Health of ageing people with intellectual disability and the role of the nurse in Ireland

Doody, Catriona M; Markey, Kathleen; Doody, Owen

doi:10.1177/1744629512462181

Cited by 9 publications

(10 citation statements)

References 74 publications

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“…They were yet to develop the comprehensive policies and work procedures required, and the roll‐out of the National Disability Insurance Scheme (NDIS) has added more complexity. A strong risk was apparent that people with intellectual disabilities could be prematurely admitted to residential aged‐care if appropriate supports were not available . Unnecessary placements have resulted in additional pressure being placed on already over‐subscribed aged‐care systems; a situation that was exacerbated as people with intellectual disabilities often lived longer within the facility than the mainstream population .…”

Section: Introductionmentioning

confidence: 99%

The main signs of ageing in people with intellectual disability

Wark

Hussain

Edwards

2016

Australian J Rural Health

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Section: Introductionmentioning

confidence: 99%

The main signs of ageing in people with intellectual disability

Wark

Hussain

Edwards

2016

Australian J Rural Health

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“…Individuals may be prematurely admitted on the basis of the fact that they require daily nursing support (Doody et al . ). While they may remain otherwise independent, this one factor may result in admission as rural areas in particular often face considerable shortage of trained staff and residential aged‐care facilities may be the only service that provides regular nursing interventions (Fisher ).…”

Section: Discussionmentioning

confidence: 97%

“…This issue is particularly problematic in rural areas, where placement into a mainstream aged-care facility may be the only option available when a person with a disability starts to age (Webber et al 2006). Individuals may be prematurely admitted on the basis of the fact that they require daily nursing support (Doody et al 2012). While they may remain otherwise independent, this one factor may result in admission as rural areas in particular often face considerable shortage of trained staff and residential aged-care facilities may be the only service that provides regular nursing interventions (Fisher 2005).…”

Section: Training Needsmentioning

confidence: 99%

Impediments to community-based care for people ageing with intellectual disability in rural New South Wales

Wark

Hussain

Edwards

2014

Health Soc Care Community

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The emerging phenomenon of ageing with an intellectual disability has become subject to an increasing research focus in recent years. However, there remains little knowledge regarding the specific impediments that community workers face in supporting this cohort. The aims of the current study were to identify the major factors that, direct care staff believe, have most impact upon individuals ageing with an intellectual disability in the community. A three-round Delphi project was conducted across rural areas of New South Wales in Australia with 31 disability support workers to gain their perspectives on the main impediments facing a person ageing with intellectual disability. The 2010 study identified that the issue of ageing with an intellectual disability was presenting significant problems for community-based service delivery to this group of people. The panel identified 25 different impediments to the provision of support. A thematic analysis of the items indicated three main themes of 'funding', 'training' and 'access to services'. By identifying these impediments to supporting people ageing with an intellectual disability in the community, both services and government funding bodies have the ability to plan to overcome both current and future problem areas. This identification of impediments may facilitate individuals to receive more appropriate assistance, which in turn may lead to an improved quality of life and maintenance of a community-based placement rather than premature admission to the congregate-care system. This study is particularly timely, given that Australia is in the midst of implementing a National Disability Insurance Scheme, and is an opportunity for all levels of government to agree on the mechanisms to appropriately assist individuals with an intellectual disability to continue to be supported in the community as they age.

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“…Education and training for health professionals was primarily observed at a meso level to insert specific expertise on aging or disability into community level services [65]. Care coordination tasks were observed at the micro and nano levels [32,35]; stakeholders involved in these bridging tasks were often described in general terms (e.g., state and area agencies on aging/disability, planning committee, consultant with expertise in aging and disability). One specific group involved in bridging at the meso level were Aging and Disability Resource Centres established within the United States of America to assist individuals with disability and older adults to access services and supports [8].…”

Section: Bridging Tasks Organized Temporally and By Level Of Carementioning

confidence: 99%

“…At the micro level, certain professions were described as being suited to enact bridging, including social workers [54] and nurses [36]. Aging in place [26], improving access to or the quality of care [29,50], improving inclusion or participation of individuals with disability [25,27,30], and service coordination [35] were outcomes mentioned, or suggested implicitly when describing the bridging tasks. Importantly some authors noted that many of the bridging tasks occurring in health or social service delivery were time limited, small scale projects led by individuals or teams (thus occurring at micro or meso levels) [46,47], and this was attributed to the lack of an overarching policy framework regarding aging with disability.…”

Section: Bridging Tasks Organized Temporally and By Level Of Carementioning

confidence: 99%

A scoping review to characterize bridging tasks in the literature on aging with disability

Nalder

Saumur

Batliwalla

et al. 2020

BMC Health Serv Res

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Background: Bridging involves improving knowledge sharing and collaboration across different fields, such as aging and disability. The objectives of this review were to describe: 1) the contexts where bridging has occurred in relation to delivery of health services for adults aging with neurological or developmental conditions; and 2) characterize and map bridging tasks, stakeholders involved, and outcomes discussed in peer-reviewed literature.Methods: Seven databases were searched around the core concepts of "bridging," "aging," and "disability." In total, 10, 819 articles were screened with 49 meeting the inclusion criteria of discussing aging with developmental or neurological disability, explicitly describing bridging tasks, published in English and a peer-reviewed publication. Bibliographic information, sample characteristics, and data on bridging was extracted and included in the qualitative synthesis. Results: Intellectual and/or Developmental disabilities were the most studied population (76% of articles), and most articles were published in the United States (57%). Twenty-two bridging tasks were identified, and categorized into three domains: health and social service delivery (e.g., care coordination tasks), policy (e.g., policy change), and research and training (e.g., mentoring). Stakeholders involved ranged from health care professionals to policy makers and organizations in aging and disability services. Conclusions:The resulting matrix will assist in the specification of bridging in research and practice. Future work should evaluate specific models of bridging and their effects on health service delivery. BackgroundBridging as a field of scientific knowledge considers how silos can be broken down, and how individuals from different fields can work together sharing their knowledge and skills to address complex issues. 'Aging with disability' refers to the study of the processes and experiences of aging, in the context of long-term disability, and this notion has driven much of the interest in the construct of bridging in the health care setting [1,2]. In this article the concept of bridging is applied to the aging and disability fields [3].Bridging emerged in the context of increasingly complex health systems that need to adapt to rising demands and changing consumer needs. Aging populations place an added demand on health services, as rates of disability and health care utilization are high in older populations [2,4,5]. Simultaneously life expectancies have increased, meaning individuals living with disability acquired earlier in life may require services and supports to maintain their health and

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Health of ageing people with intellectual disability and the role of the nurse in Ireland

Cited by 9 publications

References 74 publications

The main signs of ageing in people with intellectual disability

The main signs of ageing in people with intellectual disability

Impediments to community-based care for people ageing with intellectual disability in rural New South Wales

A scoping review to characterize bridging tasks in the literature on aging with disability

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