PA) interventions are limited in reach, since they are primarily rehabilitation or school based. The current study aims to develop a community-based intervention for stimulating PA in hard-to-reach physically disabled people.Methods and analysisTo systematically develop a PA-stimulating intervention, intervention mapping (six steps) was applied. PA level and health-related quality of life of patients after rehabilitation was determined using questionnaires (step 1). Qualitative research was performed to study professionals’ and physically disabled people’s ideas about intervention objectives, determinants and design (steps 2 and 3). Since experts expressed no need for a new intervention, the existing intervention ‘Activity coach’ was adapted to the specific target population. The adapted intervention ‘Activity coach+’ composes a network of intermediate organisations that refers participants to an activity coach, who coaches participants during 1 year. After a preintervention physical assessment by a physiotherapist, participants will be individually guided to existing organised or non-organised activities. An activity tracker will be used to monitor and stimulate PA in daily life (step 4). To support adoption and implementation, meetings between involved parties are organised (step 5). ‘Activity coach+’ is implemented in community in March 2017, and will be evaluated using a mixed-method analysis. Quantitative evaluation of intervention effects on PA, health and social participation takes place after 0, 2, 4, 6 and 12 months. The implementation process and experiences with the intervention will be determined using qualitative research (step 6).Ethics and disseminationInsights from this study will be used for dissemination and further development of the intervention. The Medical Ethical Committee of the University Medical Center Groningen confirmed that formal ethical approval was not required (METc 2016/630).Trial registration numberNTR6858.

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Section: Methods and Analysesmentioning

confidence: 99%

Development of an intervention to stimulate physical activity in hard-to-reach physically disabled people and design of a pilot implementation: an intervention mapping approach

et al. 2018

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“…One-third of invited patients consented to participate and a large number of survey instruments were completed, indicating an acceptable response rate compared with other large-scale surveys among rehabilitation patients 4 and in the general population. 53 The large number of instruments used may explain some of the attrition.…”

Section: Study Limitationsmentioning

confidence: 99%

Sense of Coherence, Disability, and Health-Related Quality of Life: A Cross-Sectional Study of Rehabilitation Patients in Norway

Moen

Eide

Drageset

et al. 2019

Archives of Physical Medicine and Rehabilitation

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To study relations between sense of coherence (SOC), disability, and mental and physical components of health-related quality of life (HRQOL) among rehabilitation patients. Design: Survey. Setting: Rehabilitation centers in secondary care. Participants: Patients (NZ975) from the Western Norway Health Region consented to participate and had valid data of the main outcome measures. Interventions: Not applicable. Main Outcome Measures: SOC was measured with the sense of coherence questionnaire (13-item SOC scale [SOC-13]), disability with the World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0), and HRQOL with the Medical Outcomes Study 36-Item Short-Form Health Survey (SF-36). Results: Mean scores AE SD were 62.9AE12.3 for SOC-13, 30.8AE16.2 for WHODAS 2.0, 32.8AE9.6 for SF-36 physical component score, and 43.6AE11.8 for SF-36 mental component score. Linear regression analysis showed that increased SOC score was associated with reduced disability scores in the following domains with estimated regression coefficients (95% confidence interval) cognition e0.20 (e0.32 to e0.08), getting along e0.36 (e0.52 to e0.25), and participation e0.23 (e0.36 to e0.11). The fit of 2 structural models with the association from SOC to HRQOL and disability or with disability as a mediator was better for the mental versus the physical component of HRQOL. High SOC increased the mental component of HRQOL, consistent for all diagnostic groups. For both models, good fit was reported for circulatory and less good fit for musculoskeletal diseases. Conclusions: The results indicate that higher SOC decreases disability in mental domains. The effect of SOC on disability and HRQOL might vary between diagnostic groups. SOC could be a target in rehabilitation, especially among patients with circulatory diseases, but prospective studies are needed.

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“…In people with a physical disability and/or chronic disease, HR-QoL during rehabilitation is lower than in the nondisabled population [3]. More importantly, after rehabilitation, low levels of HR-QoL are commonly reported in people with a physical disability and/or chronic disease [4][5][6], and HR-QoL is poorer compared to a healthy reference population [7]. Low levels of HR-QoL are associated with secondary health conditions (e.g.…”

Section: Introductionmentioning

confidence: 99%

Trajectories of health-related quality of life among people with a physical disability and/or chronic disease during and after rehabilitation: a longitudinal cohort study

et al. 2020

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Purpose To identify Health-related Quality of Life (HR-QoL) trajectories in a large heterogeneous cohort of people with a physical disability and/or chronic disease during and after rehabilitation and to determine which factors before discharge are associated with longitudinal trajectory membership. Methods A total of 1100 people with a physical disability and/or chronic disease were included from the longitudinal cohort study Rehabilitation, Sports and Active lifestyle. All participants participated in a physical activity promotion programme in Dutch rehabilitation care. HR-QoL was assessed using the RAND-12 Health Status Inventory questionnaire at baseline (T0: 3–6 weeks before discharge) and at 14 (T1), 33 (T2) and 52 (T3) weeks after discharge from rehabilitation. A data-driven approach using Latent Class Growth Mixture modelling was used to determine HR-QoL trajectories. Multiple binomial multivariable logistic regression analyses were used to determine person-, disease- and lifestyle-related factors associated with trajectory membership. Results Three HR-QoL trajectories were identified: moderate (N = 635), high (N = 429) and recovery (N = 36). Trajectory membership was associated with person-related factors (age and body mass index), disease-related factors (perceived fatigue, perceived pain and acceptance of the disease) and one lifestyle-related factor (alcohol consumption) before discharge from rehabilitation. Conclusions Most of the people who participated in a physical activity promotion programme obtained a relatively stable but moderate HR-QoL. The identified HR-QoL trajectories among our heterogeneous cohort are disease-overarching. Our findings suggest that people in rehabilitation may benefit from person-centred advice on management of fatigue and pain (e.g. activity pacing) and the acceptance of the disability.

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Health Related Quality of Life in a Dutch Rehabilitation Population: Reference Values and the Effect of Physical Activity

Cited by 11 publications

References 46 publications

Development of an intervention to stimulate physical activity in hard-to-reach physically disabled people and design of a pilot implementation: an intervention mapping approach

Development of an intervention to stimulate physical activity in hard-to-reach physically disabled people and design of a pilot implementation: an intervention mapping approach

Sense of Coherence, Disability, and Health-Related Quality of Life: A Cross-Sectional Study of Rehabilitation Patients in Norway

Trajectories of health-related quality of life among people with a physical disability and/or chronic disease during and after rehabilitation: a longitudinal cohort study

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