Health literacy and health-related quality of life in patients with anorectal malformations: A comparison between a charity hospital in Honduras and a tertiary care center in the United States

Dingemans, Alexander J.M.; Krois, Wilfried; Ríos, Juan Craniotis; Wood, Richard J.; Levitt, Marc A.; Reck-Burneo, Carlos A.

doi:10.1016/j.jpedsurg.2018.02.053

Cited by 5 publications

(8 citation statements)

References 10 publications

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“…Regarding the tools’ validation, most were validated in the country of origin (47 studies; n = 9,483; 39.7%) [ 13 , 14 , 16 , 17 , 19 , 22 , 23 , 26 – 28 , 31 – 34 , 38 , 39 , 41 , 46 , 49 , 50 , 54 , 55 , 58 – 60 , 62 , 65 – 68 , 70 , 74 – 81 , 83 , 84 , 86 , 88 , 91 – 94 ]. The predominant language was Portuguese (57 studies; n = 11,445; 47.9%) [ 14 – 19 , 22 , 23 , 25 – 34 , 41 , 42 , 45 , 49 , 50 , 52 – 55 , 58 – 62 , 64 – 66 , 68 – 71 , 74 – 81 , 83 , 86 – 94 ] and Spanish (22 studies; n = 11,593; 48.5%) [ 12 , 13 , 20 , 21 , 36 – 39 , 44 , 46 – 48 , 51 ,...…”

Section: Resultsmentioning

confidence: 99%

“…The estimated prevalence of low HL by country were: Argentina varied from 30.13 to 60.26% (44.65%; 95%CI: 19.05–73.44) [ 21 , 47 ], Brazil varied from 0 to 100% (50.91%; 95%CI: 45.06–56.74; 95%PI: 15.15–85.76) [ 14 – 19 , 22 , 23 , 25 – 34 , 41 , 42 , 45 , 49 , 50 , 52 – 55 , 58 – 62 , 64 – 66 , 68 – 71 , 74 – 81 , 83 , 86 – 94 ], Chile varied from 20 to 23.53% (19.20%; 95%CI: 16.33–22.44; 95%PI: 10.72–31.98) [ 13 , 38 , 39 , 84 ], Jamaica varied from 27.27 to 48.17% (37.71%; 95%CI: 19.95–59.54) [ 24 , 43 ], Mexico varied from 23.01 to 45.56% (31.79%; 95%CI: 20.99–44.98; 95%PI: 0.04–99.85) [ 20 , 37 , 48 ], Peru varied from 29.04 to 43.00% (36.07%; 95%CI: 31.20-41.25; 95%PI: 21.53–53.71) [ 51 , 63 , 73 , 85 , 95 ], and Puerto Rico varied from 5.18 to 59.65% (23.27%; 95%CI: 4.45–66.40; 95%PI: 0.00-100.00) [ 44 , 67 , 72 ]. Barbados (19.81%; 95%CI: 12.70-28.68) [ 40 ], Bolivia (57.85%; 95%CI: 53.93–61.70) [ 12 ]), Costa Rica (100%; 95%CI: 93.02–100) [ 57 ], Dominican Republic (69.16%; 95%CI: 59.50-77.73) [ 82 ], Guatemala (16.67%; 95%CI: 11.89–22.41) [ 46 ], Guyana (45.18%; 95%CI: 38.60-51.88) [ 56 ], Honduras (86.36%; 95%CI: 65.09–97.09) [ 36 ], and Suriname (34.34%; 95%CI: 25.09–44.56) [ 35 ] presented only one study each.…”

Section: Resultsmentioning

confidence: 99%

“…The overall prevalence of low HL varied considerably from 5.18 to 86.36%, with a pooled of 41.73% (95%CI: 31.76–52.43; 95%PI: 9.35–83.26; I 2 = 98%) [ 12 , 18 , 24 , 25 , 36 , 37 , 42 , 45 , 48 , 56 , 60 , 62 , 68 , 72 , 80 , 83 , 90 ] (Fig. 5 ).…”

