Haemato-oncology patients’ perceptions of health-related quality of life after critical illness: A qualitative phenomenological study

O’Gara, Geraldine; Tuddenham, Simon; Pattison, Natalie

doi:10.1016/j.iccn.2017.09.011

Cited by 10 publications

(39 citation statements)

References 49 publications

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“…They also feel shame and guilt due to their previous unhealthy lifestyles and the burden that their illness has brought to their families. After a period of reflection and adaptation, however, they gradually experience an awareness and acceptance of dying when nearing the end of life (Arantzamendi et al, 2020 ; O’Gara et al, 2018 ) and take various measures to cope with the challenge of the disease. Regarding the patients’ needs, greater emphasis must be placed on psychosocial care as part of the biopsychosocial model to adequately address the patients’ concerns.…”

Section: Discussionmentioning

confidence: 99%

The meaning of life according to patients with advanced lung cancer: a qualitative study

Zhang

Yang

et al. 2022

International Journal of Qualitative Studies on Health and Well

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Purpose This qualitative study explores the meaning of life and end-of-life coping strategies among patients in China with advanced lung cancer. Methods We conducted in-depth interviews with 21 hospitalized patients with advanced lung cancer and analysed the data using the 7-step Colaizzi method. Results The analysis revealed themes in patients’ experiences and feelings about living with a terminal illness. These include: 1) The core of the meaning of life is “self-iteration,” which includes self-recognition and cherishing life; 2) The existence form of the meaning of life is “yu-wei,” including self-reliance and altruism; 3) The meaning of life is embodied in three levels: the past, present, and future. The past includes gratitude, guilt and remorse, and avoidance; the present includes using the support system, positive response, independence, and integrity; the future includes accompanying relatives, preparing for death, living a high quality of life, and worrying. Conclusion Meaning of life is a multidimensional and diverse concept among patients with advanced lung cancer. Medical care providers and family members can provide targeted professional guidance and psychological support according to patients’ characteristics to help them discover their meaning of life, improve their quality of life, and achieve a positive end-of-life perspective.

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Section: Discussionmentioning

confidence: 99%

The meaning of life according to patients with advanced lung cancer: a qualitative study

Zhang

Yang

et al. 2022

International Journal of Qualitative Studies on Health and Well

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“…Knowing these pivotal moments provides healthcare providers a sense of who their patient is as a person, rather than being understood solely based on their life-limiting condition (Dönmez and Johnston, 2020). Previous research shows that people who have a life-threatening disease usually change their priorities and perspectives on life (Andersson et al, 2008; O'Gara et al, 2018; Dönmez and Johnston, 2020). When people are facing death, basic things such as spending time with family or friends often become more essential than extrinsic aspirations such as acquiring wealth or vocational pursuits.…”

Section: Discussionmentioning

confidence: 99%

“…Some participants in this study highlighted that they acquired meaning by way of suffering and loneliness. Others approach the end of life and pursuit of meaning as part of attaining positive individual growth (Vuksanovic et al, 2017; O'Gara et al, 2018; Dönmez and Johnston, 2020). Therefore, healthcare providers have an essential role in facilitating and supporting patients’ pursuit of meaning at the end of life (Breitbart et al, 2015; O'Gara et al, 2018).…”

Section: Discussionmentioning

confidence: 99%

A Portuguese trial using dignity therapy for adults who have a life-threatening disease: Qualitative analysis of generativity documents

Julião¹,

Sobral²,

Johnston

et al. 2021

Pall Supp Care

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Objectives Dignity therapy (DT) is a brief, individualized intervention, which provides terminally ill patients with an opportunity to convey memories, essential disclosures, and prepare a final generativity document. DT addresses psychosocial and existential issues, enhancing a sense of meaning and purpose. Several studies have considered the legacy topics most frequently discussed by patients near the end of life. To date, no Portuguese study has done that analysis. Method We conducted a qualitative analysis of 17 generativity documents derived from a randomized controlled trial (RCT). Inductive content analysis was used to identify emerging themes. Results From the 39 RCT participants receiving DT, 17 gave consent for their generativity document to undergo qualitative analysis. Nine patients were female; mean age of 65 years, with a range from 46 to 79 years. Seven themes emerged: “Significant people and things”; “Remarkable moments”; “Acknowledgments”; “Reflection on the course of life”; “Personal values”; “Messages left to others”; and “Requests and last wishes”. Significance of results Generativity document analysis provides useful information for patients nearing death, including their remarkable life moments and memories, core values, concerns, and wishes for their loved ones. Being conscious of these dominant themes may allow health providers to support humanized and personalized care to vulnerable patients and their families, enhancing how professionals perceive and respond to personhood within the clinical setting.

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“…For patients there is the possibility of post‐traumatic growth, a phenomenon seen following serious illness, including post‐critical illness, where reflection on the traumatic and acute illness allows personal growth in relationships, living life to the full, recognizing personal strengths and gaining personal insight (Barskova & Oesterreich, 2009; Connerty & Knott, 2013; O’Gara, Tuddenham, & Pattison, 2018). It aligns to the concept of meaning making following significant life events and allows families and patients to regain control of their lives, which will be crucial to recovery post‐COVID‐19.…”

Section: Improving Outcomesmentioning

confidence: 99%

COVID‐19: Moving beyond the pandemic

McPeake

Pattison

2020

Journal of Advanced Nursing

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Severe acute respiratory syndrome Coronavirus 2 (SARS-CoV-2) is the cause of COVID-19. As of June 1st 2020, there were over 6 million cases of COVID-19 internationally and over 370,000 deaths (John Hopkins University, 2020). There has been significant effort to increase hospital and healthcare capacity to reduce the number of fatalities associated with this global pandemic (Choi & Logsdon, 2020). Public health measures have been universally enforced, including the use of social distancing and self-isolation for those most at risk. Due to this appropriate high demand in the acute phase of this pandemic, the long-term sequalae of COVID-19 has had less attention, and clinically much less focus. services and healthcare response, to help rebuild the lives of individuals affected.

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Haemato-oncology patients’ perceptions of health-related quality of life after critical illness: A qualitative phenomenological study

Cited by 10 publications

References 49 publications

The meaning of life according to patients with advanced lung cancer: a qualitative study

The meaning of life according to patients with advanced lung cancer: a qualitative study

A Portuguese trial using dignity therapy for adults who have a life-threatening disease: Qualitative analysis of generativity documents

COVID‐19: Moving beyond the pandemic

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