Guiding Program for Mothers to Improve the Quality of Life of Their Children With Congenital Heart Disease

EL-Gendy, Neama; Hassan, Rabab Mahmoud; Aziz, Magda Abd EL-; Hafez, Mona

doi:10.21608/mnj.2020.149901

Cited by 1 publication

(1 citation statement)

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“…The current study revealed that it was found that more than two thirds of mothers in the study group were housewives. The same result was found by [18] they studied 70 mothers and their children with CHD and found that the majority of the mothers in the study group were housewives. As regards mothers' consanguineous, more than half of studied sample had consanguineous marriages.…”

Section: Discussionsupporting

confidence: 82%

Needs and challenges as perceived by mothers and their hospitalized children having congenital anomalies

Ibrahim¹,

Khalafallha²

2022

Int. J. Res. Paediatric Nurs.

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Mothers of children with congenital anomalies (CA) have many unique challenges during the process of treatment and concern to meet the needs of their hospitalized children. Aim: the aim of the current study was to assess the needs and challenges as perceived by mothers and their hospitalized children having congenital anomalies. Design: a descriptive exploratory research design was utilized to fit the aim of the current study. Setting: the study was conducted in the pediatric surgical ward in Cairo University Specialized Pediatric Hospital (CUSPH). Sample: A purposive sample of 100 mothers and their children with congenital anomalies participated in the current study. Data collection tools: data was collected using the following tools: A structured interview questionnaire, parent needs scale, children needs questionnaire and children challenges questionnaire. Results: the results revealed that, higher mean score of needs for mothers and their children such as emotional support; communication with medical team, participation in child care, mothers closeness, nutrition, learning and guidance. Higher mean score of challenges for mothers and their children such as health team communication, family acceptance, social stigma, poor mothers bonding, parent stress and financial responsibility. There were statistically significant correlations between mothers' challenges and their ages, place of residence and educational level, such as knowledge about surgical management, poor mothers bonding, parent stress, stigma, financial challenges and family acceptance. There were statistical significant correlations between children needs such as learning, child and mother closeness, support and guidance with their ages. Conclusion: the study findings of the current study presented higher levels of mother's needs and challenges with their children having congenital anomalies. Recommendation: Empowerment programs and supportive care for mothers and their children with congenital anomalies are mandatory.

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Section: Discussionsupporting

confidence: 82%