Health Related Quality of Life in Children with Constipation-Associated Fecal Incontinence

Bongers, Marloes E.J.; Dijk, Marie van; Benninga, Marc A.; Grootenhuis, Martha A.

doi:10.1016/j.jpeds.2008.11.029

Cited by 92 publications

(80 citation statements)

References 24 publications

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“…Children who wear pull-ups out of the potty training age, or with constant soiling, suffer severe social and psychological consequences. Bongers et al found 60 % of 136 children with constipation and secondary fecal incontinence were afraid of having feces in their underwear, 78 % abhorred this situation, and 23 % had been bullied by other children [16]. All of the patients in our series had presented with involuntary bowel movements for many years before they were referred to the Colorectal Center.…”

Section: Discussionmentioning

confidence: 56%

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Primary sigmoidectomy and appendicostomy for chronic idiopathic constipation

et al. 2016

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Section: Discussionmentioning

confidence: 56%

“…Social problems related to constipation and fecal incontinence have a negative impact on children and their families [1,16]. Children who wear pull-ups out of the potty training age, or with constant soiling, suffer severe social and psychological consequences.…”

Section: Discussionmentioning

confidence: 99%

Primary sigmoidectomy and appendicostomy for chronic idiopathic constipation

et al. 2016

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“…The provided assistance allows and eases the understanding of the causes and maintenance of the fear to evacuate and of the anxiety disorder, which sometimes settles on the children and on their mothers [28]. Therefore, it is likely that children with high sensitivity to anxiety have an increased risk to develop fear of pain and physical, emotional or behavioural disabilities, which are often irreversible due to its chronical nature [4,24,29].…”

Section: Discussionmentioning

confidence: 99%

“…A conceptual model that was published on a recent research shows that the genetic predisposition and stressful events that occur in early life make children more vulnerable to evolve gastrointestinal functional disorders (GFDs) [2] causing a negative impact on the Quality of Life (QoL) of patients and on their family dynamics [3][4][5].…”

Section: Introductionmentioning

confidence: 99%

Do Educational Interventions with Mothers Enhance the Quality of Life of their Children with Chronic Functional Constipation in a Randomized Trial?

Sette¹,

Cavalcanti²,

Coriolano³

et al. 2017

J Comm Pub Health Nurs

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Aim: To analyse the effect on the quality of life of children with chronic functional constipation when performing educational intervention on mothers, using the technique of focus groups, in a prospective randomized trial. Method:This study was conducted on the paediatric gastroenterology clinic of the teaching hospital of the Federal University of Pernambuco, from November 2012 to May 2013. A prospective study of educational intervention in health was applied on two randomized groups (experimental and control) that was formed from a sample of 55 participants according to the Rome III criteria. Mothers from the experimental group participated of a focus group that used active methods of teaching and learning in order to elucidate the biopsychosocial issues surrounding constipation. Children from both groups kept the usual treatment held by the paediatric gastroenterologist during the monthly medical visits. In order to measure the primary outcome -quality of life -the questionnaire PedsQLTM 4.0 Generic Core Scales was applied to both groups before and after the intervention. The data related to clinical parameters and quality of life of participants before and after the intervention were analytically compared in both groups with the significance level p ≤ 0.05. Results:This study included 55 mothers of children and adolescents with disorders of defecation, 11 in the educational intervention group and 44 in the control group. After monitoring the mothers that participated in focus groups for six months, the outcome quality of life was represented by a total score of 89.13, whilst the total score before the intervention was 78,26 (p=0,00). Conclusion:The quality of life of patients with functional constipation improved after the intervention. Therefore, the educational intervention on focus groups with mothers configure a therapeutic alternative to patients and families living with defecation disorders.

