Health Care Transition: Youth, Family, and Provider Perspectives

Abstract

This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults' and family members' lack of preparation for successful participation in the adult health care system contributes to problems with HCT.

Transition of care: What Is the pediatric hospitalist's role? An exploratory survey of current attitudes

“…Further, transition for those with significant cognitive delay was more difficult, because of the lack of adult-oriented providers who are willing to care for the patient and work collaboratively with the family. 6 This has a significant implication for pediatric hospitalists, because it increases the likelihood that a severely affected 21 to 25-year-old patient will be admitted to the pediatric hospitalist service having not yet made a successful transition to an adult-oriented provider.…”

Transition to adult health care for adolescents and young adults with congenital heart disease: Perspectives of the patient, parent and health care provider

“…Referral to adult practitioners must be facilitated (12). Patients and providers need to be aware of the differences between adult and pediatric care (17,18), and institutional support from all members of the pediatric health care team must exist to support all aspects involved in preparation (16,19). Also requiring consideration is preparation for the patient's transition to adult life, addressing sexuality, family planning and employment.…”

“…However, at the time of transition, care in the pediatric setting must adapt to accommodate the presence of an additional adult (the patient), who needs to be treated independently of the family structure. While the literature advocates for a strong parentprovider relationship (17), a patient-provider relationship is also appropriate. A patient who is able to establish a relationship with his or her physician in the pediatric setting will have more confidence to do the same with a new adult provider.…”

Transition from child to adult care in an outpatient clinic for adolescents with juvenile idiopathic arthritis: An inductive qualitative study

“…Furthermore, challenges in transition may be related to cultural differences between the services of care, for example, family‐centred care versus individual care (Fegran et al., 2014; Reiss et al., 2005; van Staa et al., 2011), and developmental challenges in the physical, cognitive and psychosocial domains related to adolescence (Östlie, Johansson, & Möller, 2009). Besides, the roles between the adolescents and parents change during this period.…”