Health related quality of life in parents of children with speech and hearing impairment

Aras, Ivana; Stevanović, Ranko; Vlahović, Sanja; Stevanović, Siniša; Kolarić, Branko; Kondić, Ljiljana

doi:10.1016/j.ijporl.2013.12.001

Cited by 32 publications

(32 citation statements)

References 44 publications

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“…Moreover, mothers report lower HRQoL than fathers (Aras et al, 2014, Reilly et al, 2015, which is consistent with the Swedish reference population, where women report lower HRQoL than men (Sullivan et al, 2002).…”

Section: Health-related Quality Of Lifesupporting

confidence: 81%

“…Previous studies report a diminished HRQoL in parents of children 0-18 years old, with different chronic conditions, compared to parents of healthy children (Aras et al, 2014, Bella et al, 2011, Reilly et al, 2015, Meltzer et al, 2015. Furthermore, mothers caring for children with cerebral palsy have reported low HRQoL, especially in the domain of vitality, along with low CAR (Bella et al, 2011).…”

Section: Health-related Quality Of Lifementioning

confidence: 98%

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What about the parents? : Sleep quality, mood, saliva cortisol response and sense of coherence in parents with a child admitted to pediatric care

Angelhoff¹

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Parents experience many stressful situations when their child is ill and needs medical care, irrespective of the child’s age, diagnosis or the severity of the illness. Poor sleep quality and negative mood decrease the parents’ ability to sustain attention and focus, to care for their ill child, and to cope with the challenges they face. The overall aim of this thesis was to evaluate sleep, mood, cortisol response, and sense of coherence (SOC) in parents caring for children in need of medical care, and to identify factors that may influence parents’ sleep. This thesis includes four original studies; two of these are quantitative, prospective, descriptive and comparative studies including parents (n=82) accommodated in six pediatric wards with their ill child, using questionnaires and sleep logs to measure sleep, mood and SOC, and saliva cortisol to measure cortisol response. A follow-up was performed four weeks later at home, after hospital discharge. The other two studies are qualitative, inductive and explorative interview studies, including parents (n=12) staying overnight with their preterm and/or ill infant in three neonatal intensive care units, and parents (n=15) with a child receiving hospital-based home care in two pediatric outpatient clinics. The interviews were analyzed with a phenomenographic method. Being together with one’s family seems beneficial for sleep and may decrease stress. The ability to stay with the child, in the hospital or at home, was highly appreciated by the parents. When caring for a child with illness, parents’ sleep quality was sufficient in the hospital; however, sleep quality improved further (p<0.05) at home after discharge. The parents reported frequent nocturnal awakenings in the hospital caused by the child, medical treatment and hospital staff. Concern and anxiety about the child’s health, and uncertainty about the future were stressors affecting the parents’ sleep and mood negatively. The parents had lower (p=0.01) morning awakening cortisol levels in the pediatric ward compared to at home, and parents accommodated for more than one night had lower (p<0.05) post-awakening cortisol levels compared to parents staying their first night. The findings of this thesis conclude that being together as a family is important for the parents’ sleep. The ability to be accommodated in the hospital and gather the family around the child may have given the parents time for relaxation and recovery, that in turn may lead to a less stressful hospital stay. When it is beneficial for the child, the whole family should be included in the pediatric care. Moreover, pediatric nurses must acknowledge parents’ sleep, in hospital and at home. Medical treatment and care at night should be scheduled and sleep promoted for the parents in order to maintain health and well-being in the family.

The electronic version of the thesis is a corrected version of the printed thesis.

This thesis has also been funded by Barnklinikens 60-årsfond, Filip SchelinsStiftelse, Riksföreningen för barnsjuk...

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Section: Health-related Quality Of Lifesupporting
confidence: 81%

Section: Health-related Quality Of Lifementioning
confidence: 98%

What about the parents? : Sleep quality, mood, saliva cortisol response and sense of coherence in parents with a child admitted to pediatric care
Angelhoff¹
0
0
0
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The electronic version of the thesis is a corrected version of the printed thesis.