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“…Birçok çalışma bu çocukların daha yüksek düzeyde davranış problemi sergilediğini göstermiştir. Son on yılda, FK'nın çocuk ve ergenlerin yaşam kalitesini ne şekilde etkilediğini standart araçlarla değerlendiren çalışmalar yapılmıştır [9][10][11][12][13][14] (Tablo 1). Bu çalışmalar kabızlığı olan çocukların sağlıklılara göre duygusal, sosyal ve fiziksel olarak olumsuz biçimde etkilendiğini göstermiştir.…”

unclassified

Çocuklarda fonksiyonel kabızlık tedavisinin yaşam kalitesi üzerine etkisi

Kilincaslan¹,

Abali²,

Aydoğdu³

et al. 2014

MMJ

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GirişFonksiyonel kabızlık (FK) sık görülen bir patolojidir ve bu hastalar genel pediatri polikliniklerine başvuruların % 3'ünü, pediatrik gastroenteroloji polikliniğine başvuranların ise % 25'ini oluşturur [1]. Yakın dönemde gerçekleştirilen iki ayrı çalışmada FK'nın genel popülasyondaki çocuklarda % 5-18 oranında görüldüğü bildirilmiştir [2,3]. Hastaların yaklaşık yarısında belirtilerin ilk bir yılda başladığı, ortalama başlangıç yaşının 2 olduğu ve en sık olarak 2 ve 4-5 yaş arasındaki çocuklarda görüldüğü bildirilmektedir [4,5]. FK sıklıkla tekrarlayıcı bir durumdur: beş yıllık izlemde hastaların üçte biri ile yarısında tedaviye rağmen şikayetlerin sürdüğü, dörtte birinde ise erişkinlik dönemine kadar belirtilerin devam ettiği gösterilmiştir [6]. Bulgular: Annelerin algıladığı toplam yaşam kalitesi tedavinin 6. haftasının sonunda başlangıca kıyasla anlamlı düzeyde artış gösterdi (82,87 ± 13,91'e karşı 74,24 ± 15,40, p < 0,001) ve tüm alanlardaki artış anlamlı düzeydeydi. Ayrıca annelerin psikolojik zorlanma düzeylerini yansıtan global şiddet indeksi (GŞİ) puanlarında da belirgin azalma (1,09 ± 0,76'e karşı 0,78 ± 0,64, p<0,001) bildirildi. Fiziksel, sosyal ve toplam yaşam kalitesi puanlarındaki fark annelerin GŞİ puanları istatistiksel olarak kontrol edildiğinde de korundu.Sonuç: Hastalarımızda tüm yaşam kalitesi alanlarında ve toplam puanda belirgin artış gözlendi. Kabızlık belirtilerindeki azalma, fiziksel sağlık ve sosyal alandaki iyileşmeyi direkt olarak etkilerken, duygusal işlevsellikteki iyileşme, annelerin psikolojik zorlanmasının azalması ile ilişkili, dolaylı bir etki olduğu görülmektedir. Anahtar kelimeler: Fonksiyonel kabızlık, Yaşam kalitesi, Okul öncesi çocuklar, TedaviABSTRACT Objective: The aim of this study was to determine whether there is a change in the quality of life (QOL) in preschool children with functional constipation (FC) after undergoing standard treatment.Patients and Methods: Sixty-five patients, between 2-6 years of age, with FC, were included in the study. The mothers completed the Pediatric Quality of Life (QOL) Inventory and Symptom Checklist-90-Revised (SCL-90-R) before starting the treatment and at the 6th week of the treatment. The change in QOL and SCL-90-R scores were compared using repeated measures ANOVA and Wilcoxon tests.Results: Mother-perceived total QOL was improved at 6th week of treatment compared with baseline (82.87 ± 13.91 vs 74.24 ± 15.40, p < 0.001) and improvement in all domains of QOL was significant. A significant decrease in the global severity index (GSI) of maternal psychological distress (1.09 ± 0.76 vs 0.78 ± 0.64, p<0.001) was also reported. Improvement in physical, social and total QOL was maintained after GSI scores of the mothers were statistically controlled.Conclusion: Significant improvement in all QOL categories was detected. Decrease in symptoms of constipation seemed to effect physical and social aspects of QOL directly, whereas improvement in emotional functioning seemed rather be an indirect effect of treatment via decrease in psycholog...

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Health Related Quality of Life in Children with Constipation-Associated Fecal Incontinence

Cited by 92 publications

References 24 publications

Primary sigmoidectomy and appendicostomy for chronic idiopathic constipation

Primary sigmoidectomy and appendicostomy for chronic idiopathic constipation

Do Educational Interventions with Mothers Enhance the Quality of Life of their Children with Chronic Functional Constipation in a Randomized Trial?

Çocuklarda fonksiyonel kabızlık tedavisinin yaşam kalitesi üzerine etkisi

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