Haematology and Palliative Care: An Account of Shared Care for a Patient Undergoing Bone Marrow Transplantation for Chronic Myeloid Leukaemia

Mander, Tracey

doi:10.1111/j.1440-172x.1997.tb00073.x

Cited by 25 publications

(19 citation statements)

References 12 publications

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“…However, the patient pathway associated with haematological malignancy is recognised as being complex and uncertain, with death sometimes occurring suddenly, unexpectedly, or very rapidly after diagnosis [26,39-41]. Also, certain treatments, such as allogeneic bone marrow transplantations, can be associated with a rapid change in the focus of care from curative to palliative [42]. In contexts such as these the opportunity to discuss place of death may not arise, or may even be inappropriate.…”

Section: Discussionmentioning

confidence: 99%

Destined to die in hospital? Systematic review and meta-analysis of place of death in haematological malignancy

et al. 2010

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BackgroundHaematological malignancies are a common, heterogeneous and complex group of diseases that are often associated with poor outcomes despite intensive treatment. Research surrounding end-of-life issues, and particularly place of death, is therefore of paramount importance, yet place of death has not been formally reviewed in these patients.MethodsA systematic literature review and meta-analysis was undertaken using PubMed to identify all studies published between 1966 and 2010. Studies examining place of death in adult haematology patients, using routinely compiled morbidity and mortality data and providing results specific to this disease were included. 21 studies were identified with descriptive and/or risk-estimate data; 17 were included in a meta-analysis.ResultsCompared to other cancer deaths, haematology patients were more than twice as likely to die in hospital (Odds Ratio 2.25 [95% Confidence Intervals, 2.07-2.44]).ConclusionHome is generally considered the preferred place of death but haematology patients usually die in hospital. This has implications for patients who may not be dying where they wish, and also health commissioners who may be funding costly end-of-life care in inappropriate acute hospital settings. More research is needed about preferred place of care for haematology patients, reasons for hospital deaths, and how these can be avoided if home death is preferred.

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Section: Discussionmentioning

confidence: 99%

Destined to die in hospital? Systematic review and meta-analysis of place of death in haematological malignancy

et al. 2010

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“…Sobre el papel de CP en el paciente hematológico, cabe destacar el gran interés por parte de enfermería por una intervención precoz. Destaca en este sentido el artículo de Marder 26 , que describió un caso clínico para explorar el trabajo de CP en un paciente hematológico. Se trataba de la descripción del caso de un varón de 52 años Entrevistas a 425 enfermeras sobre pacientes con leucemia avanzada diagnosticado de leucemia mieloide crónica, con recidiva tras someterse a transplante de médula ósea.…”

Section: Artículos Experienciales De Profesionales Pacientes Y Familunclassified

Neoplasias hematológicas y cuidados paliativos: revisión sistemática de la literatura

Bermúdez¹,

Porta-Sales²,

González‐Barboteo³

et al. 2012

Medicina Paliativa

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Recibido el 15 de diciembre de 2010; aceptado el 20 de marzo de 2011 Disponible en Internet el 16 de febrero de 2012 PALABRAS CLAVEHematología; Cáncer; Cuidados paliativos; Muerte ResumenObjetivo: Revisión sistemática de la literatura sobre la intervención de Cuidados Paliativos en el paciente con cáncer hematológico avanzado. Material y método: Realizamos una revisión sistemática sobre los artículos en PubMed y Cochrane, desde el 1 de enero de 2001 al 1 de mayo de 2009, publicados en español y en inglés, usando como palabras claves: «Haematology, Palliative Care, Dying, Death, Supporting Team, advanced Malignancies, Prognostic», así como literatura no indexada en páginas web y libros de Hematología y Cuidados Paliativos sobre temas relacionados. Se incluyeron artículos en cuyos abstracts incluyeran la información sobre la intervención de Cuidados Paliativos en el paciente con enfermedad hematológica maligna avanzada. Los artículos que solo trataban de tratamientos del tumor o de su pronóstico fueron excluidos. Resultados: Un total de 16 artículos fueron aceptados para su lectura y revisión. Se pueden diferenciar dos tipos de artículos: un grupo que hace referencia a las características clínicas de los pacientes y, un segundo grupo que hace referencia a las experiencias de profesionales, pacientes y familiares al final de la vida. Conclusiones: De la información obtenida de la revisión se constata una escasa y heterogénea información al respecto, surgiendo la necesidad de ampliar el estudio en pacientes y familiares en fases avanzadas de la enfermedad hematológica maligna. Haematological malignancies and palliative care: a systematic literature review AbstractObjective: To conduct a systematic review of the literature on the palliative care intervention in the far-advanced patient with haematological malignancies. * Autor para correspondencia.

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“…However, it is now known that such services are not presently available to all who are dying in our community. In particular, there is now substantial evidence to indicate that patients with haematological malignancies are not receiving appropriate or timely referrals to the palliative system (Hunt & McCaul, 1998;Maddocks et al, 1994;Mander, 1997;Shapiro et al, 1997).…”

Section: Introductionmentioning

confidence: 99%

“…Recent research on the experience of patients dying from haematological malignancies indicates that they are most likely to die in the curative system exposed to invasive technology, aware that they are dying but with no knowledge of or referral to palliative care, and in a hospital situation that is not designed to be responsive to the support or spiritual needs of the patient or their family (Hunt & McCaul, 1998;Maddocks et al, 1994;Mander, 1997;Shapiro et al, 1997). A high proportion of the carers suffer post-traumatic stress related to the experience and are left, unsupported, to deal with regrets and spiritual pain 2001d;.…”

Section: Introductionmentioning

confidence: 99%

Palliative care and haematological malignancy: a case study

McGrath

Joske²

2002

Aust. Health Review

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Haematology and Palliative Care: An Account of Shared Care for a Patient Undergoing Bone Marrow Transplantation for Chronic Myeloid Leukaemia

Cited by 25 publications

References 12 publications

Destined to die in hospital? Systematic review and meta-analysis of place of death in haematological malignancy

Destined to die in hospital? Systematic review and meta-analysis of place of death in haematological malignancy

Neoplasias hematológicas y cuidados paliativos: revisión sistemática de la literatura

Palliative care and haematological malignancy: a case study

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