Having a father with young onset dementia

Abstract

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Living With Semantic Dementia

“… O’Shaughnessy, Lee, and Lintern (2010) reported a similar theme of connectedness and separateness in their interviews with care partners of people with dementia; such feelings arising out of a loss of shared activities, understanding, and emotional connectedness. The effect of reduced emotional reciprocity was noted for wives caring for their husbands ( Hayes et al, 2009 ) and for young people who had a father with dementia ( Allen, Oyebode, & Allen, 2009 ). Both Karina and Stuart discussed specific routines they had to stimulate conversation and make a connection, and this brought us back again to living with routines.…”

Young-onset dementia and the need for specialist care: a national and international perspective

“…Further, due to the young age of onset, the stage of family life tends to differ for those with YOD compared with later onset dementia such that it has costly social, emotional, psychological and financial consequences for families. There is the impact on employment and hence family finances at a time when many are still paying off mortgage loans; the additional loss of the carer to the employment market as the partner reduces work hours to provide care; the changes dementia provokes in intimate and family relationships, including with children who may not yet be independent; and the realignment it causes in family roles, and the conflict this may engender (Allen & Oyebode, 2009;Rosness, Haugen, & Engedal, 2008;van Vliet, de Vugt, Bakker, Koopmans, & Verhey, 2010;Millenaar et al, 2014).…”

Family relationships and dementia: a synthesis of qualitative research including the person with dementia

“…Furthermore, this synthesis has highlighted that family members across generations are actively engaged in a process of negotiation and renegotiation of roles and relationships. However, research has rarely considered how intergenerational family relationships manage and mediate the impact of dementia, in spite of evidence demonstrating that multiple generations are affected (Allen, Oyebode and Allen 2009; Garwick, Detzner and Boss 1994; Tolkacheva et al 2010). Further research is therefore required to provide an in-depth insight into the impact and management of dementia in a context of intergenerational family relationships.…”