Health related quality of life of Dutch children: psychometric properties of the PedsQL in the Netherlands

Engelen, Vivian; Haentjens, Marleen M; Detmar, Symone; Koopman, Hendrik M.; Grootenhuis, Martha A.

doi:10.1186/1471-2431-9-68

Cited by 148 publications

(200 citation statements)

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“…The Dutch version of the PedsQL has adequate psychometric properties and can be used as a HRQoL instrument in pediatric research in the Netherlands. 23 A scale score and total functioning score of 1 SD below the mean of healthy reference norm was taken to indicate impaired HRQoL. 24 …”

Section: Hrqol: Pediatric Quality Of Life Inventorymentioning

confidence: 99%

Perceived Motor Competence Differs From Actual Performance in 8-Year-Old Neonatal ECMO Survivors

et al. 2016

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OBJECTIVE: To assess perceived motor competence, social competence, self-worth, healthrelated quality of life, and actual motor performancein 8-year-old survivors of neonatal extracorporeal membrane oxygenation (ECMO). METHODS:In a prospective nationwide study, 135 children completed the extended version of the "athletic competence" domain of the Self Perception Profile for Children (SPPC) called the m-CBSK (Motor supplement of the Competentie BelevingsSchaal voor Kinderen) to assess perceived motor competence, the SPPC, and the Pediatric Quality of Life Inventory (PedsQL), andwere tested with the Movement Assessment Battery for Children. SD scores (SDS) were used to compare with the norm. RESULTS:The mean (SD) SDS for perceived motor competence, social competence, and selfworth were all significantly higher than the norm: 0.18 (0.94), P = .03; 0.35 (1.03), P < .001; and 0.32 (1.08), P < .001, respectively. The total PedsQL score was significantly below the norm: mean (SD) SDS: -1.26 (1.53), P < .001. Twenty-two percent of children had actual motor problems. The SDS m-CBSK and actual motor performance did not correlate (r = 0.12; P = .17). The SDS m-CBSK significantly correlated with the athletic competence domain of the SPPC (r = 0.63; P < .001).CONCLUSIONS: Eight-year-old ECMO survivors feel satisfied with their motor-and social competence, despite impaired PedsQL scores and motor problems. Because motor problems in ECMO survivorsdeteriorate throughout childhood, clinicians should be aware that these patients may tend to "overrate" their actual motor performance. Education andstrict monitoring of actual motor performanceare important to enable timelyintervention.a Department of Orthopedics, Section of Physical Therapy, and b Intensive Care and Department of Pediatric Surgery, Erasmus Medical Center-Sophia Children's Hospital, Rotterdam, Netherlands; c Department of Rehabilitation, Pediatric Physical Therapy and Donders Institute, Radboud University Medical Center, Nijmegen, Netherlands; and d Department of Neonatology, Radboud University Medical Center-Amalia Children's Hospital, Nijmegen, Netherlands Ms Toussaint contributed to the conception and design, acquisition of data, analysis and interpretation of data, and writing of the fi rst draft; Dr van der Cammen-van Zijp contributed to the conception and design, acquisition of data, analysis and interpretation of data, writing of the fi rst draft, and critically revising the manuscript; Dr Janssen contributed to the conception and design, acquisition of data, and critically revising the manuscript; Dr Tibboel contributed to the conception and design and critically revising the manuscript; Dr Heijst contributed to conception and design and to acquisition of data and critically revised the manuscript; Dr IJsselstijn contributed to the conception and design, acquisition of data, interpretation of data, writing of the fi rst draft, and critically revising the manuscript; and all authors approved the fi nal manuscript as submitted. Currently, t...

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Section: Hrqol: Pediatric Quality Of Life Inventorymentioning

confidence: 99%

Perceived Motor Competence Differs From Actual Performance in 8-Year-Old Neonatal ECMO Survivors

et al. 2016

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“…This group (n ϭ 62) included asthma (36.4%), congenital defect (13.6%), skin disease (6.1%), and migraine (6.1%). The Dutch PedsQL version differentiates between children with and without a chronic condition (36). The sociodemographics about the parents were as follows: women (80.6%), parental country of birth (The Netherlands, 85.9%), high education (48.4%), and employment (72.9%).…”

Section: Hrqolmentioning

confidence: 99%

“…Previous research provided data on a Dutch healthy norm population (n ϭ 401) and on children with other chronic health conditions (36). Children with chronic health conditions were identified if the parents reported on the sociodemographic questionnaire that their child suffered from a chronic health condition.…”

Section: Hrqolmentioning

confidence: 99%

“…These Dutch norm data for the norm population were collected in previous research in children and their par- (36). Due to the lack of data, we could not fully compare the socioeconomic status of the participants and nonparticipants.…”

mentioning

confidence: 99%

“…In our study, data on HRQOL were compared with a Dutch norm population containing a sample of healthy children and children with a chronic health condition (36). These Dutch norm data for the norm population were collected in previous research in children and their par- (36).…”

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confidence: 99%

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Predictors of health‐related quality of life in children and adolescents with juvenile idiopathic arthritis: Results from a web‐based survey

Haverman¹,

Grootenhuis²,

M³

et al. 2012

Arthritis Care & Research

112

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Objective. Children with juvenile idiopathic arthritis (JIA) experience functional impairment due to joint manifestations of the disease. The aim of our present study was to assess health-related quality of life (HRQOL) and its predictors in a group of children and adolescents with JIA. Methods. The study sample includes all JIA patients (ages 6 -18 years) who consulted a pediatric rheumatologist in Amsterdam, The Netherlands, between February 2009 and March 2010. HRQOL was measured using the Paediatric Quality of Life Inventory 4.0 (ages 6 -18 years). Functional ability was measured using the Childhood Health Assessment Questionnaire, and medical and sociodemographic parameters were assessed. The study sample was compared to a Dutch youth norm population including children with other chronic health conditions. The proportion of children with JIA with an impaired HRQOL (<1 SD) was evaluated and multivariate regression analyses were performed to predict HRQOL outcome. Results. Of the eligible patients, 64.1% (n ‫؍‬ 152) participated. Both children (ages 6 -12 years) and adolescents (ages 13-18 years) with JIA reported a significantly lower HRQOL in almost all domains compared to either healthy controls or children with other chronic health conditions. Approximately half of the children with JIA showed an impaired HRQOL. The main predictors of HRQOL were functional ability, pain, subjective burden of medication use, and school absence. Conclusion. The HRQOL is severely affected in children and adolescents with JIA. These findings underline the necessity to systematically monitor HRQOL in daily clinical practice.

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Newborn Hearing Screening vs Later Hearing Screening and Developmental Outcomes in Children With Permanent Childhood Hearing Impairment

Korver

Konings²,

Dekker³

et al. 2010

JAMA

188

141

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Health related quality of life of Dutch children: psychometric properties of the PedsQL in the Netherlands

Cited by 148 publications

References 19 publications

Perceived Motor Competence Differs From Actual Performance in 8-Year-Old Neonatal ECMO Survivors

Perceived Motor Competence Differs From Actual Performance in 8-Year-Old Neonatal ECMO Survivors

Predictors of health‐related quality of life in children and adolescents with juvenile idiopathic arthritis: Results from a web‐based survey

Newborn Hearing Screening vs Later Hearing Screening and Developmental Outcomes in Children With Permanent Childhood Hearing Impairment

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