Health information sources for different types of information used by Chinese patients with cancer and their family caregivers

Xie, Bin; Su, Zhaohui; Liu, Yihao; Wang, Mo; Zhang, Ming

doi:10.1111/hex.12498

Cited by 21 publications

(21 citation statements)

References 36 publications

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“…While information needs decrease over time, some carers still experience unmet information needs throughout treatment and at the end of treatment . Carers have used a variety of sources to address their unmet needs, most commonly relying on healthcare professionals, family, friends, and the internet . However, current methods of delivering information are often inadequate.…”

Section: Introductionmentioning

confidence: 99%

“…9 Carers have used a variety of sources to address their unmet needs, most commonly relying on healthcare professionals, family, friends, and the internet. 10 However, current methods of delivering information are often inadequate. Oberoi et al 8 for example found that out of 196 carers, only 33% were certain that they received information on managing patients' symptoms and only 18% were asked by nursing staff if they required more support.…”

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confidence: 99%

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Caring for the person with cancer: Information and support needs and the role of technology

et al. 2018

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ObjectiveInformal carers experience a variety of information and support needs when providing care to someone with cancer. It is unclear when carers seek information and what resources they access to support themselves throughout the cancer trajectory.MethodsA sample of 45 carers and 15 oncology nurses were recruited to participate in either focus groups or phone interviews.ResultsCarers in the study were more likely to be women (60%), caring for a spouse or partner (64.4%), living with the patient (86.7%), and hold a university degree (46.7%). The majority of oncology nurses were females (66.6%). Findings showed that carers had limited access to adequate information as needs arose. Supports used to address information needs included information booklets, the Internet, and communication with healthcare professionals or with other carers. Barriers in communication between nurses and carers impacted on the adequacy of information received. Participants reported that technology, such as smartphone applications, might be appropriate for improving information and support needs. ConclusionsCaring for someone with cancer is multifaceted. Carers need access to timely information to help them effectively manage patients' needs. Future studies should assess the role of contemporary approaches, such as digital technology, as a solution to the delivery of information and support for carers of people with cancer.

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Section: Introductionmentioning

confidence: 99%

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confidence: 99%

Caring for the person with cancer: Information and support needs and the role of technology

et al. 2018

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“…This study contributes to the literature by investigating the access/use patterns among 25 health information sources including health professionals, lay individuals, mass media, and different types of online sources (eg, social media, medical websites, and blogs or celebrity webpages). We explored a wide range of health information sources because consumers report consulting multiple kinds of sources for information when making health decisions . For example, individuals tend to use health professionals for information related to diagnosis or standard treatment, but they use friends for information related to coping strategies .…”

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confidence: 99%

“…We explored a wide range of health information sources because consumers report consulting multiple kinds of sources for information when making health decisions . For example, individuals tend to use health professionals for information related to diagnosis or standard treatment, but they use friends for information related to coping strategies . Also, many previous studies categorized online health information sources as a single source, rather than differentiating between types of online sources; however, the use patterns vary among medical websites, social media, and celebrity webpages .…”

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confidence: 99%

“…23 For example, individuals tend to use health professionals for information related to diagnosis or standard treatment, but they use friends for information related to coping strategies. 23 Also, many previous studies categorized online health information sources as a single source, rather than differentiating between types of online sources; however, the use patterns vary among medical websites, social media, and celebrity webpages. 24 Thus, it is important to differentiate among the wide variety of online health information sources to investigate people's health information access/use patterns in greater detail.…”

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confidence: 99%

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Differences in Rural and Urban Health Information Access and Use

Chen

Orom

Hay

et al. 2018

The Journal of Rural Health

246

165

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Purpose Rural residents may have lower access to and use of certain health information sources relative to urban residents. We investigated differences in information source access and use between rural and urban US adults and whether having low health literacy might exacerbate rural disparities in access to and use of health information. Methods Six hundred participants (50% rural) completed an online survey about access and use of 25 health information sources. We used logistic regression models to test associations between rurality and access to and use of health information sources and whether rurality interacted with health literacy to predict the access and use. Findings Compared to urban residents, rural residents had lower access to health information from sources including primary care providers, specialist doctors, blogs, and magazines, and less use of search engines. After accounting for sociodemographics, rural residents only had lower access to specialist doctors than urban residents. Rural residents with limited health literacy had lower access to mass media and scientific literature but higher use of corporations/companies than rural residents with adequate health literacy and urban residents regardless of health literacy level. Conclusions Some differences in access to and use of health information sources may be accounted for by sociodemographic differences between rural and urban populations. There may be structural barriers such as shortage of specialist doctors and limited media exposure that make it harder for rural residents to access health information, especially those with limited health literacy.

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Characterizing Dementia Caregivers’ Information Exchange on Social Media: Exploring an Expert-Machine Co-development Process

Wang

Zou

Xie

et al. 2021

Diversity, Divergence, Dialogue

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Health information sources for different types of information used by Chinese patients with cancer and their family caregivers

Cited by 21 publications

References 36 publications

Caring for the person with cancer: Information and support needs and the role of technology

Caring for the person with cancer: Information and support needs and the role of technology

Differences in Rural and Urban Health Information Access and Use

Characterizing Dementia Caregivers’ Information Exchange on Social Media: Exploring an Expert-Machine Co-development Process

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