Abstract:Background
People with intellectual disability (ID) have multiple and complex health needs, more frequent healthcare episodes, and experience poorer health outcomes. Research conducted two decades ago showed that medical professionals were lacking in the knowledge and skills required to address the complex needs of this patient group. The aim of the current study was to determine whether Australian undergraduate medical schools that offer ID health education content had changed the amount and nature of such te… Show more
“…First, train health professionals in recognizing and addressing the health needs of people with ID. Australian research has shown that health care professionals are underequipped to deal with the health needs of people with ID, owing to a lack of appropriate training . Specific education and training for health professionals at all stages, from medical school to specialist training, on providing care for people with ID, can lead to earlier identification and better management of conditions that are amenable to health care.…”
The study by Hirvikoski et al 1 provides an important and timely reminder of the health challenges faced by people with intellectual disability (ID). Using 2 Swedish population-based data sets to identify people with ID, they showed that individuals with ID have a mortality rate between 2.86-and 13.15-times greater than the rate in the general population (with mortality rates increasing as ID severity increases) and die of causes that are amenable to health care at 7.75 times the mortality rate of the general population. Overall, Hirvikoski et al 1 conclude that, even in modern egalitarian welfare societies, persistent health challenges exist for people with ID. The authors close by proposing that these challenges could be addressed through clear identification of ID in health registries and more awareness by health professionals of the issues faced by individuals with ID.
“…First, train health professionals in recognizing and addressing the health needs of people with ID. Australian research has shown that health care professionals are underequipped to deal with the health needs of people with ID, owing to a lack of appropriate training . Specific education and training for health professionals at all stages, from medical school to specialist training, on providing care for people with ID, can lead to earlier identification and better management of conditions that are amenable to health care.…”
The study by Hirvikoski et al 1 provides an important and timely reminder of the health challenges faced by people with intellectual disability (ID). Using 2 Swedish population-based data sets to identify people with ID, they showed that individuals with ID have a mortality rate between 2.86-and 13.15-times greater than the rate in the general population (with mortality rates increasing as ID severity increases) and die of causes that are amenable to health care at 7.75 times the mortality rate of the general population. Overall, Hirvikoski et al 1 conclude that, even in modern egalitarian welfare societies, persistent health challenges exist for people with ID. The authors close by proposing that these challenges could be addressed through clear identification of ID in health registries and more awareness by health professionals of the issues faced by individuals with ID.
“…Despite the increasing knowledge on the needs for specific skills and knowledge in medical care providers [ 11 , 36 ], authors of recent review articles agree that medical care for people with IDD still lacks adequate support [ 9 – 11 , 37 , 38 ]. This lack can possibly be addressed by systematically increasing the attention/priority for the special medical care needs of people with IDD in medical curricula and education [ 39 , 40 ].…”
Background
Medical care for people with intellectual and developmental disabilities (IDD) is organized differently across the globe and interpretation of the concept of medical care for people with IDD may vary across countries. Existing models of medical care are not tailored to the specific medical care needs of people with IDD. This study aims to provide an improved understanding of which aspects constitute medical care for people with IDD by exploring how international researchers and practitioners describe this care, using concept mapping.
Methods
Twenty-five experts (researchers and practitioners) on medical care for people with IDD from 17 countries submitted statements on medical care in their country in a brainstorming session, using an online concept mapping tool. Next, they sorted all collected statements and rated them on importance.
Results
Participants generated statements that reflect current medical and health care practice, their ideas on good practice, and aspirations for future medical and health care for people with IDD. Based on the sorting of all statements, a concept map was formed, covering 13 aspects that characterize medical and health care for people with IDD across nations. The 13 aspects varied minimally in importance ratings and were grouped into five overarching conceptual themes: (i) active patient role, (ii) provider role, (iii) context of care, (iv) consequences of care for people with IDD, and (v) quality of care.
Conclusions
The themes, clusters and statements identified through this explorative study provide additional content and context for the specific patient group of people with IDD to the dimensions of previous models of medical care.
“…For example, audits of intellectual disability content in medical and nursing curricula across Australian universities found intellectual disability content and teaching methods vary greatly between universities. These audits found only 10% of nursing schools, and 15% of medical schools offered substantial intellectual disability health content, and few universities offered direct clinical contact with people with intellectual disability (Trollor et al, 2020; Trollor, Eagleson, et al, 2016; Trollor, Eagleson, Turner, Salomon, et al, 2018; Trollor, Eagleson, Turner, Tracy, et al, 2018; Trollor, Ruffell, et al, 2016). Research also shows health professionals lack the capacity and confidence to meet the health needs of people with intellectual disability (Weise & Trollor, 2018).…”
Section: Australia's Healthcare System: Responding To the Needs Of Pe...mentioning
People with intellectual disability experience some of the greatest health disparities in Australia. Individuals are expected to access mainstream health services that are ill equipped to meet their needs. The Australian government has made recent commitments to improve the healthcare of people with intellectual disability. This article describes the Australian health system and how it responds to the needs of people with intellectual disability. It draws on examples of advances in policy, inclusion, and service development, achieved through concrete and persistent systemic advocacy, to discuss emerging evidence on the delivery of healthcare to people with intellectual disability in Australia. The article also highlights immediate priorities including increasing the uptake of health assessments, building the capacity of our health workforce, and responding to the needs of people with intellectual disability in COVID‐19 outbreaks or other natural disasters. Intellectual disability healthcare is at a dynamic point in Australia with commitment and funding from government to lead to change. It is critical that momentum in health services development is maintained to enable improved health outcomes for people with intellectual disability.
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