“Grin(d) and Bear it”: Narratives from Sami Women With and Without Temporomandibular Disorders. A Qualitative Study

Mienna, Christina Storm; Johansson, Eva; Wänman, Anders

doi:10.11607/ofph.1180

Cited by 8 publications

(21 citation statements)

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“…This theme describes the aims of the patients, where there was a sense that it was important to gain some control over the pain. 26,27 Some patients did not have high hopes and realised that the symptoms will not be reversed completely. 34,36,39 Others, however, wished for complete alleviation of the pain, and restoration of their lifestyle prior to it.…”

Section: Aims and Hopesmentioning

confidence: 99%

“…Following full text review, 20 studies were finally selected to be included in the qualitative evidence synthesis. [26][27][28][29][30][31][32][33][34][35][36][37][38][39][40][41][42][43][44][45] See Table 1 for the context of the included studies, Table 2 for the CASP quality appraisal, and Table 3 for the GRADE-CERQual evidence profile. No studies were excluded based on their quality.…”

Section: R E Su Ltsmentioning

confidence: 99%

“…38 Patients had conflicting views on the role of stress and psychological health as a possible contributing factor. Some accepted this model early in their history and pointed it out in their interviews, 27,31,[35][36][37][38]43 while others refused it completely. 36,37,45 "I believe that it is something I do when I am stressed, so then I address the tension, what caused it, and I do something about it.…”

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confidence: 99%

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A meta‐synthesis of qualitative data exploring the experience of living with temporomandibular disorders: The patients' voice

et al. 2022

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Temporomandibular disorder (TMD) refers to a group of conditions that affect the temporomandibular joint and surrounding muscles. 1 Patients often report symptoms of pain in the jaw area and surrounding musculature, clicking sounds, alterations to the joint activities such as: deviation in the arc of movement, limitation to mouth opening, headache and earache. 2,3 TMD represents the most common cause of chronic pain in the orofacial region, 4 and is only behind headache and backache as reason for chronic pain in general. 5 Accepting the nature of chronic pain can be difficult for patients, therefore creating challenges to their daily lives. 6 Simple physical activities could become burdensome, and social interactions with family and friends may become more difficult. Chronic pain is also linked with depression, which may go unrecognised and therefore untreated in such patients. 7,8 It is likely that the relationship is bidirectional, with chronic pain thought to contribute and also result in poor mental health. 9 Similarly with anxiety and fear of pain, which are both linked to increased likelihood of chronic pain and poorer recovery should it develop. 10 It is therefore important for clinicians to be aware of the influence of chronic pain on patients and address the modifiable risk factors such as lifestyle and behaviour to reduce the impact it has on their lives. 11 The aim of this review was to synthesise the available qualitative evidence about the experience of living with TMD and the effects it has on daily life. Qualitative evidence

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Section: Aims and Hopesmentioning

confidence: 99%

Section: R E Su Ltsmentioning

confidence: 99%

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confidence: 99%

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A meta‐synthesis of qualitative data exploring the experience of living with temporomandibular disorders: The patients' voice

et al. 2022

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“…In particular, the participants with hEDS expressed experiences of being ignored by professionals. Similar experiences of ignorance have been noted in other qualitative studies of TMD and chronic pain (26,27). Professionals in primary care state that chronic pain is challenging to manage (28) and there are suggestions to improve approaches towards persons with pain by raising awareness about pain conditions, education in patientcentred communications skills, and improved access to health-care providers (29).…”

Section: Discussionmentioning

confidence: 77%

‘I was cracking more than everyone else’: young adults' daily life experiences of hypermobility and jaw disorders

Ilgunas

Wänman²,

Strömbäck

2020

European J Oral Sciences

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Most studies on general joint hypermobility (GJH) and temporomandibular disorders (TMD) are quantitative and have concluded that joint hypermobility is a risk factor for development of TMD. The present qualitative study aimed to explore young adults' daily life experiences of GJH, specifically these relating to jaw function, and their experiences of medical and dental care providers. Semi‐structured interviews were conducted with nine young adults (18–22 yr of age) and data were analysed using qualitative content analysis. The overarching thematic category that emerged was ‘Hypermobility in daily life’, which was broken into six subthemes and three themes: ‘emotional perception’, ‘dealing with symptoms’, and ‘outside influences’. Participants' narratives centred on experiences of complex symptoms, awkward jaw function and joint noises, feeling different, and a lack of support from general medical and dental care providers. The findings show that young adults with joint hypermobility need early support from medical and dental care providers for managing their symptoms and conditions related to GJH. Future studies are warranted to develop guidelines for professionals in medical and dental care to detect and prevent forthcoming problems and to offer relevant support to hypermobile youths.

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“…Patients with fibromyalgia commonly report psychological impact [26] and feelings of not being taken seriously [20]. Patients with chronic orofacial pain expressed feelings of anger, being abandoned, and insulted [27], as well as distrust from the care-givers [27,28]. Positive attitude and expectations, from the patient and the therapist, are important components of a rehabilitation process in order to achieve both specific and unspecific treatment effects.…”

Section: Discussionmentioning

confidence: 99%

Patients’ experiences of supervised jaw-neck exercise among patients with localized TMD pain or TMD pain associated with generalized pain

Mienna

Glas

Magnusson

et al. 2019

Acta Odontologica Scandinavica

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Objective: To evaluate temporomandibular disorder (TMD) patients' experiences of a supervised jawneck exercise programme. Materials and methods: The study used a mixed method design. All patients were diagnosed with myalgia according to the Research Diagnostic Criteria for TMD and divided into local myalgia (n ¼ 50; 38 women, mean age 43 yrs, SD 14), and myalgia with generalized pain (n ¼ 28; 27 women, mean age 43 yrs, SD 13). Patients participated in a ten-session supervised exercise programme that included relaxation, coordination and resistance training of the jaw, neck and shoulders. After the 10 sessions an evaluation form was filled out including both open-and closed-ended questions. The quantitative analysis was based on closed-ended questions concerned experience, adaptation and side-effects from the exercise programme. The qualitative analysis was employing inductive content analysis of openended questions. Results: Patients reported similar positive overall experiences of exercise regardless of diagnosis, although more individuals in the general pain group experienced pain during training (57%) compared to the local pain group (26%; p ¼ .015). Patients in both groups shared similar experiences and acknowledged the possibility to participate in an individualized and demanding exercise programme. They expressed feelings of being noticed, taken seriously and respectful care management to be key factors for successful treatment outcome. The exercise programme was acknowledged as a valuable part of treatment. Conclusion: The hypothesis generated was that individualized and gradually demanding exercise in the rehabilitation process of TMD stimulates self-efficacy and confidence in chronic TMD patients regardless of whether the pain was localized or combined with widespread pain.

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“Grin(d) and Bear it”: Narratives from Sami Women With and Without Temporomandibular Disorders. A Qualitative Study

Cited by 8 publications

References 0 publications

A meta‐synthesis of qualitative data exploring the experience of living with temporomandibular disorders: The patients' voice

A meta‐synthesis of qualitative data exploring the experience of living with temporomandibular disorders: The patients' voice

‘I was cracking more than everyone else’: young adults' daily life experiences of hypermobility and jaw disorders

Patients’ experiences of supervised jaw-neck exercise among patients with localized TMD pain or TMD pain associated with generalized pain

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