Grief and Post-Traumatic Growth in Parents 2–6 Years after the Death of Their Extremely Premature Baby

Büchi, Stefan; Mörgeli, Hanspeter; Schnyder, Ulrich; Jenewein, Josef; Hepp, Urs; Jina, E.; Neuhaus, Rachel; Fauchère, Jean‐Claude; Bucher, Hans Ulrich; Sensky, Tom

doi:10.1159/000097969

Cited by 93 publications

(86 citation statements)

References 49 publications

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“…All of Brabant et al’s (1997) participants expressed a fundamental change in themselves, particularly in relation to feeling ‘more sensitive’, while Parappully and colleagues’ (2002) participants reported becoming more compassionate. Similarly, Buchi and colleagues’ (2007) participants provided the highest scoring items on the PTGI for ‘stronger than I thought I was’ and ‘knowing I can handle difficulties’. In Moore et al’s (2015) study, parents did not score as highly on the domain on personal strength on the PTGI (19% endorsed this item), compared to other domains on the inventory.…”

Section: Resultsmentioning

confidence: 95%

“…Post-Traumatic Growth Inventory (PTGI). Complicated grief module.Brabant, Forsyth, and McFarlain (1997)QualitativeUSA (USA)Not reported14Female (8)Male (6)Not reportedAccidents (6)Illness (3)Surgery (1)Range = 1–29 yearsMean = 12Range 1–8 yearsMean = 5 yearsInterviewsBuchi et al (2007)QuantativeSwitzer-landNot reported54Female (27)Male (27)Married (100%)Neonatal deathNot reportedNot reportedMunich Grief Scale. PTGI.…”

Section: Resultsmentioning

confidence: 99%

“…They concluded that, although the grief persisted, it became easier to manage over time. In addition to reports of growth, Buchi and colleagues (2007) highlighted that 80% of parents still showed signs of grief and 19% indicated ongoing suffering, two to six years after their premature baby had died. Gerrish and colleagues (2014) found that despite mothers being able to recognize personal growth, they also experienced enduring sadness.…”

Section: Resultsmentioning

confidence: 99%

“…Buchi et al (2007) found a positive association between grief and growth scores, when the Hospital Anxiety and Depression Scale scores were controlled. In a hierarchical multiple regression analysis, Engelkemeyer and Marwit (2008) found that grief intensity accounted for only 4% of the variance of post-traumatic growth scores in their study.…”

Section: Resultsmentioning

confidence: 99%

“…The death of a child can lead to parents experiencing long-term negative psychological responses, such as increased depressive symptoms (Rogers, Floyd, Seltzer, & Hong, 2008), anxiety (Buchi et al, 2007), and complicated grief (Zetumer et al, 2015). Bereaved parents have also been found to experience relationship difficulties (Rogers et al, 2008) and poorer physical health (Li, Hansen, Bo Mortensen, & Olsen, 2002).…”

Section: Introductionmentioning

confidence: 99%

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What aspects of post-traumatic growth are experienced by bereaved parents? A systematic review

Waugh

Kiemle

Slade

2018

European Journal of Psychotraumatology

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Background: The death of a child of any age can be traumatic and can leave bereaved parents experiencing negative psychological outcomes. Recent research has shown the potential utility for understanding more about the development of post-traumatic growth following bereavement.Objective: This paper sought to identify the aspects of post-traumatic growth experienced by bereaved parents and the factors that may be involved in facilitating or preventing post-traumatic growth.Methods: A systematic search of peer-reviewed articles with a primary focus on positive personal growth in bereaved parents was conducted. Thirteen articles met the inclusion criteria, and were analysed and synthesized according to common and divergent themes.Results: Bereaved parents were able to experience elements of growth proposed by the post-traumatic growth model (changes in self-perception, relationships, new possibilities, appreciation of life and existential views). The papers also indicated that (1) mothers appeared to experience more growth than fathers, (2) cultural variation may impact on some participants’ experience of growth, and (3) participants were able to identify growth only once some time had passed. Potential facilitators of post-traumatic growth involved making meaning, keeping ongoing bonds with the child, being with bereaved families, and family and personal characteristics. Social networks were identified as having the potential to be either a facilitator or a barrier to growth.Conclusions: In addition to experiencing grief, bereaved parents may experience aspects of post-traumatic growth, and a variety of factors have been identified as potential facilitators and barriers of these changes. The findings may have implications for support services (e.g. expert-by-experience services).

