Health-related quality of life among mothers of children with cochlear implants with and without developmental disabilities

Zaidman‐Zait, Anat; Curle, Deirdre; Jamieson, Janet R.

doi:10.1016/j.ridd.2022.104397

Cited by 6 publications

(9 citation statements)

References 63 publications

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“…Cognitive impairment was the most critical factor in predicting CI outcomes [20,28,29]. Taken together, the postoperative results of CI in children with additional needs would be worse than the results in children with normal development.…”

Section: Discussionmentioning

confidence: 94%

The Role of Measuring Preoperative Social Maturation Score in Children With Additional Needs Who Underwent Cochlear Implantation

Choi,

Lee,

Kang

et al. 2024

J Audiol Otol

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Background and Objectives: Additional needs refer to specific requirements or support for individuals with disabilities or syndromes. Intellectual ability is a crucial outcome determinant of a cochlear implant. The social quotient (SQ) is an indirect predictor of intellectual capacity and social skills. This study aimed to investigate the clinical significance of the SQ on children with additional needs who received cochlear implants. Subjects andMethods: This study included 24 patients with diagnosed developmental delays and syndromes, who demonstrated SQ scores of <70. Preoperative social skills were evaluated using the SQ. All patients underwent cochlear implantation (CI) surgery before 7 years of age. Outcomes were evaluated using the Infant-Toddler Meaningful Auditory Integration Scale (IT-MAIS) and Categories of Auditory Performance (CAP) scores. Data were collected through a retrospective chart review.Results: Children were categorized into three groups based on their SQ. There were no correlations between the preoperative SQ and IT-MAIS or CAP scores at 2 and 5 years of follow-up postoperatively. The CI outcomes of children with low SQ (<70) differed from those with normal development (SQ>70). In the low-SQ group, inner ear anomalies were observed in 10 (41.7%) patients. Although not statistically significant, these children exhibited a trend of lower average outcomes than children without inner ear anomalies.Conclusions: CI outcomes in children with additional needs positively affected auditory performance. Postoperative auditory and language skills tended to improve slowly in children with additional needs and a lower SQ. Over time, development gradually became more comparable to the other groups of children. However, this improvement was less than that observed in children without additional needs. Our findings support CI for children with additional needs as part of long-term auditory rehabilitation following surgery.

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Section: Discussionmentioning

confidence: 94%

The Role of Measuring Preoperative Social Maturation Score in Children With Additional Needs Who Underwent Cochlear Implantation

Choi,

Lee,

Kang

et al. 2024

J Audiol Otol

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“…The study selection process is detailed in Figure 1. There were 654 studies identified through the search, of which 24 met the inclusion criteria (20–43).…”

Section: Resultsmentioning

confidence: 99%

“…Two studies assessed patient reported outcome measures (37,42). Speaker et al (42) reported that the Glasgow Benefit Inventory (GBI) score was approximately þ30 for a single child with ASD following CI.…”

Section: Quality Of Life Measuresmentioning

confidence: 99%

“…Interestingly, this child did not have any improvement in speech perception or speech expression scores after CI. Zaidman-Zait et al (37) measured health related quality of life (HRQoL) postoperatively in children with CI. HRQoL considers the effect of disability across several dimensions of a child's health including physical, psychological, and social well-being.…”

Section: Quality Of Life Measuresmentioning

confidence: 99%

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Cochlear Implantation in Children with Autism Spectrum Disorder: A Systematic Review and Pooled Analysis

Mathew

Bryan

Chaudhry

et al. 2021

Otology &Amp; Neurotology

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Objective: To determine outcomes following cochlear implantation (CI) in children with autism spectrum disorder (ASD). Databases Reviewed: MEDLINE, Embase, Web of science, Cochrane Library, and Clinicaltrial.gov. Methods: The review was performed according to the PRISMA statement. Primary outcomes measures were changes in speech perception and speech production scores. Secondary outcome measures included communication mode, device use, parental recommendation of implant, postoperative hyperacusis, and quality of life measures. Pooled analysis of outcomes was performed if possible. Results: Twenty-four studies reported on 159 children with ASD. There were improvements in speech perception in 78% of cases and in speech expression in 63% of cases, though the extent of this improvement was variable. Seventy-four percent of children with ASD and CI are nonoral communicators. Intermittent/nonuse rate was 31%. Hearing outcomes are worse compared to children with other disabilities. The vast majority of parents would recommend CI based on their experiences. Conclusion: Outcome in children with ASD and CI are highly variable and significantly poorer compared to non-ASD children. Despite this, most parents report positive experiences and the evidence supports the use of CI in children with ASD.

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“…Adistie et al [61] emphasize the importance of communication about issues that are of utmost concern to children, especially as they approach the end of life, as this helps reduce future anxiety, fear, or depression responses. Zaidman-Zait et al [62] note in their study that participants had lower scores in the categories of self-esteem and socialization. Furthermore, consistent with articles in the previous categories, the relationship and coordination between educational and health professionals emerge as essential elements in ensuring the well-being of these students, with inclusive education holding great signifcance [63].…”

Section: Quality-of-lifementioning

confidence: 86%

Enhancing Quality of Life in Pediatric Palliative Care: Insights, Challenges, and Future Directions—A Systematic Review

Riera-Negre,

Rosselló,

Verger

2024

Health & Social Care in the Community

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Pediatric palliative care (PPC) programs are essential in encompassing not only the affected children but also their family system and the healthcare and educational professionals involved. Despite the field’s significance, there is a notable scarcity in current literature, which underscores the pressing need for further research into the attributes of PPC programs that effectively enhance the quality of life (QoL) for pediatric patients. This study particularly emphasizes the pivotal role of schools as key community resources within this framework, highlighting the crucial aspect of educational integration in PPC. Through a systematic review of relevant literature and applying stringent inclusion and exclusion criteria, we identified pertinent studies across various databases. Of these, 30 articles met our criteria and were subject to a thorough qualitative analysis. Our findings indicate that while PPC programs may vary in their methodologies, they consistently share certain core elements that significantly boost the QoL for pediatric patients. These include a holistic approach that addresses the physical, emotional, psychosocial, and spiritual facets of care; encourages the active involvement of the patient in decision-making processes; and ensures timely access to PPC services. Importantly, our analysis identified the critical role of educational settings in enhancing QoL, shedding light on the vital need for educational inclusion and the integration of schools into the broader spectrum of PPC services. The distinct individual perceptions of QoL and the varied international practices in PPC underscore the imperative to tailor successful strategies to specific local contexts, thereby fostering the global well-being of pediatric palliative care patients.

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Health-related quality of life among mothers of children with cochlear implants with and without developmental disabilities

Cited by 6 publications

References 63 publications

The Role of Measuring Preoperative Social Maturation Score in Children With Additional Needs Who Underwent Cochlear Implantation

The Role of Measuring Preoperative Social Maturation Score in Children With Additional Needs Who Underwent Cochlear Implantation

Cochlear Implantation in Children with Autism Spectrum Disorder: A Systematic Review and Pooled Analysis

Enhancing Quality of Life in Pediatric Palliative Care: Insights, Challenges, and Future Directions—A Systematic Review

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