Handbook of Intellectual and Developmental Disabilities

Jacobson, John W.; Mulick, James A.; Rojahn, Johannes

doi:10.1007/0-387-32931-5

Cited by 42 publications

(4 citation statements)

References 1,032 publications

(1,389 reference statements)

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“…The second condition has to do with depth and breadth of coverage. A copious body of literature has been published on interventions at the individual, group, and school levels (e.g., Bray & Kehle, 2011;Esquivel, Lopez, & Nahari, 2007;Gutkin & Reynolds, 2009;Jacobson, Mulick, & Rojahn, 2007;James, Jurich, & Estes, 2001;Jurich & Estes, 2000;Martinez & Klopott, 2005;Peacock, Ervin, Daly, & Merrell, 2010;Shinn & Walker, 2010). This chapter will be able only to skim the surface of the vast extant literature and will direct readers to sources that deal with specific topics in greater depth.…”

Section: Framing the Chaptermentioning

confidence: 99%

School and academic interventions.

Worrell¹

2014

APA Handbook of Multicultural Psychology, Vol. 2: Applications and Training.

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Section: Framing the Chaptermentioning

confidence: 99%

School and academic interventions.

Worrell¹

2014

APA Handbook of Multicultural Psychology, Vol. 2: Applications and Training.

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“…Gentile, Cowan, and Dixon [14] further note that they experience limitations in physical abilities, reduced life expectancy, and seizure disorders. Jacobson, Mulick, and Rojahn [15] contend that individuals with SID have a significantly higher mortality rate. The neurotypical population tends to live 15 years longer than individuals with SID, who have a mortality three times higher than that of the general population [15].…”

Section: Severe Intellectual Disabilitymentioning

confidence: 99%

“…Jacobson, Mulick, and Rojahn [15] contend that individuals with SID have a significantly higher mortality rate. The neurotypical population tends to live 15 years longer than individuals with SID, who have a mortality three times higher than that of the general population [15]. This is attributed to their decreased ability to care for themselves, generally inferior structures, and the higher prevalence of physical defects.…”

Section: Severe Intellectual Disabilitymentioning

confidence: 99%

There is always Sorrow: Risk Factors Faced by Parents of Children Presenting with Severe Intellectual Disabilities

Buthelezi,

Mawila

2024

J. Intellect. Disabl. Diagn. Treat.

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Background: This study investigates the risk factors faced by parents of children with Severe Intellectual Disabilities. Methods: This study used a phenomenological research design within a qualitative research approach. Six parents of children diagnosed with Severe Intellectual Disability at Learners with Special Educational Needs schools were purposively selected to participate in this study. Data were collected through semi-structured interviews and a focus group. Thematic data analysis was used to analyze data. Results: The findings of this study revealed that parents of children with Severe Intellectual Disabilities faced risks that exacerbated negative outcomes. Psychological distress, social exclusion and isolation, financial burdens, and lack of access to formal education were risk factors that hindered their ability to care for and support their children. Conclusions: Based on these findings, the study concluded that parents need access to multidisciplinary teams of healthcare professionals to support them in combatting the risk factors they face.

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“…Parental stress levels are dynamic and depend on various factors, including the developmental state and behavior of the child [4][5][6]. For example, parental stress levels, in general, are higher among parents of children with developmental disabilities than parents of typically developing children [7]. A recent study [8] showed that parents of children with neurodevelopmental disorders reported higher levels of parenting stress compared to children of typical development.…”

Section: Introductionmentioning

confidence: 99%

Parental Stress Scale: Psychometric Properties in Parents of Preschool Children with Developmental Language Disorder

et al. 2023

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Parents of children with developmental disabilities experience more stress compared to those of typically developing children; therefore, measuring parental stress may help clinicians to address it. The Parental Stress Scale (PSS) is a self-rceport measure in the public domain that assesses stress related to child rearing. The present study tested the psychometric properties of the Greek version of the PSS in 204 parents (mean age: 39.4 ± 5.7, 124 mothers and 80 fathers) of kindergarten children diagnosed with Developmental Language Disorder (DLD) after a clinical assessment. Confirmatory factor analysis (CFA) was used to confirm the original four-factor structure. The results showed that the original four-factor structure (parental rewards, parental stressors, lack of control and parental satisfaction) is valid in this specific Greek population. The reliability was high (ω = 0.78) and there were weak correlations (r = −0.372, r = −0.337, r = −0.236), yet of statistical significance (p < 0.001), with similar psychological constructs (quality of life, emotional functioning and worries). Our data confirmed that the PSS is a reliable and valid tool to measure parental stress in parents of children with DLD. Greek clinicians (mental health professionals, speech-language pathologists) can evaluate parental stress and design early interventions targeting specific stress aspects, along with core language interventions for the children.

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Handbook of Intellectual and Developmental Disabilities

Abstract: A continuation Order Plan is available for this series. A continuation order will bring delivery of each new volume immediately upon publication. Volumes are billed only upon actual shipment. For further information please contact the publisher.

Cited by 42 publications

References 1,032 publications

School and academic interventions.

School and academic interventions.

There is always Sorrow: Risk Factors Faced by Parents of Children Presenting with Severe Intellectual Disabilities

Parental Stress Scale: Psychometric Properties in Parents of Preschool Children with Developmental Language Disorder

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