Health Care Transition in School-Based Health Centers: A Pilot Study

White, Patience H.; Ilango, Samhita M.; Caskin, Ana M; Guardia, Maria G. Aramburu de la; McManus, Margaret A.

doi:10.1177/1059840520975745

Cited by 9 publications

(14 citation statements)

References 10 publications

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“…Pediatric oncology and survivor programs should consider implementing health system supports to prepare survivors for healthcare transition and, if applicable, eventual transfer to adult-centered care. The US Center for Health Care Transition Improvement offers guides to assist clinicians and health systems in assessing their healthcare transition activities and implementing the six core elements of Health Care Transition [ 33 ] [ https://www.gottransition.org/six-core-elements/ ]. These guides offer frameworks for supporting the transition to adult-centered care with or without a change in survivor care provider; thus, they are applicable regardless of whether or not institutions transfer survivors out for long-term follow-up care in adulthood.…”

Section: Discussionmentioning

confidence: 99%

“…Our results suggest COG programs are most in need of developing written transition policies (Core Element 1 — Transition and Care Policy/Guide), adopting transition readiness tools (Core Element 3 — Transition Readiness), and establishing mechanisms to obtain feedback from young adult survivors about their transition process (Core Element 6 — Transfer Completion). Considerations for developing transition policies and eliciting elicit feedback from survivors on their experience with the transition process can be found on the Got Transition® website, along with sample policies and example feedback surveys [ 33 ]. Systematic reviews of health transition assessment tools [ 34 , 35 ] have identified several measures that can be used to evaluate transition readiness, including the Transition Readiness Assessment Questionnaire (TRAQ) [ 36 , 37 ], TRxANSITION Index [ 38 ], Self-management and Transition to Adulthood with Rx = treatment (STARx) [ 39 ], Readiness for Transition Questionnaire (RTQ) [ 40 – 42 ], Transition Q [ 43 ], and the California Healthy and Ready to Work Transition Assessment Tool (HRTW) [ 44 , 45 ].…”

Section: Discussionmentioning

confidence: 99%

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Transition practices for survivors of childhood cancer: a report from the Children’s Oncology Group

et al. 2023

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Purpose Pediatric healthcare systems must support childhood cancer survivors to optimize their transition to adult care. This study aimed to assess the state of healthcare transition services provided by Children’s Oncology Group (COG) institutions. Methods A 190-question online survey was distributed to 209 COG institutions to assess survivor services, including transition practices, barriers, and implementation of services aligned with the six core elements of Health Care Transition 2.0 from the US Center for Health Care Transition Improvement. Results Representatives from 137 COG sites reported on institutional transition practices. Two-thirds (66.4%) of site discharge survivors to another institution for cancer-related follow-up care in adulthood. Transfer to primary care (33.6%) was a commonly reported model of care for young adult-aged survivors. Site transfer at ≤ 18 years (8.0%), ≤ 21 years (13.1%), ≤ 25 years (7.3%), ≥ 26 years (12.4%), or when survivors are "ready" (25.5%). Few institutions reported offering services aligned with the structured transition process from the six core elements (Median = 1, Mean = 1.56, SD = 1.54, range: 0–5). The most prevalent barriers to transitioning survivors to adult care were perceived lack of late-effects knowledge among clinicians (39.6%) and perceived lack of survivor desire to transfer care (31.9%). Conclusions Most COG institutions transfer adult-aged survivors of childhood cancer elsewhere for survivor care, yet few programs report delivering recognized standards for quality healthcare transition programming to support survivors. Implications for Cancer Survivors Development of best practices for survivor transition is needed to help promote increased early detection and treatment of late effects among adult survivors of childhood cancer.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Transition practices for survivors of childhood cancer: a report from the Children’s Oncology Group

et al. 2023

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“…− Leverage existing Internet resources (ie, gottransition.org 33 ), the electronic health record, telehealth, and smartphones to provide materials to patients, parents, and providers − Create regional and national transition networks of pediatric and adult SBS providers developmental and neurocognitive delays may affect an AYA's ability to perform some or all of these tasks. For patients who will be unable to function independently in the adult care setting, the transition process and education should be targeted toward caregivers.…”

Section: Resourcefulmentioning

confidence: 99%

Optimizing transition from pediatric to adult care in short bowel syndrome and intestinal failure

Kinberg

Verma

Kaura

et al. 2023

J Parenter Enteral Nutr

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As the majority of children with short bowel syndrome (SBS) and intestinal failure (IF) are now surviving into adulthood, there is a paradigm shift from short‐term management to long‐term outcomes and a growing need to focus on healthcare transition (HCT). It is imperative that adolescents and young adults with SBS and IF receive disease education, empowerment, and support as they navigate the transition from pediatric to adult care. Furthermore, both pediatric and adult healthcare providers who manage these patients should be aware of the challenges faced by this population, barriers to their HCT, and strategies to overcome them. This article reviews the literature on HCT in children with chronic illnesses, discusses barriers to HCT in SBS/IF, identifies the important constituents of the transition process in SBS/IF, and provides recommendations for the successful and smooth transition of the pediatric patient to the adult healthcare environment. Structured and multicomponent HCT programs should become the standard of care to ensure uninterrupted high‐quality care across the life span for patients with SBS/IF.

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“…Geography may play a role in the strength of these partnerships, and the success of transition programs within the same medical center should be compared to those that refer patients to outside centers. That said, survival measures for pediatric heart transplant recipients did not vary according to distance from the transplanting center (64). Similarly, travel time did not result in impactful delays in receipt of care or outcomes for pediatric patients undergoing particle beam therapy for medulloblastoma (65).…”

Section: Additional Considerationsmentioning

confidence: 99%

Health Care Transition for Adolescents and Young Adults With Pediatric‐Onset Liver Disease and Transplantation

Vittorio

Kosmach‐Park

King

et al. 2022

J. pediatr. gastroenterol. nutr.

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Advances in medical therapies and liver transplantation have resulted in a greater number of pediatric patients reaching young adulthood. However, there is an increased risk for medical complications and morbidity surrounding transfer from pediatric to adult hepatology and transplant services. Health care transition (HCT) is the process of moving from a child/family-centered model of care to an adult or patient-centered model of health care. Successful HCT requires a partnership between pediatric and adult providers across all disciplines resulting in a transition process that does not end at the time of transfer but continues throughout early adulthood. Joint consensus guidelines in collaboration with the American Society of Transplantation are presented to facilitate the adoption of a structured, multidisciplinary approach to transition planning utilizing The Six Core Elements of Health Care TransitionTM for use by both pediatric and adult specialists. This paper provides guidance and seeks support for the implementation of an HCT program which spans across both pediatric and adult hepatology and transplant centers.

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Health Care Transition in School-Based Health Centers: A Pilot Study

Cited by 9 publications

References 10 publications

Transition practices for survivors of childhood cancer: a report from the Children’s Oncology Group

Transition practices for survivors of childhood cancer: a report from the Children’s Oncology Group

Optimizing transition from pediatric to adult care in short bowel syndrome and intestinal failure

Health Care Transition for Adolescents and Young Adults With Pediatric‐Onset Liver Disease and Transplantation

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