Grandparents' Involvement and Support in Families with Children with Disabilities

Lee, Misuk; Gardner, J. Emmett

doi:10.1080/03601270903212419

Cited by 52 publications

(60 citation statements)

References 60 publications

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“…[1][2][3] Grandparent-provided child care (ie, babysitting, disease management, and respite care) is a vital source of support for parents raising children with a variety of chronic health conditions. [1][2][3][4][5] No previous research was found explicitly examining how GPs functionally or emotionally support their adult child parenting their grandchild diagnosed with type 1 diabetes (T1DM). Therefore, the purpose of this study was to explore the feasibility of using human patient simulation (HPS) to teach T1DM management and skills to GPs of young children (aged 12 and younger) diagnosed with T1DM ( Figure 1).…”

Section: Discussionmentioning

confidence: 99%

“…These findings are important, within the context of several related studies that have identified GPs as the most important source of secondary caregiving for parents of children with other, non-T1DM, chronic health conditions. [1][2][3] Understanding of and access to accurate information regarding their grandchild's chronic health condition is critical to a GP's involvement supporting their adult children parenting the child, as well as to the grandchild. 1 GP caregiving was significantly related to parents maintaining a positive emotional outlook and avoiding exhaustion 39 and was also associated with reduced maternal stress.…”

Section: Discussionmentioning

confidence: 99%

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Grandparent Education Through Simulation-Diabetes

2015

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Grandparent Education Through Simulation-Diabetes

2015

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“…The behavioral dimension refers to the provision of emotional support to grandchildren-expressed in kissing, hugging, and encouragement-to contribution to the grandchild's upbringing and development, and to instrumental support such as babysitting, bathing, or cooking for the grandchildren . Although grandparents' support in families of children with disabilities has been extensively examined (see, e.g., Lee & Gardner, 2010;Schilmoeller & Baranovsky, 1998), their perspectives on their role within such unique circumstances have not been previously explored. It can be assumed that grandparents who perceive their role more positively and are therefore more engaged and committed to their role will experience less stress and more personal growth.…”

Section: The Perception Of the Grandparenting Rolementioning

confidence: 99%

“…However, whereas parents' feelings are often processed through active coping with the countless demands of the disability, grandparents remain remote from the practical implications of daily needs. This distance may leave them lacking a clear understanding of the short-and long-term consequences of the situation and thus heighten their stressors and prolong their sense of loss (Lee & Gardner, 2010).…”

Section: Stress Among Grandparents Of Children With Intellectual Disamentioning

confidence: 99%

The Experience of Stress and Personal Growth Among Grandparents of Children With and Without Intellectual Disability

Findler¹

2014

Intellectual and Developmental Disabilities

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The aim of this research was to examine the contribution of internal and external resources to stress and personal growth among grandparents of children with and without an intellectual disability. Ninety-four grandparents of children with intellectual disability and 105 grandparents of children without intellectual disability completed the following scales: Multidimensional Experience of Grandparenthood; Multidimensional Scale for Perceived Social Support, Level of Differentiation of Self Scale, Family Adaptability and Cohesion Evaluation Scale, Perceived Stress Scale, and Posttraumatic Growth Inventory. Results indicate that group differences are reflected in higher negative emotions among grandparents of children without intellectual disability. In addition, both stress and growth are related to better health, lower level of education, family cohesiveness, and negative emotions. However, whereas stress is associated with the internal resource of self-differentiation, the external resource of social support, and the cost of grandparenthood, growth is associated with gender and the symbolic and behavioral aspects of the grandparenting role. This study aimed to correct the nearly exclusive focus in the literature on negativity, stress, and the burden of grandparenting children with intellectual disability, as well as to test the pervasive assumption that the absence of disability results in an almost entirely positive grandparenting experience with nearly no negative affect.

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“…A family acts as a unit, and the adjustments made by family members influence each other. Although grandparents have important roles, very few studies have examined the experiences of grandparents [8]. Grandparents are particularly important in Chinese culture.…”

Section: Literature Reviewmentioning

confidence: 99%

A Loss Experience of a Grandmother of a Grandchild Withα-Thalassemia

Huang¹,

Lin²,

Chen³

et al. 2017

IJPCC

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The prevalence of thalassemia in Taiwan is relative high. The main problem of thalassemia is not able to produce stable hemoglobin, so it needs treatments of regular blood transfusions, iron chelator, or d bone marrow transplantation. This can lead to a lifelong impact on the sick children and their families who may have a high risk of psychosocial issues. This paper was related to caring for a neonatal with α-thalassemia who needed to be treated in an intensive care unit. The grandmother deeply experienced grief due to the loss of her healthy grandchild. Interaction and interview with the grandmother were recorded as process recording. Data analysis used content analysis. Findings included (1) experiencing life from enjoyment to tribulations; (2) repeatedly self-blame and difficulty accepting the inherited disease; (3) losing daily routines and plans; and (4) overcoming a high degree of uncertainty to face the future. For patients and their families, nurses should be with them and conduct active listening and recognizing their grief due to their losses. Also helping them to discover the meaning of the losses can enhance the transition process from grief to healing.

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Grandparents' Involvement and Support in Families with Children with Disabilities

Cited by 52 publications

References 60 publications

Grandparent Education Through Simulation-Diabetes

Grandparent Education Through Simulation-Diabetes

The Experience of Stress and Personal Growth Among Grandparents of Children With and Without Intellectual Disability

A Loss Experience of a Grandmother of a Grandchild Withα-Thalassemia

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