Global consensus process to establish a core dataset for hidradenitis suppurativa registries
Hannah E Wainman,
Nisha S Chandran,
John W Frew
et al.
Abstract:Background
Several registries for hidradenitis suppurativa (HS) already exist in Europe and USA. There is currently no global consensus on a core dataset (CDS) for these registries.
Creating a global HS registry is challenging due to logistical and regulatory constraints, which could limit opportunities for global collaboration due to differences in the dataset collected. The solution is to encourage all HS registries collect the same CDS of information, allowing the registr… Show more
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