Health outcome improvements in patients with systemic lupus erythematosus using two telephone counseling interventions

Austin, Janet; Maisiak, Richard; Macrina, David M.; Heck, Louis W.

doi:10.1002/1529-0131(199610)9:5<391::aid-anr1790090508>3.0.co;2-v

Cited by 62 publications

(77 citation statements)

References 33 publications

(20 reference statements)

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“…In this trial, we demonstrated that self-efficacy could be enhanced by our intervention and that it was a key predictor of mental health status and fatigue outcomes. These results are consistent with results of another randomized, controlled trial of counseling for SLE patients in a group setting, which demonstrated significant improvements in psychological status but not in physical functioning and social support (23). That trial did not involve a partner but was similar to our trial, in that the counselor targeted 6 patient behaviors: self-care activities in managing fatigue, patient's communication skills, removing barriers to medical care, medication self-management, symptom monitoring, and stress control methods.…”

Section: Discussionsupporting

confidence: 89%

“…A clinical trial of person-centered telephone counseling demonstrated significant improvements in psychological status but not in physical functioning in 15 patients with SLE (22). In another trial conducted by the same group of investigators, 58 patients with SLE were randomized to receive either telephone counseling or symptom monitoring, and significant improvement in physical function and social support was demonstrated in the counseling group (23). In contrast, a randomized clinical trial of brief supportive-expressive group psychotherapy in 133 patients with SLE from 9 clinics across Canada showed no significant benefits in psychological distress, medical symptoms, health care costs, and quality of life (24).…”

mentioning

confidence: 99%

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A randomized clinical trial of a psychoeducational intervention to improve outcomes in systemic lupus erythematosus

Karlson¹,

Liang²,

Eaton³

et al. 2004

Arthritis & Rheumatism

160

157

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Objective. In a cross-sectional study, we previously identified 2 potentially modifiable risk factors for adverse outcomes in systemic lupus erythematosus (SLE): self-efficacy and social support. The goal of this study was to evaluate in a randomized controlled trial a theory-based intervention to improve patient selfefficacy and partner support to manage SLE.Methods. Patients with SLE ages 18 years and older who met the American College of Rheumatology criteria and were able to identify a partner (spouse or family member) were recruited from 2 academic medical centers and randomized into an experimental group or a control group. Patients in the experimental group and their partners received an intervention designed to enhance self-efficacy, couples communication about lupus, social support, and problem solving, in the form of a 1-hour session with a nurse educator followed by monthly telephone counseling for 6 months. Patients in the control group and their partners received an attention placebo, including a 45-minute video presentation about lupus, and monthly telephone calls. Measures of physical and mental health status, disease activity, and psychosocial factors were collected at baseline, 6 months, and 12 months. The effect of the intervention on physical and mental health and disease activity at 6 and at 12 months was modeled with linear regression and adjusted for baseline health status, disease activity, sociodemographic factors, treatment change, and psychosocial factors.Results. One hundred twenty-two patients (plus their partners) were enrolled and randomized as follows: 64 to the experimental intervention and 58 to the attention control group. The participants were predominantly white, approximately half were college educated, and the groups were balanced for sociodemographic factors. At 6 months, significantly higher scores for couples communication (P ‫؍‬ 0.01) and problem-focused coping (P ‫؍‬ 0.03) were seen in the experimental group compared with the control group. At 12 months (6 months after the intervention ended), social support was higher (4.4 versus 4.1; P ‫؍‬ 0.03), self-efficacy was higher (7.2 versus 6.2; P ‫؍‬ 0.02), couples communication was higher (3.5 versus 3.1; P ‫؍‬ 0.03), and fatigue was lower (5.1 versus 6.3; P ‫؍‬ 0.02) in the experimental group compared with the control group. Global mental health status at 12 months, as measured by the Short Form 36 survey, was 69 points in the experimental group compared with 58 points in the control group (P ‫؍‬ 0.04). In multivariate models, adjusting for baseline covariates, scores for couple communication (P ‫؍‬ 0.01) were significantly higher at 6 months, and scores for self-efficacy (P ‫؍‬ 0.004) and global mental health status (P ‫؍‬ 0.03) were significantly higher at 12 months in the experimental group compared with the control group, and the mean score for global physical function was higher by 7 points, which was a clinically meaningful

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Section: Discussionsupporting

confidence: 89%

mentioning

confidence: 99%

A randomized clinical trial of a psychoeducational intervention to improve outcomes in systemic lupus erythematosus