Section: Resultsmentioning

confidence: 99%

“…5 ). Subgroup analyses indicated that the tool that detected a higher prevalence of low HL was the Brief Health Literacy Screening Tool (71.27%; 95%CI: 33.17–92.54; I 2 = 85%) [ 36 , 42 ] when compared to the other tools ( p < 0.01).…”

Section: Resultsmentioning

confidence: 99%

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The low health literacy in Latin America and the Caribbean: a systematic review and meta-analysis

de Jesus,

Bianchini,

Ziegelmann

et al. 2024

BMC Public Health

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Background Health literacy (HL) impacts people’s health and well-being. In Latin America and the Caribbean (LAC), there are no general estimates of the prevalence of low HL. This study aimed to estimate the prevalence of low HL among citizens of LAC and identify the tools used to measure it. Methods We included observational studies quantifying the prevalence of low HL in people living in LAC. We searched PubMed, CINAHL, EMBASE, ERIC, LILACS, PsycINFO, Redalyc, SciELO, Web of Science, PQDT, and the reference lists of the included studies in June 2023. Two reviewers independently conducted the selection, extraction, and risk of bias assessment using the JBI Critical Appraisal Tools. Meta-analysis of proportions using random effects models was used to summarize the prevalence of low HL estimated. This prevalence was measured in each study using different classification methods: word recognition items, reading and numeracy comprehension items, and self-reported comprehension items. Results Eighty four studies involving 23,914 participants from 15 countries were included. We identified 23 tools to assess HL, and most of the studies were carried out in health services. The pooled prevalence of low HL were 44.02% (95%CI: 36.12–52.24) for reading and numeracy comprehension items, 50.62% (95%CI: 41.82–59.39) for word recognition items, and 41.73% (95%CI: 31.76–52.43) for self-reported comprehension items. Conclusion Despite the variability in the prevalence of low HL and a diversity of tools, the average of low HL is of concern. Almost half of the participants in the included studies have low HL. Most of the studies targeted users of healthcare services. Further research investigating the prevalence of low HL in the general population and actions focused on health education, communication, and information are necessary. Trial registration PROSPERO (CRD42021250286).

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

The low health literacy in Latin America and the Caribbean: a systematic review and meta-analysis

de Jesus,

Bianchini,

Ziegelmann

et al. 2024

BMC Public Health

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“…Interestingly, despite a low health literacy rate in Honduras, the impact of the health-related QoL (HRQoL) between the two populations was not significantly affected. This could be a bias due to the pressure the caregivers could experience trying to give socially desired answers [ 36 ].…”

Section: Long-term Collaboration and Bowel Management Programmentioning

confidence: 99%

Pediatric Bowel Management Options and Organizational Aspects

et al. 2023

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A bowel management program (BMP) to treat fecal incontinence and severe constipation is utilized for patients with anorectal malformations, Hirschsprung disease, spinal anomalies, and functional constipation, decreasing the rate of emergency department visits, and hospital admissions. This review is part of a manuscript series and focuses on updates in the use of antegrade flushes for bowel management, as well as organizational aspects, collaborative approach, telemedicine, the importance of family education, and one-year outcomes of the bowel management program. Implementation of a multidisciplinary program involving physicians, nurses, advanced practice providers, coordinators, psychologists, and social workers leads to rapid center growth and enhances surgical referrals. Education of the families is crucial for postoperative outcomes, prevention, and early detection of complications, especially Hirschsprung-associated enterocolitis. Telemedicine can be proposed to patients with a defined anatomy and is associated with high parent satisfaction and decreased patient stress in comparison to in-person visits. The BMP has proved to be effective in all groups of colorectal patients at a 1- and 2-year follow-up with social continence achieved in 70–72% and 78% of patients, respectively, and an improvement in the patients’ quality of life. A transitional care to adult program is essential to maintain the same quality of care, and continuity of care and to achieve desired long-term outcomes as the patient reaches adult age.

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