Health promotion for people with intellectual disabilities – A concept analysis

Roll, Anne E.

doi:10.1111/scs.12448

Cited by 25 publications

(28 citation statements)

References 56 publications

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“…These programmes are designed to engage the local community in healthier lifestyle and disease management strategies. Such approaches are known to be effective in people with intellectual disabilities and ASD (Roll, 2017). The various healthy eating and exercise programmes of the clinic appear to have had a positive effect overall on levels of obesity as measured by BMI.…”

Section: Discussionmentioning

confidence: 99%

Chronic health and lifestyle problems for people diagnosed with autism in a student-led clinic

Tolchard

Stuhlmiller

2018

AIA

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Purpose People with autism spectrum disorder (ASD) are at greater risk of developing chronic health and risky lifestyle problems. This is exaggerated further for people living in rural settings and from cultural backgrounds traditionally underserved by healthcare services. The purpose of this paper is to describe an evaluation of health and behavioural lifestyle outcomes of people diagnosed with ASD in a student-led clinic in rural/regional Australia. Design/methodology/approach Routine clinical outcomes and lifestyle measures were routinely collected at a primary acre student-led Clinic in rural/regional Australia. Participants were all attending the clinic who provided consent for their routine date to be reported. Participants ranged in age from new born to 100 years and were representative of the local community. Findings The results indicate there is an increased risk for people with ASD developing chronic conditions compared to those without a diagnosis. This also resulted in higher body mass index and blood sugar levels linked to diabetes and hypertension. Mental health problems were common in people diagnosed with ASD especially anxiety disorders. Smoking was problematic for people with ASD but mainly in non-Aboriginal and Torres Strait Islanders. Alcohol use was not an increase risk in ASD. Originality/value Little is reported on the health and lifestyle experiences of people with ASD in rural/regional settings, especially from Aboriginal and Torres Strait Islander communities. This paper gives an initial insight to the presentation of chronic conditions and harmful lifestyle choices. Possible insights into adapting or modifying care for people with ASD in rural/regional Australia are given.

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Section: Discussionmentioning

confidence: 99%

Chronic health and lifestyle problems for people diagnosed with autism in a student-led clinic

Tolchard

Stuhlmiller

2018

AIA

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“…Undetected or untreated physical health problems can lead to behavioural management issues; therefore, mental health nursing interventions for individuals with an intellectual disability require knowledge about atypical symptom presentation and the patient's personal communication style, as well as cognitive level (Bakken et al, 2017). Health conditions more commonly associated with this population include epilepsy, oral health conditions, obesity, cardiovascular disease, gastroesophageal reflux, constipation to name a few (Roll, 2018). This may in combination with a dual mental health diagnosis, where the person is already at a higher risk of physical health problems, associated with their mental illness (Haddad et al, 2016).…”

Section: Clinical Training Need: Individual Care Plansmentioning

confidence: 99%

Training needs analysis of nurses caring for individuals an intellectual disability and or autism spectrum disorder in a forensic service

Burke

Cocoman

2020

JIDOB

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Purpose Examining the education and training needs of forensic nurses is paramount as services move from the older institutions to new care settings. The purpose of this study was to identify Irish Forensic nurses perceived deficits in their knowledge and skills to assist them to provide effective seamless care for individuals with an intellectual disability within their forensic mental health service, so that appropriate training could be provided. Design/methodology/approach Training needs analysis (TNA) procedures are used as a way of establishing the continuing processional development of staff, as they seek to identify the gaps between the knowledge and skills of an individual and the need for further training. A training needs tool developed by Hicks and Hennessy (2011) was used and completed by nurses working in an Irish forensic mental health service. A total of 140 surveys were circulated and 74 were completed (51 per cent response). Findings The top priority training needs identified were for additional training in research and audit and in the use of technology. Other self-identified training needs included additional training in behavioural management for challenging behaviour, understanding mental health and intellectual disability and dual diagnosis, training in enhancing communication skills and how to work with patients who have an intellectual disability patients specific training on autistic spectrum disorders and a guide and template for advance individual care planning and for caring for the physical health needs and promoting the physical health needs of these patients. Originality/value Despite there being a vast range of training issues identified, the majority of nurses appear to have a clear idea of their training needs to ensure the provision of seamless care for individuals with an intellectual disability within a forensic mental health setting. This TNA has identified the specific needs of nursing staff working at different positions across the interface of intellectual disability and forensic mental health care.

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“…Their participation and contribution enrich the module for themselves and future students. Roll (2017) advocates including the perspectives of people with intellectual disabilities in initiatives that support a healthy lifestyle and provide health education. PPI with individuals with intellectual disabilities has been established and is encouraged.…”

Section: Discussionmentioning

confidence: 99%

“…Although the health of people with intellectual disabilities has improved in recent years, they have an increased likelihood of developing a range of health conditions (Taggart & Cousins, 2014) such as diabetes, osteoporosis and obesity which are sometimes amenable to health promotion and preventative strategies. Health promotion practices are well established for the general population but best practice in relation to people with intellectual disability has only received attention in recent years (Roll, 2017). The accessibility of health promotion programmes in terms of both physical access to and design/presentation of information can present as a problem for people with intellectual disability (Royal College of Nursing, 2011).…”

Section: Introductionmentioning

confidence: 99%

Don’t Mention the Diet! A health promotion initiative to support healthy diet and lifestyle decision‐making by people with intellectual disability

Martin

Divane

Twomey

et al. 2021

Brit J Learn Disabil

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Accessible summary People with intellectual disability have a right to have a say in how they want to live Information about the importance of healthy eating and drinking can be difficult to understand People with intellectual disability co‐produced an educational module around healthy eating and drinking and were actively involved in deciding what they wanted to learn about and planning how they would like to learn This project helped people with intellectual disability to understand and make choices around their diet Abstract Background People with intellectual disability have a right to be involved in and make decisions that affect them. This paper presents a health promotion initiative that was co‐produced with people with intellectual disability called Don't Mention the Diet! Evidence suggests this group experience challenges related to health literacy. Further, health promotion materials can be inaccessible. This project demonstrates how active involvement of people with intellectual disability in the design and provision of appropriate educational supports can assist them to make informed decisions about their diets and lifestyle. Methods A collaborative patient and public involvement approach was adopted to ensure the development of a health promotion module that addressed the specific learning needs and knowledge gaps of students with intellectual disability in relation to diet and its impact on well‐being. An 8‐month module with a double‐helix structure intertwining educational and personal development elements was designed. Outcomes Students who completed the module enjoyed its person‐centred and interactive approach. Equipped with information about the benefits of diet, exercise and other health‐related behaviours, they were empowered to make informed decisions on whether or not to adopt a healthy lifestyle. Conclusions The education of students with intellectual disability was supported by tailoring the teaching methods to meet their learning abilities. Further, the inclusion of co‐designers with intellectual disability was key to ensuring the successful module design and delivery. Listening to the self‐identified health education needs and responding collaboratively resulted in an educational initiative that met student's needs.

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Health promotion for people with intellectual disabilities – A concept analysis

Abstract: This analysis provides a solid foundation for healthcare stakeholders' planning, implementing and evaluating health-promotion activities for people with intellectual disabilities at the policy level and in the community.

Cited by 25 publications

References 56 publications

Chronic health and lifestyle problems for people diagnosed with autism in a student-led clinic

Chronic health and lifestyle problems for people diagnosed with autism in a student-led clinic

Training needs analysis of nurses caring for individuals an intellectual disability and or autism spectrum disorder in a forensic service

Don’t Mention the Diet! A health promotion initiative to support healthy diet and lifestyle decision‐making by people with intellectual disability

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