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Section: Resultsmentioning

confidence: 95%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

What aspects of post-traumatic growth are experienced by bereaved parents? A systematic review

Waugh

Kiemle

Slade

2018

European Journal of Psychotraumatology

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Support for mothers, fathers and families after perinatal death

Koopmans¹,

Wilson²,

Cacciatore³

et al. 2008

Cochrane Database of Systematic Reviews

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Background Provision of an empathetic caring environment, and strategies to enable the mother, father and family to accept the reality of perinatal death, are now an accepted part of standard nursing and social support in most of the developed world. Provision of interventions such as psychological support or counselling, or both, has been suggested to improve outcomes for families after a perinatal death. Objectives The objective of this review was to assess the effects of the provision of any form of medical, nursing, social or psychological support or counselling, or both, to mother, father and families after perinatal death. Search methods We searched the Cochrane Pregnancy and Childbirth Group's Trials Register (30 October 2007) and reference lists of articles. Selection criteria Randomised trials of any form of general support aimed at encouraging acceptance of loss, specific bereavement counselling, or specialised psychological support/counselling including psychotherapy for mother, father and families experiencing perinatal death. Data collection and analysis Two review authors independently assessed eligibility of trials; a third person subsequently assessed the quality of the identified trials as a part of this review update. Main results No trials were included.

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Support for mothers, fathers and families after perinatal death

Koopmans

Wilson

Cacciatore

et al. 2013

Cochrane Database of Systematic Reviews

127

123

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Background Provision of an empathetic, sensitive, caring environment and strategies to support mothers, fathers and their families experiencing perinatal death are now an accepted part of maternity services in many countries. Interventions such as psychological support or counselling, or both, have been suggested to improve outcomes for parents and families a er perinatal death. Objectives To assess the e ect of any form of intervention (i.e. medical, nursing, midwifery, social work, psychology, counselling or community-based) on parents and families who experience perinatal death. Search methods We searched the Cochrane Pregnancy and Childbirth Group's Trials Register (28 January 2013) and article bibliographies. Selection criteria Randomised trials of any form of support aimed at encouraging acceptance of loss, bereavement counselling, or specialised psychotherapy or counselling for mothers, fathers and families experiencing perinatal death. Data collection and analysis Two review authors independently assessed eligibility of trials. Main results No trials were included. Authors' conclusions Primary healthcare interventions and a strong family and social support network are invaluable to parents and families around the time a baby dies. However, due to the lack of high-quality randomised trials conducted in this area, the true benefits of currently existing interventions aimed at providing support for mothers, fathers and families experiencing perinatal death is unclear. Further, the currently available evidence around the potential detrimental e ects of some interventions (e.g. seeing and holding a deceased baby) remains inconclusive at this point in time. However, some well-designed descriptive studies have shown that, under the right circumstances and guided by compassionate, sensitive, experienced sta , parents' experiences of seeing and holding their deceased baby is o en very positive. The sensitive nature of this topic and small sample sizes, make it di icult to develop rigorous clinical trials. Hence, other research Support for mothers, fathers and families a er perinatal death (Review)

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Grief and Post-Traumatic Growth in Parents 2–6 Years after the Death of Their Extremely Premature Baby

Cited by 93 publications

References 49 publications

What aspects of post-traumatic growth are experienced by bereaved parents? A systematic review

What aspects of post-traumatic growth are experienced by bereaved parents? A systematic review

Support for mothers, fathers and families after perinatal death

Support for mothers, fathers and families after perinatal death

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