Health locus of control, self-help and treatment adherence in relation to ankylosing spondylitis patients

Barlow, Julie H.; Macey, S. J.; Struthers, G R

doi:10.1016/0738-3991(93)90129-k

Cited by 41 publications

(22 citation statements)

References 15 publications

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“…Despite this, reduced productivity at work (presenteeism) among AS patients who were employed was frequent but less pronounced in members: both groups stated that in general they had experienced disadvantages in their job career due to AS, findings which were similar in other studies [7,33,35,36].…”

Section: Discussionsupporting

confidence: 59%

“…According to the Assessment of SpondyloArthritis international Society (ASAS) and European League Against Rheumatism (EULAR) recommendations [4], membership in a patient self-help organisation "may be useful" in the management of AS; however, the evidence for this recommendation is weak [6]. Older studies in AS comparing members and non-members of a patient self-help organisation were rather small and mainly focussed on psychosocial benefits associated with membership [7][8][9]. The German AS patient self-help organisation "Deutsche Vereinigung Morbus Bechterew" (DVMB) was founded in 1980 and has currently more than 15,000 members.…”

Section: Introductionmentioning

confidence: 97%

See 1 more Smart Citation

Ankylosing spondylitis self-help organisations – do members differ from non-members?

Song

Brenneis

Hammel³

et al. 2016

Joint Bone Spine

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Section: Discussionsupporting

confidence: 59%

Section: Introductionmentioning

confidence: 97%

Ankylosing spondylitis self-help organisations – do members differ from non-members?

Song

Brenneis

Hammel³

et al. 2016

Joint Bone Spine

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“…Guided support groups were intended to control for the absence of specific cognitive-behavioural interventions and the presence of therapist’s attention and treatment expectations. We assumed that support groups, as in other chronic diseases, might contribute to a feeling of mutual understanding, acceptance and support, and thereby would have a healing effect [5, 6]. An unexpected finding was that support groups were no more effective than the natural course.…”

Section: Introductionmentioning

confidence: 69%

Social Support and the Persistence of Complaints in Chronic Fatigue Syndrome

Prins¹,

Bos²,

Huibers

et al. 2004

Psychother Psychosom

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Background: Several studies suggested that the surroundings of chronic fatigue syndrome (CFS) patients are of importance in the persistence of complaints. Contrary to what was expected, participation in support groups has not led to clinical improvement. The purpose of the present study was to describe social support in CFS patients as compared with other fatigued and non-fatigued groups. Further, changes in social support and the influence of social support on the course of CFS over a period of more than 1 year were studied in patients with and without treatment. Methods: Baseline data were assessed in 270 CFS patients, 150 disease-free breast cancer patients, 151 fatigued employees on sick-leave and 108 healthy subjects using the Social Support List and Significant Others Scale. CFS patients were followed in cognitive behaviour therapy (CBT), guided support groups and natural course at 8 and 14 months. Results: CFS patients and fatigued employees reported more negative interactions and insufficiency of supporting interactions than cancer patients and healthy controls. No differences in frequency of supporting interactions were found. Negative interactions decreased significantly after treatment with CBT, but did not change in support groups or natural course. In the natural course, higher fatigue severity at 8 months was predicted by more negative interactions at baseline. Conclusions: In CFS patients and fatigued employees, social support is worse than in disease-free cancer patients and healthy controls. Lack of social support was identified as a new factor in the model of perpetuating factors of fatigue severity and functional impairment in CFS.

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“…After 30 years, just over half of these individuals worked a full day, and a third still held their original roles, and 22% changed to lighter jobs. However, work disability in AS may be masked (16,17). A UK review of 100 patients with AS found that although 84 patients were in full-time employment, 41 reported that their career decisions had been influenced by AS (9 had changed to less satisfactory employment, and 24 had changed jobs completely) (18).…”

Section: Introductionmentioning

confidence: 99%

“…Chronic symptomatology, vulnerability to psychological distress, an uncertain disease course (flares and remissions), and progressive impairment of physical functioning may pose problems in relation to employment (16). The purpose of this exploratory study is to investigate work disability among people with AS in terms of correlates and coping mechanisms.…”

Section: Introductionmentioning

confidence: 99%