Health insurance and use of recommended routine care in adults with cystic fibrosis

Li, Susan S.; Hayes, Don; Tobias, Joseph D.; Morgan, Wayne J.; Tumin, Dmitry

doi:10.1111/crj.12767

Cited by 13 publications

(1 citation statement)

References 31 publications

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“…Commercial insurance gaps have lessened under the Affordable Care Act, since young adults can stay on their parents’ health insurance plan until age 26, and cannot be denied insurance due to a preexisting condition. Although private insurance provides access to CF care, it does not necessarily guarantee better health, and lack of any insurance is associated with poor utilization and worse health outcomes [ 32 ]. Similar to other chronic health conditions, lower socioeconomic status is associated with poorer health outcomes in CF, as is race and ethnic minority status, even after adjusting for socioeconomic status [ 33 – 36 ].…”

Section: Epidemiology and Treatment Of Cystic Fibrosismentioning

confidence: 99%

Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: Current practices and research priorities

Lanzkron

Sawicki

Hassell³

et al. 2018

J. Clin. Trans. Sci.

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IntroductionA growing population of adults living with severe, chronic childhood-onset health conditions has created a need for specialized health care delivered by providers who have expertise both in adult medicine and in those conditions. Optimal care of these patients requires systematic approaches to healthcare transition (HCT). Guidelines for HCT exist, but gaps in care occur, and there are limited data on outcomes of HCT processes.MethodsThe Single Disease Workgroup of the Lifespan Domain Task Force of the National Center for Advancing Translational Sciences Clinical and Translational Science Award programs convened a group to review the current state of HCT and to identify gaps in research and practice. Using cystic fibrosis and sickle cell disease as models, key themes were developed. A literature search identified general and disease-specific articles. We summarized key findings.ResultsWe identified literature characterizing patient, parent and healthcare provider perspectives, recommendations for transition care, and barriers to effective transition.ConclusionsWith increased survival of patients with severe childhood onset diseases, ongoing study of effective transition practices is essential as survival increases for severe childhood onset diseases. We propose pragmatic methods to enhance transition research to improve health and key outcomes.

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Section: Epidemiology and Treatment Of Cystic Fibrosismentioning

confidence: 99%