Has the parent experience changed over time? A meta-analysis of qualitative studies of parents of children with disabilities from 1960 to 2012

Parenting work and autism trajectories of care

“…The experiences of raising a child with disabilities has been qualitatively investigated for decades to reveal common themes such as family crisis and stress, socially imposed barriers to services, and action taken by parents to seek information and resources they need for their children (Green et al . ). Situated within social science, feminist, and disability studies, a recent shift in this literature has been towards the resistance against disabling processes and alternative narratives of critique to the linear medical model of disability (Fisher and Goodley , Hanisch , Landsman ).…”

“…Sociologist and disabilities scholar, Tom Shakespeare (), offers an interactive model to disability as both individual and social; both biological and cultural, an approach that helps to explain recent trends in qualitative research of parents’ experiences of raising children with disabilities (Green et al . ). By utilising and expanding upon the analytics of parenting work and trajectories of care, this study further articulates the complex and nuanced interaction between the medical and social models of disability from the perspective of parents who have a child with autism.…”

“…Although these experiences are not unique to parenting a child with disabilities (Green et al . ), I argue that these concepts offer a renewed sociological lens that bring into focus the complex embodiment of both the medical and social models of disability. I reveal how parents in this study embraced and resisted the medical model of disability by seeking and pushing for a clinical autism diagnosis and subsequent treatments, while at the same time challenging the limits the medical model places on their children by providing them opportunities, possible futures, and a sense of personhood.…”

Endings and Beginnings: An Autoethnography of a Father’s Journey through His Son’s Madness, Loss, and a Quest for Meaning

“…When a loved one is diagnosed with a serious mental illness like schizophrenia, bipolar disorder, or depression, it takes a heavy toll on caring family members (Walton-Moss, Gerson, and Rose 2005). The anticipated cultural narrative of an “ordinary life” is being challenged by this unexpected turn (Green, Darling, and Wilbers 2016). We may be forced to become caregivers, advocates, case managers, and life coaches, all while grappling with a lack of understanding of the disease itself.…”

Choosing the harder road: Naming the challenges for families in person-centred planning

“…Jingree and Finlay, 2012). While some authors have pointed to family experiences of social isolation (Green et al, 2013), competing responsibilities in day-to-day life (Dodd et al, 2009) and a lack of cooperation from professionals involved in the family's life (Petriwskyj et al, 2016), there has not been adequate exploration of the physical, emotional and social forms of disablism on families and how these affect PCP processes.…”