Guidelines for a therapeutic alliance between families and staff: A report of the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology

Masera, Giuseppe; Spinetta, John J.; Jankovic, Momcilo; Ablin, Arthur R.; Buchwall, Ilana; Dongen-Melman, Jeanette Van; Eden, Tim; Epelman, Claudia; Green, Daniel M.; Kosmidis, Helen; Yoheved, Segal; Martins, António Gentil; Mor, Wolfgang; Oppenheim, Daniel; Petrilli, Antônio Sérgio; Schüler, D.; Topf, Reinhard; Wilbur, Jordan R.; Chesler, Mark A.

doi:10.1002/(sici)1096-911x(199803)30:3<183::aid-mpo12>3.0.co;2-o

Cited by 45 publications

(18 citation statements)

References 4 publications

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“…10,43,44 Obviously, this gives some pause for thought about the way the process of cure-care is to be managed. The operators involved, such as physicians, nurses, psychologists, hospital social workers, etc., should never minimize the importance of an effective communication channel with parents that may help them understand the critical events and offer support to meet their needs.…”

Section: Discussionmentioning

confidence: 99%

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Maternal Coping Strategies in Response to a Child’s Chronic and Oncological Disease: A Cross-Cultural Study in Italy and Portugal

et al. 2013

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A child’s oncological or chronic disease is a stressful situation for parents. This stress may make it difficult for appropriate management strategies aimed at promoting the child’s wellbeing and helping him or her cope with a disease to be adopted. In particular, this study focuses on the possible connections between the variable national cultural influences and the parental strategies used to cope with a child’s severe disease by comparing the experiences of Italian and Portuguese mothers. The study investigates differences and cross-cultural elements among the coping strategies used by Italian and Portuguese mothers of children with oncological or chronic disease. Two groups of mothers took part: 59 Italian mothers (average age 37.7 years; SD=4.5) and 36 Portuguese mothers (average age 39.3 years; SD=4.6). The tool used was the Italian and the Portuguese versions of the COPE inventory that measures five coping strategies: Social Support, Avoidance Coping, Positive Aptitude, Religious Faith and Humor, Active Coping. There were statistically significant differences between Portuguese and Italian mothers regarding Social Support (F(3, 94)=6.32, P=0.014, ɳ2=0.065), Religious Faith and Humor (F(3, 94)=20.06, P=0.001, ɳ2=0.18, higher values for Portuguese mothers) and Avoidance Coping (F(3, 94)=3.30, P=0.06, ɳ2=0.035, higher values for Italian mothers). Regarding child’s disease, the only statistically significant difference was in Religious Faith and Humor (F(3, 94)=7.49, P=0.007, ɳ2=0.076, higher values for mothers of children with chronic disease). The findings of specific cultural transversalities provide the basis for reflection on important factors emerging on the relationship between physicians and parents. In fact, mothers’ coping abilities may allow health workers involved in a child’s care not only to understand how parents face a distressful event, but also to provide them with professional support.

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Section: Discussionmentioning

confidence: 99%

“…Obviously, the persistence of such a coping strategy would make it more difficult to create and maintain the therapeutic alliance with medical staff that is so important to the quality of the process of the cure of the child. 43,50 …”

Section: Discussionmentioning

confidence: 99%

Maternal Coping Strategies in Response to a Child’s Chronic and Oncological Disease: A Cross-Cultural Study in Italy and Portugal

et al. 2013

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“…This is especially important in paediatric oncology where everyone must work together towards the common goal of curing the cancer and minimising its medical and psychosocial side effects. 10 Cancer therapy requires an exhaustive commitment by parents commonly over a prolonged period of time. This includes giving medications (including oral chemotherapy), closely monitoring their child's condition, presenting for numerous monitoring and treatment appointments, and tolerating frequent nights in hospital both planned and unplanned while juggling the lives of other family members.…”

Section: Discussionmentioning

confidence: 99%

Parents know best: Or do they? Treatment refusals in paediatric oncology

Alessandri

2011

J Paediatrics Child Health

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Although treatment refusal is an infrequent occurrence in paediatric oncology, it is an important issue that threatens the ongoing therapeutic relationship between the health-care team and families. While there are good reasons to support the decision-making authority of parents in the medical setting, parents' rights in this respect are not absolute. Fortunately, most disagreements between clinicians and parents regarding treatment decisions for children are resolved within the health-care team/family dyad or with the objective advice of other clinicians or clinical ethics services. The increasing appeal of 'natural therapies' and unsubstantiated confidence with which they are prescribed may lead to more frequent refusal of conventional, evidence-based oncology treatment in the future. The harm principle may assist paediatric oncologists in the difficult task of determining when it is justifiable to refer a case for judicial intervention.

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“…Several published guidelines identified 'ideal' psychosocial care for a child with cancer [16][17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34]. None of these documents included all of the information necessary for the complete psychosocial care of a child nor are many explicitly evidence-based or up to date.…”

Section: Guidelinesmentioning

confidence: 99%

Pediatric psycho‐oncology care: standards, guidelines, and consensus reports

et al. 2014

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Objective To identify existing guidelines, standards, or consensus-based reports for psychosocial care of children with cancer and their families. Purpose Psychosocial standards of care for children with cancer can systematize the approach to care and create a replicable model that can be utilized in pediatric hospitals around the world. Determining gaps in existing standards in pediatric psycho-oncology can guide development of useful evidence- and consensus-based standards. Methods The MEDLINE and PubMed databases were searched by investigators at two major pediatric oncology centers for existing guidelines, consensus-based reports, or standards for psychosocial care of pediatric cancer patients and their families published in peer-reviewed journals in English between 1980 and 2013. Results We located 27 articles about psychosocial care that met inclusion criteria: 5 set forth standards, 19 guidelines and 3 were consensus-based reports. None were sufficiently up-to-date, significantly evidence-based, comprehensive and specific enough to serve as a current standard for psychosocial care for children with cancer and their families. Conclusion Despite calls by a number of international pediatric oncology and psycho-oncology professional organizations about the urgency of addressing the psychosocial needs of the child with cancer in order to reduce suffering, there remains a need for development of a widely acceptable, evidence- and consensus-based, comprehensive standard of care to guide provision of essential psychosocial services to all pediatric cancer patients.

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Guidelines for a therapeutic alliance between families and staff: A report of the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology

Cited by 45 publications

References 4 publications

Maternal Coping Strategies in Response to a Child’s Chronic and Oncological Disease: A Cross-Cultural Study in Italy and Portugal

Maternal Coping Strategies in Response to a Child’s Chronic and Oncological Disease: A Cross-Cultural Study in Italy and Portugal

Parents know best: Or do they? Treatment refusals in paediatric oncology

Pediatric psycho‐oncology care: standards, guidelines, and consensus reports

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