Gynaecologic cancer patients' needs and experiences of supportive health services in New Zealand

Abstract

While broadly consistent with previous results, findings highlight the need for a patient-focused, comprehensive, integrated approach to supportive cancer care encompassing diagnosis, treatment and long-term recovery.

“A peculiar time in my life”: making sense of illness and recovery with gynaecological cancer

“…Additionally, survivors integrate past events into accounts of the present (Roberts & Clarke, 2009), meaning that both time point and cumulative experiences are important aspects for consideration. While Hammer, Mogensen and Hall (2009) conducted their research immediately after diagnosis, most other work, both qualitative and quantitative, has taken place some time after diagnosis or treatment, from 12 months post-surgery (Roberts & Clarke, 2009), 5 years post-diagnosis (Reb, 2007; Sekse et al, 2010; Walton, Reeve, Brown, & Farquhar, 2010) and up to 16 years post-diagnosis (Molassiotis, Chan, Yam, Chan, & Lam, 2002). Whilst temporal breadth is important, research is diffused over a range of time points, with much occurring well after original diagnosis.…”

“…Previous research, both quantitative and qualitative, has investigated distress and mental health disorders in gynaecological cancer patients (Reuter, Raugust, Marschner, & Haertner, 2007; Stewart, Wong, Duff, Melancon, & Cheung, 2001), as well as support (Beesley et al, 2008; Ussher, Kirsten, Butow, & Sandoval, 2006; Walton et al, 2010), informational (Booth, Beaver, Kitchener, O’Neill, & Farrell, 2005) and psychosocial needs (Miller, Pittman, & Strong, 2003; Warren, Melrose, Brooker, & Burney, 2016). Additionally, qualitative research has expanded to explore the experience of cancer, particularly in relation to topics such as hope (Hammer et al, 2013; Reb, 2007), meaning (Akyüz, Güvenç, Üstünsöz, & Kaya, 2008; Roberts & Clarke, 2009; Sekse et al, 2010), the impact of childlessness or loss of fertility for younger women (Molassiotis et al, 2002; Roberts & Clarke, 2009) and changing family roles (Akyüz et al, 2008).…”

“…Other topics identified included uncertainty and risk (Roberts & Clarke, 2009; Sekse et al, 2010), body image and sexual function (Ekwall et al, 2003; Maughan, Heyman, & Matthews, 2002; Molassiotis et al, 2002). Much of this research has been at the intersection of individual experience with healthcare providers, and often from a nursing perspective (e.g., Ekwall et al, 2003; Reb, 2007; Roberts & Clarke, 2009; Walton et al, 2010), without drawing on relevant psychological theory.…”

Experiences of Gynecological Cancer through Perspectives of Existential Philosophy: A Qualitative Meta-Synthesis Study

“…Araştırma kapsamına alınan 35 çalışmanın 3'ü ulusal,10,11,39] 32'si uluslar arası [4][5][6][7][8][9][12][13][14][15][16][17][18][29][30][31][32][33][34][35][36][37][38][39][40][41][42][43][44][45][46][47][48] yayındır. Bu araştırmalarda verilerin, 28'unun bireysel derinlemesine görüşme, dördünün odak grup görüşmesi, üçünün doküman analizi (biri web tabanlı olmak üzere) olarak elde edildiği saptanmıştır (Tablo 1).…”

The “Silenced” Voices of Women Cancer Survivors: Bodily Experiences From an Existential Perspective

“…In their qualitative studies, they have documented that a cancer leads to comprehensive changes in the lives of individuals (Laganà, McGarvey, Classen, & Koopman, 2001;Molassiotis, Chan, Yam, Chan, & Lam, 2002;Sekse, Raaheim, Blaaka, & Gjengedal, 2010). Gynecological cancer is associated with particular needs related to unique sexuality, identity, reproductive, and femininity demands (Holland & Reznik, 2005;Tomich & Helgeson, 2002;Walton, Reeve, Brown, & Farquhar, 2010). To date, no needs assessment of the gynecological cancer survivor population has been conducted in Portugal.…”