Health Literacy, Knowledge, and Patient Satisfaction Before Kidney Transplantation

Jones, Jeffrey S.; Rosaasen, Nicola; Taylor, Jeff; Mainra, Rahul; Shoker, Ahmed; Blackburn, David; Wilson, Jay; Mansell, Holly

doi:10.1016/j.transproceed.2016.07.018

Cited by 27 publications

(27 citation statements)

References 37 publications

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“…The pretransplant cohort consisted of patients on the kidney transplant waitlist who received the K-TUT as part of a study aimed to characterize health literacy, beliefs of medicine, knowledge of kidney transplantation, and satisfaction with current methods of education. 22 Briefly, all patients on the kidney transplant waitlist between April 1, 2015, and September 30, 2015, were eligible to participate and a research assistant administered a 4-part questionnaire consisting of the K-TUT, a questionnaire to determine satisfaction with current education, the Beliefs about Medicines Questionnaire (BMQ), 23 the Short Test of Functional Health Literacy, 24 and the numeracy section of the original Test of Functional Health Literacy. 25 The research assistant remained present throughout the entire assessment, but did not assist the participant with completing the questionnaire.…”

Section: Methodsmentioning

confidence: 99%

“…In the pretransplant cohort, relationships between the K-TUT and health literacy, numeracy literacy, and BMQ scores were also examined using Pearson correlation. 22 Because a high proportion of participants displayed adequate health literacy and numeracy, these variables were treated as continuous, rather than using categorical variables of “adequate,” “marginal,” and “inadequate literacy.” Cronbach α was calculated to determine the internal consistency. Acceptable α values range between 0.70 and 0.95, with higher scores indicating increased interrelatedness.…”

Section: Methodsmentioning

confidence: 99%

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Development and Validation of the Kidney Transplant Understanding Tool (K-TUT)

Rosaasen

Taylor

Blackburn

et al. 2017

Transplantation Direct

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BackgroundSeveral educational interventions have been designed to improve patient knowledge before and after kidney transplantation. However, evaluation of such interventions has been difficult because validated instruments to measure knowledge-based outcomes in this population have not been developed.ObjectiveTo create a tool to measure patient knowledge of kidney transplantation and to evaluate its validity.MethodsThe Kidney Transplant Understanding Tool (K-TUT) was created using a stepwise iterative process. Experts in the field and transplant recipients were consulted to establish content validity. The K-TUT consists of 9 true/false and 13 multiple-choice questions, and scores are based on the number correct answers [YES/NO format] of 69 items. The questionnaire was piloted in a study that also measured health literacy (via the Short Test of Functional Health Literacy) in transplant candidates, whereas the main survey was mailed to transplant recipients. Test-retest was performed, and completed surveys were analyzed for internal consistency, construct validity, floor and ceiling effects, and reproducibility.ResultsSurveys were offered to 106 pretransplant patients and 235 in the posttransplant period, and response rates were 38.7% (41/106) and 63.4% (149/235), respectively. The mean corrected scores were 53.1 ± 8.5 (77%) and 56.2 ± 6.3 (81%), respectively. Test-retest was performed over 20% of both cohorts and percent agreement ranged between 70% and 100% in the pretransplant group and 66% and 100% in the posttransplant group. Cronbach α ranged from 0.794 to 0.875 in all cohorts indicating favorable internal consistency. Increased health literacy in the pretransplant group was significantly associated with increased knowledge (r = 0.52; P < 0.001), suggestive of construct validity, and the absence of floor and ceiling effects was positive. The majority of transplant recipients (98/148, 67%) believed the questionnaire adequately assessed transplant knowledge, about a quarter (36/148, 24.3%) were “unsure,” and 85% (126/148) agreed that no questions should be removed.ConclusionsAlthough more study is warranted to further assess psychometric properties, the K-TUT appears to be a promising tool to measure transplant knowledge.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Development and Validation of the Kidney Transplant Understanding Tool (K-TUT)

Rosaasen

Taylor

Blackburn

et al. 2017

Transplantation Direct

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“…Our findings are similar to others, where waiting for a kidney is described as becoming a normalized part of everyday life and how hope is generated when other patients in the dialysis community receive a transplant (Burns et al, ). Several studies exploring the period pre‐transplantation focus on education whose aim is to help the patients to be prepared for their new situation (Jones et al, ; Rosaasen et al, ). Our study showed that wait‐listed patients could not relate to ongoing education regarding the future transplant.…”

Section: Discussionmentioning

confidence: 99%

“…Furthermore, hope and expectations of a future free from dialysis treatment were present (Burns, Fernandez, & Stephens, ; Chong et al, ; Croft & Maddison, ; Spiers & Smith, ; Tong et al, ). Another perspective was how waiting time was used to prepare patients for the upcoming transplantation (Jones et al, ; Rodrigue, Mandelbrot, & Pavlakis, ; Sieverdes et al, ).…”

Section: Introductionmentioning

confidence: 99%

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Balancing everyday life—Patients’ experiences before, during and four months after kidney transplantation

et al. 2018

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Aim To explore patients’ experiences before, during and four months after kidney transplantation as a coherent process. Design A qualitative explorative study with a phenomenological‐hermeneutic approach. Methods Participant observations and semi‐structured interviews were used complementary. In total, 18 kidney recipients were included. Data were analysed in accordance with Ricoeur's theory of interpretation, on three levels: naïve reading, structural analysis and critical interpretation and discussion. Results Three themes emerged: waiting time and hope during everyday life, transformation during the kidney transplantation process and towards a new everyday life with positive prospects. Going through the kidney transplantation process was challenging for the patients. Everyday life was affected through the process, and the patients had to balance the associated challenges like hope, positive prospects and health‐related issues.

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“Where is the spleen? Where are the lungs?”—An investigation of the level of anatomical knowledge of the Hong Kong public

Cheung

Chen

et al. 2023

Anatomical Sciences Ed

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This article investigates the level of anatomical knowledge of the Hong Kong public and uses the data to help suggest public engagement activities and health campaigns to raise health literacy in the general population. In the annual public engagement event organized by the University of Hong Kong, 250 attendees took a survey assessing basic anatomical knowledge by putting organs/structures in their correct positions. Description analysis, correlation analysis, independent sample t‐test, and one‐way ANOVA analysis were conducted by SPSS 27.0. Overall, a mean score of 6.5 out of 20 was achieved. Differences between various demographic parameters were analyzed, and the results showed that better performance on the survey was associated with younger age, higher educational levels, and having healthcare experience. There was also a statistically significant difference in correctly positioning the thyroid between males and females. Interestingly, some misconceptions were thought to arise from the bespoke use of the Chinese language in the survey. The data reflected room for improvement in the level of anatomical knowledge among the public, notably in the older age groups. This was attributed partially to a lack of public outreach initiatives and established anatomy‐focused programs, which has restricted public exposure to anatomical knowledge and hindered the development of anatomical sciences in Hong Kong. In conclusion, the knowledge of the public on the human body needs to be improved and possible solutions to improve public awareness of health were raised.

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Health Literacy, Knowledge, and Patient Satisfaction Before Kidney Transplantation

Cited by 27 publications

References 37 publications

Development and Validation of the Kidney Transplant Understanding Tool (K-TUT)

Development and Validation of the Kidney Transplant Understanding Tool (K-TUT)

Balancing everyday life—Patients’ experiences before, during and four months after kidney transplantation

“Where is the spleen? Where are the lungs?”—An investigation of the level of anatomical knowledge of the Hong Kong public

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