Global Perspective of Burden of Family Caregivers for Persons With Schizophrenia

Chan, Sally Wai‐Chi

doi:10.1016/j.apnu.2011.03.008

Cited by 218 publications

(275 citation statements)

References 50 publications

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“…Although many studies were carried out, the increased knowledge about burnout has not led to any firm conclusions because multiple variables are involved. For example, the relatives of male patients showed functional decline more frequently, as mentioned in some studies (5,6). Caucasian caregivers experienced more burnout and rejection of the patients than African-American caregivers (6).…”

Section: Introductionmentioning

confidence: 93%

Burnout in caregivers of patients with schizophrenia

Kokurcan¹,

Özpolat²,

Göğüş³

2015

Turk J Med Sci

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Background/aim: To evaluate the burnout of schizophrenia patients' caregivers and to determine the possible relationships between sociodemographic characteristics, symptomatology, perceived social support, and the burnout profile of the caregivers. Materials and methods:Subjects included in the study are 76 schizophrenia patients, diagnosed according to DSM-IV-TR criteria, and their caregivers. A sociodemographic form, the Scale for the Assessment of Positive Symptoms, and the Scale for the Assessment of Negative Symptoms were applied to evaluate the severity of the symptoms. The Maslach Burnout Inventory for Caregivers and the Multidimensional Scale of Perceived Social Support were applied to the caregivers of the patients. The collected data were analyzed via Student's t-test, one-way analysis of variance, and Pearson's correlation analysis. Results:The burnout profile of the caregivers was highly correlated with the perceived social support of the caregivers and was also correlated with negative symptoms of the patients. Lower perceived social support was related to all subscales of the Maslach Burnout Inventory. Conclusion:Perceived social support is a major factor for caregiver burnout and it was highly correlated with all subscales in our study. We think that having social support provides caregivers with better feelings and so they provide better help to the patients. Appropriate approaches should be taken to intervene in the social and clinical factors that may exacerbate the burnout process.

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Section: Introductionmentioning

confidence: 93%

Burnout in caregivers of patients with schizophrenia

Kokurcan¹,

Özpolat²,

Göğüş³

2015

Turk J Med Sci

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“…This is reflective of policy changes advocating for the deinstitutionalization of clients diagnosed with schizophrenia to live in the community with their families (Huang et al 2008). Caring for relatives with schizophrenia may result in a significant burden to caregivers (Chan 2011). It is estimated that as high as 90% of caregivers experience moderate to severe burden, and among caregivers of patients diagnosed with schizophrenia are a potential high-risk group for mental disorders (Magliano et Caring for a relative with schizophrenia has been ranked a greater burden than that associated with caring for patients diagnosed with dementia (Nauert 2011).…”

Section: Introductionmentioning

confidence: 99%

Schizophrenia: its psychological effects on family caregivers

Riley-McHugh¹,

Brown²,

Lindo

2016

IJANS

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Purpose: Caregivers of patients diagnosed with schizophrenia experience moderate to severe caregiver burden and are at risk for developing mental disorders. This study explores the psychological effects and coping strategies of family caregivers of relatives diagnosed with schizophrenia in the developing world. Methods: This qualitative study used the register of a community mental health clinic at a Jamaican hospital to purposively select and recruit five primary family caregivers of clients diagnosed with schizophrenia (based on the DSM IV). Consenting participants were interviewed using a semi-structured interview guide. Data were analyzed using thematic content analysis. Results: Four of the five caregivers studied were females. Participants were either parents (4) or siblings (1) of the client diagnosed with schizophrenia and aged 42 -57years. Participants experienced feelings of anger, sadness, loss of libido, loss of appetite and depression. They expressed feelings of fear, guilt, stigma and stress related to financial responsibilities in caring for their relatives. Coping mechanisms included social support from family members and their strong faith in God. Conclusion: Participants reported experiencing major psychological distress and ineffective coping. Community based management of individuals with schizophrenia should include strategies to support family caregivers.

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“…This suggestion applies to all sorts of vulnerable citizens: the chronically ill, the physically disabled, the fragile elderly, as well as people with intellectual or psychiatric disabilities. Because family members of vulnerable citizens are often overburdened already (Chan, 2011), the government hopes that volunteers and neighbourhood residents will assist and help. Intimate personal care (helping people take a shower or go to the bathroom) is considered a service that should be rendered by paid professionals but many other forms of help could be provided by neighbourhood residents, friends and acquaintances.…”

Section: Introductionmentioning

confidence: 99%

Urban encounters limited: The importance of built-in boundaries in contacts between people with intellectual or psychiatric disabilities and their neighbours

2016

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People with intellectual disabilities or psychiatric disorders who live in ordinary neighbourhoods often have little contact with fellow residents without disabilities. Recent research suggests that we should not strive for warm contacts based on familiarity and shared values between utterly different groups in urban areas. Daily life between people with and without disabilities is described as a process in which boundaries are negotiated. This study builds on that observation. It was based in a middle sized town in the Netherlands and consists of a survey among people with intellectual or psychiatric disabilities and neighbourhood residents (not being support staff or relatives of people with disabilities); semi structured interviews and participant observation. We found that fruitful encounters between different groups depend on built-in boundaries in contacts. Positive encounters occur when roles are clear and boundaries do not have to be negotiated because they are given. Both parties benefit from boundaries and fixed roles: people with disabilities do not need social reflexivity or intricate social skills to find their way in the situation; people without disabilities can end the contact without being rude. In line with previous research we also found that positive neighbourhood contacts are usually light and superficial and result in conviviality rather than long term relationships.

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Global Perspective of Burden of Family Caregivers for Persons With Schizophrenia

Cited by 218 publications

References 50 publications

Burnout in caregivers of patients with schizophrenia

Burnout in caregivers of patients with schizophrenia

Schizophrenia: its psychological effects on family caregivers

Urban encounters limited: The importance of built-in boundaries in contacts between people with intellectual or psychiatric disabilities and their neighbours

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