Health – Related Quality of Life Assessment in Filipino Children with Hemophilia Aged 4 To 16 Years in a Tertiary Hospital

Hernandez, Flerida G

doi:10.4172/2329-8790.1000133

Cited by 3 publications

(3 citation statements)

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“…У контексті такого підходу активно використовуються запитальники для оцінки ЯЖ дітей з гемофілі єю у клінічній практиці багатьох світових країн (Канада, Німеччина, Франція, Великобританія, Туреччина, Єгипет, Росія, Бразилія, Ірак, Філ ліпіни та ін.) [6,36,39,54,55,60,73,81].…”

Section: висновкиunclassified

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2017

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Видруковано у друкарні «Аврора принт», Свідоцтво суб'єкта видавничої справи А00 № 777897 від 06.07.2009 р. вул. Причальна, 5, м. Київ, тел. (044) 550 52 44 Усі статті рецензовані. Цілковите або часткове копіювання у будь який спосіб матеріалів, опублікованих у цьому виданні, допускається лише з письмового дозволу редакції. Відповідальність за зміст рекламних матеріалів несе рекламодавець ©ДУ «Інститут педіатрії, акушерства і гінекології НАМН України», 2017 ©Видавництво «Група компаній МедЕксперт», 2017 Увага! Здійснити передплату видання «Перинатологія та педіатрія» можна у будь якому відділенні поштового зв'язку України

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Section: висновкиunclassified

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2017

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“…Meanwhile, adolescents were impaired in social dimensions (such as 'perceived support' , 'friends' and 'dealing with haemophilia') and 'sport and school. 7,8 Children with a higher frequency of bleeding and bleeding experiences within the last 6 months had more HRQoL impairment than their counterparts. 9,10 The severity of haemophilia is negatively correlated with HRQoL.…”

Section: Introductionmentioning

confidence: 99%

“…Younger children tend to have poorer HRQoL compared to older children 6 . Younger children showed a higher impairment in subscale ‘family,’ ‘treatment,’ and ‘others.’ Meanwhile, adolescents were impaired in social dimensions (such as ‘perceived support’, ‘friends’ and ‘dealing with haemophilia’) and ‘sport and school 7,8 . Children with a higher frequency of bleeding and bleeding experiences within the last 6 months had more HRQoL impairment than their counterparts 9,10 .…”

Section: Introductionmentioning

confidence: 99%

Health‐related quality of life of Indonesian children with hemophilia

Maimon,

Widjajanto,

Sitaresmi

2024

Haemophilia

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IntroductionMeasuring health‐related quality of life (HRQoL) in haemophilia patients provides a comprehensive patient's functional and the impact of the disease and its treatment.AimThis study aimed to assess the HRQoL of haemophilia children and related factors.MethodsWe conducted a cross‐sectional study from 6 April 2019 to 29 April 2019. We recruited children aged 8–16 years old who were members of the Yogyakarta Province Branch, Indonesian Haemophilia Society. Children filled in the Indonesian Haemo‐QoL short‐version questionnaire that consists of nine dimensions, and the score ranges from 0 to 100, in which a higher score shows a higher impartment.ResultsForty‐four children participated in this study. The mean age was 11.99 + 2.49. The median age of the first bleeding episode was 5 years, and the median frequency of spontaneous bleeding during the previous year was 13.5. All children received antihemophilic factor (AHF) on‐demand; most (81.8%) received AHF in the advanced symptoms. The mean total score of HRQoL was 42.7 ± 15.5, with the highest impairment in the family dimension, with a mean score of 68.0 ± 22.3. The severity of haemophilia was significantly correlated with the total score of HRQoL and dimensions of physical health, feeling, view, and family (effect size ranges from 0.30 to 0.42). The frequency of bleeding was significantly related to the total score of HRQoL and the feeling dimension (effect size of 0.47 and 0.34).ConclusionThe HRQoL of our study was lower than in countries where AHF prophylactic is provided. More severe haemophilia and more frequent bleeding significantly lower HRQoL.

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Quality of life and clinical assessment of joint health in children with hemophilic arthropathy

Hassab

Saad

Ghany

2022

Egypt Rheumatol Rehabil

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Background Hemophilic arthropathy results in pain, deformity, and disability with severe impairments, activity limitation, and thus productivity loss. Also patterns of treatment interfere with patients’ life, so the quality of life should be assessed when evaluating treatment. The aim of this work was to assess the quality of life of children with hemophilic arthropathy and its relation to clinical joint health. Results The study was carried out on fifty boys with hemophilic arthropathy. All patients were subjected to thorough local clinical assessment of the most affected and/or target joint using Hemophilia Joint Health Score (HJHS 2.1) and assessment of quality of life using Haemo quality of life (Haemo-Qol) questionnaire children and parent versions. Among the fifty hemophilic patients, 36 (72%) patients were hemophilia A and 14 (28 %) patients were hemophilia B. The age at first hemarthrosis ranged from 1 to 8 years with a mean of 2.40±1.78. While the number of joints affected in the studied patients ranged from 2 to 13 joints with a mean of 7±3.25. As regards the severity, 23 patients (46%) had severe, and 27 (54%) had moderate hemophilia. Forty four (88%) patients had different degrees of anemia. There was significant correlation between child Haemo-QoL with degree of anemia (r = 0.291, P = 0.040), mainly with view and school dimensions. There were significant correlations between child and parent Haemo-QoL and HJHS with each of the following: factor activity level, duration of the disease, duration of joint disease, number of bleeding attacks last year, and number of joints affected. Synovectomy was done for 5 (10%) patients. The total child Haemo-QoL score was statistically significantly lower after the intervention (P=0.043), with a significant improvement in physical health, feeling, view, family, school and sports, treatment, and dealing dimensions. In the current study, there were significant positive correlations between child and parent Haemo-QoL and HJHS scores. Conclusions The quality of life in patients with hemophilic arthropathy was influenced by the joint health, factor activity level, disease duration, number of bleeding attacks, number of joints affected (during life), duration of joint disease, and presence of hepatitis C virus.

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Health – Related Quality of Life Assessment in Filipino Children with Hemophilia Aged 4 To 16 Years in a Tertiary Hospital

Cited by 3 publications

References 21 publications

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Health‐related quality of life of Indonesian children with hemophilia

Quality of life and clinical assessment of joint health in children with hemophilic arthropathy

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