This thesis has also been funded by Barnklinikens 60-årsfond, Filip SchelinsStiftelse, Riksföreningen för barnsjuk...

show abstract

“…In our study according to gender; parents with mentally retarded children; As a result of the comparison of the levels of liking of physical activity in terms of positive thoughts, there was no difference between the mean scores of men and women, while there was a high significant Investigation of Physical Activity Enjoying And Quality of Life of Parents Who Have Mentally Disabled Children difference in negative thinking against women. Studies have shown that families with mentally retarded children have lower physical health and quality of life than mothers with normal developmental children (Allik et al, 2006;Benjak, 2011;Aras et al, 2014;Eapen and Guan, 2016). Upgrading a child with a disability or autism can affect the adaptation skills, characteristics, perceived family life quality, psychological health, and family's sense of consistency (Tung et al, 2014).…”

Section: Discussionmentioning
confidence: 99%

Investigation of Physical Activity Enjoying And Quality of Life of Parents Who Have Mentally Disabled Children
Kabaklı
¹
,
Ersin
²
,
Demirci
³

et al. 2019
International Journal of Disabilities Sports and Health Sciences
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In this study, it was aimed to investigate physical activity enjoying and quality of life In this study, it was aimed to investigate physical activity enjoying and quality of life the parents who have mentally retarded children. The study was to create by parents of female (N = 72) and male (N = 35) with mentally disability children in two special education center schools affiliated to the Ministry of National Education in Mersin. World Health Organization Quality of Life Scale-Short Form (WHOQOL-BREF) and Physical Activity Enjoyment Scale (PACES) were used to measure the quality of life of the parents. After the descriptive statistical procedures were applied in the analysis of the obtained data, t test and ANOVA and Mann-Whitney U and Kruskal Wallis tests were used to measure the differences between the variables. Significance was accepted as p <0.05 According to the findings; As a result of the comparison of the likelihood of physical activity of the parents who have mentally retarded children according to gender, a high significant difference was found between women and men total score averages for women with negative thinking (p <0.05). In our study, there was a significant correlation (p <0,05, p <0,01) from physical activity likelihood of positive thinking subscale total scores and quality of life. Negative Thinking As a result of the relational analysis of total scores and quality of life levels, only low level of relationship with Psychological Health (p <0.05) was determined. As a result of examining the health-related quality of life levels of the parents who have mentally retarded children according to age, a significant difference was observed between the mean scores of the age groups (p <0.05). In conclusion, it can be said that the enjoyment of physical activity affects parents' health-related quality of life and there is a significant relationship between age and quality of life.

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“…Parents of deaf children do not make their decisions about how to raise their child in a vacuum. Typically, parents are selectively informed, at least initially (in the United States, around 96 percent of deaf children are born to hearing parents; Mitchell and Karchmer 2004), and are more likely to be vulnerable as they are stressed by an unexpected situation for which they are unprepared (Koester and Meadow-Orlans 1990;Aras et al 2014). It is natural that parents turn to the higher-status medical and hearing science professions for guidance.…”

Section: Responsibility For Language Deprivation and Neglectmentioning
confidence: 99%

Avoiding Linguistic Neglect of Deaf Children
Humphries
¹
,
Kushalnagar
²
,
Mathur
³

et al. 2016
Social Service Review
66
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36
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Deaf children who are not provided with a sign language early in their development are at risk of linguistic deprivation; they may never be fluent in any language, and they may have deficits in cognitive activities that rely on a firm foundation in a first language. These children are socially and emotionally isolated. Deafness makes a child vulnerable to abuse, and linguistic deprivation compounds the abuse because the child is less able to report it. Parents rely on professionals as guides in making responsible choices in raising and educating their deaf children. But lack of expertise on language acquisition and overreliance on access to speech often result in professionals not recommending that the child be taught a sign language or, worse, that the child be denied sign language. We recommend action that those in the social welfare services can implement immediately to help protect the health of deaf children.

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Health related quality of life in parents of children with speech and hearing impairment

Cited by 32 publications

References 44 publications

What about the parents? : Sleep quality, mood, saliva cortisol response and sense of coherence in parents with a child admitted to pediatric care

What about the parents? : Sleep quality, mood, saliva cortisol response and sense of coherence in parents with a child admitted to pediatric care

Investigation of Physical Activity Enjoying And Quality of Life of Parents Who Have Mentally Disabled Children

Avoiding Linguistic Neglect of Deaf Children

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