Guideline for Oral Healthcare of Adults With Huntington’s Disease

Abstract

SUMMARY These guidelines present an overall strategy for oral healthcare based on the principles of achieving a disease-free, pain-free and safe mouth. The standards of care referred to in the document seek to provide guidelines for the care and treatment that is no less a standard provided for an individual that does not have this condition. Such care and treatment will take into account the health and safety of each individual within the context of their condition. Particular emphasis is placed on dental professionals working within a multidisciplinary team, focusing on prevention of oral disease and providing treatment appropriate to the various stages of the progression of this condition. It is intended that by providing and subsequently promoting these guidelines, it will focus the dental professions work on this condition and the implementation of good care for people with Huntington’s disease.

What we don't need to prove but need to do in multidisciplinary treatment and care in Huntington's disease: a position paper

“…Furthermore, in an update on the literature on the oral manifestations of HD, Munhoz et al [ 50 ] point to the systemic ramifications of a lack of oversight on the overall health of the individual but also oral health in HD as a marker which may determine other aspects of the illness. Manley et al’s [ 51 ] Oral Care Guidelines seek to make this crucial need a proactive rather than a reactive measure, demonstrating the need for discussion between dentistry, dietetics and nutritional care professionals.…”

International Guidelines for the Treatment of Huntington's Disease

“…Multidisciplinary teamwork, especially with dietitians to avoid highly cariogenic foods, is recommended (Grade C) (113, 114). Verbal and written instructions on how to provide good oral hygiene at home should be given to patients and carers (Grade C) (114, 115). Dental care including descaling by a dentist or dental hygienist should be carried out at least once a year but should be more frequent in the later stages of the disease.…”

Labels and descriptions of dental behaviour support techniques: A scoping review of clinical practice guidelines

“…As per Supplemental file 1, 22 were considered CPGs, two were standards of practice, 31,32 two recommendations, 33,34 two policy statements, 35,36 one consensus statement 37 and one review of CPGs. 38 Twelve of these CPGs were from North America, 33,35,[39][40][41][42][43][44][45][46][47] seven from the UK, 31,[48][49][50][51][52][53] four from Europe, 6,37,54,55 three from Australia and New Zealand, 32,36,56 two from Asia 38,57 and two were international. 34,55 Eighteen separate organizations led the development of these CPGs and all were published by dental professional organizations apart from: three published by condition-specific organizations, 34,55,58 two by anaesthetic professional organizations, 51,56 two by a guideline publishing group 52,53 and one by a regulatory body.…”

“…Regarding target populations, thirteen CPGs focused on children and adults, 31,32,36,37,41,42,47,48,51,52,[56][57][58] thirteen towards children alone 6,[33][34][35]39,40,43,44,46,49,53,54,59 and four towards adults only. 38,45,48,55 Regarding intended users, fourteen were primarily targeted at dental professionals, 31,32,34,[36][37][38][39]42,45,[53][54][55][56]58 another seven were targeted specifically at paediatric dental professionals, 35,40,43,44,46,49,…”