Karlson¹,

Liang²,

Eaton³

et al. 2004

Arthritis & Rheumatism

160

157

View full text Add to dashboard Cite

show abstract

“…Six of the eight RCTs compared the telephone intervention with routine care, 26,28,32 -35 one trial employed symptom monitoring as the control condition 25 and the final trial compared telephone CBT to telephone supportive emotion-focused therapy. 27 Two trials 26,35 had three intervention arms.…”

Section: Resultsmentioning

confidence: 99%

Telephone-delivered cognitive behavioural therapy: a systematic review and meta-analysis

Müller

Yardley

2011

J Telemed Telecare

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Telephone-delivered cognitive behavioural therapy (CBT) is an increasingly popular mode of delivering care. We conducted a systematic review which focused on physical health outcomes. Literature searches were conducted to identify randomized controlled trials (RCTs) comparing telephone-delivered CBT for improving physical health with any other therapy or routine care in patients with chronic illness. Eight RCTs (1093 patients) met the eligibility criteria and were included in the review. Six of the eight RCTs compared the telephone intervention with routine care, one trial employed symptom monitoring as the control condition and the final trial compared telephone CBT to telephone supportive emotion-focused therapy. Meta-analysis found that telephone-delivered CBT significantly improved physical health in people with chronic illness (d = 0.225, 95% CI = 0.105, 0.344). Moderator analyses found that less therapist contact was associated with better outcomes, and telephone-delivered CBT was more effective for chronic illnesses that are not immediately life-threatening. The results of the meta-analysis support the use of telephone-delivered CBT as a tool for improving health in people with chronic illness. There is a need for future trials to evaluate cost-effectiveness.

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“…Arthritis self-management education delivered by small-group, home study, computer, or internet modalities have demonstrated significant improvements in health distress, self-reported global health, and activity limitation, with trends toward improvement in self-efficacy and mental stress management [20,[36][37][38][39][40][41][42][43][44][45]. However, African Americans and women are still disproportionately impacted by lupus [46][47][48][49][50][51][52].…”

Section: Discussionmentioning

confidence: 99%

If You Dont Put it in Your Mind, then it Dont Matter: A Phenomenological Study of Coping Self-Efficacy in African American Women Diagnosed with Lupus

M¹,

Wooten²,

D³

et al. 2018

Divers Equal Health Care

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Key Points• Systemic lupus erythematosus is a chronic autoimmune inflammatory disease treated through complex lifestyle and medication regimens, however it has no cure.• Lupus disproportionately impacts women and African Americans in prevalence, morbidity, and mortality.• Evidence based treatment and behavioral programs have been used to help lupus patients, but African American women have been underrepresented in such examinations and are less responsive to those programs when included.• Herein interviews were conducted to explore the lived experiences and perceptions of coping self-efficacy among African American women diagnosed with lupus.• Six major themes emerged including self-awareness, religion and spirituality, a sense of connectedness, stigma, empowerment, and peer perceptions.Findings can be applied to care and practice in order to better tailor such endeavors to the specific needs of this demographic group in order to address the ongoing health disparity. ABSTRACTLupus is a chronic debilitating rheumatic autoimmune disease that disproportionately affects African American women. A phenomenological approach was used to conduct confidential semi-structured qualitative interviews to explore "lived experiences" of coping and self-efficacy among 10 African American women diagnosed with lupus. Six major themes identified included self-awareness, religion and spirituality, a sense of connectedness, stigma, empowerment, and peer perceptions. These themes highlighted human agency and coping self-efficacy exhibited by African American women that facilitate chronic disease management and self-care. Perceptions of coping self-efficacy varied and the women's "use of self" was instrumental to their individualized way of coping with their lupus diagnosis. Study findings increase cultural awareness, understanding, and potentially empathy from providers, employers/colleagues, and family members about African American women's experiences of living with lupus.

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Health outcome improvements in patients with systemic lupus erythematosus using two telephone counseling interventions

Cited by 62 publications

References 33 publications

A randomized clinical trial of a psychoeducational intervention to improve outcomes in systemic lupus erythematosus

A randomized clinical trial of a psychoeducational intervention to improve outcomes in systemic lupus erythematosus

Telephone-delivered cognitive behavioural therapy: a systematic review and meta-analysis

If You Dont Put it in Your Mind, then it Dont Matter: A Phenomenological Study of Coping Self-Efficacy in African American Women Diagnosed with Lupus

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