Giving voice to adults with intellectual disabilities and experience of mental ill-health: validity of a psychosocial approach

Sutton, Paul D.; Gates, Bob

doi:10.7748/nr.2018.e1520

Cited by 7 publications

(6 citation statements)

References 28 publications

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“…Pen portraits are familiar tools for humanities scholars wishing to convey a sense of how different strands of data interact within the complete data set. 166,167 The use of pen portraits is consistent with key analytical strategies for qualitative data, including framework, 168 constant comparisons 131 and Template Analysis. 169 In health services research, however, they are still an emerging method 170 for working with multidimensional data sets.…”

Section: Pen Portrait Analytical Processmentioning

confidence: 77%

A service-user digital intervention to collect real-time safety information on acute, adult mental health wards: the WardSonar mixed-methods study

Baker,

Kendal,

Bojke

et al. 2024

Health Soc Care Deliv Res

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Background Acute inpatient mental health services report high levels of safety incidents. The application of patient safety theory has been sparse, particularly concerning interventions that proactively seek patient perspectives. Objective(s) Develop and evaluate a theoretically based, digital monitoring tool to collect real-time information from patients on acute adult mental health wards about their perceptions of ward safety. Design Theory-informed mixed-methods study. A prototype digital monitoring tool was developed from a co-design approach, implemented in hospital settings, and subjected to qualitative and quantitative evaluation. Setting and methods Phase 1: scoping review of the literature on patient involvement in safety interventions in acute mental health care; evidence scan of digital technology in mental health contexts; qualitative interviews with mental health patients and staff about perspectives on ward safety. This, alongside stakeholder engagement with advisory groups, service users and health professionals, informed the development processes. Most data collection was virtual. Phase 1 resulted in the technical development of a theoretically based digital monitoring tool that collected patient feedback for proactive safety monitoring. Phase 2: implementation of the tool in six adult acute mental health wards across two UK NHS trusts; evaluation via focused ethnography and qualitative interviews. Statistical analysis of WardSonar data and routine ward data involving construction of an hour-by-hour data set per ward, permitting detailed analysis of the use of the WardSonar tool. Participants A total of 8 patients and 13 mental health professionals participated in Phase 1 interviews; 33 staff and 34 patients participated in Phase 2 interviews. Interventions Patients could use a web application (the WardSonar tool) to record real-time perceptions of ward safety. Staff could access aggregated, anonymous data to inform timely interventions. Results Coronavirus disease 2019 restrictions greatly impacted the study. Stakeholder engagement permeated the project. Phase 1 delivered a theory-based, collaboratively designed digital tool for proactive patient safety monitoring. Phase 2 showed that the tool was user friendly and broadly acceptable to patients and staff. The aggregated safety data were infrequently used by staff. Feasibility depended on engaged staff and embedding use of the tool in ward routines. There is strong evidence that an incident leads to increased probability of further incidents within the next 4 hours. This puts a measure on the extent to which social/behavioural contagion persists. There is weak evidence to suggest that an incident leads to a greater use of the WardSonar tool in the following hour, but none to suggest that ward atmosphere predicts future incidents. Therefore, how often patients use the tool seems to send a stronger signal about potential incidents than patients’ real-time reports about ward atmosphere. Limitations Implementation was limited to two NHS trusts. Coronavirus disease 2019 impacted design processes including stakeholder engagement; implementation; and evaluation of the monitoring tool in routine clinical practice. Higher uptake could enhance validity of the results. Conclusions WardSonar has the potential to provide a valuable route for patients to communicate safety concerns. The WardSonar monitoring tool has a strong patient perspective and uses proactive real-time safety monitoring rather than traditional retrospective data review. Future work The WardSonar tool can be refined and tested further in a post Coronavirus disease 2019 context. Study registration This study is registered as ISRCTN14470430. Funding This award was funded by the National Institute for Health and Care Research (NIHR) Health and Social Care Delivery Research programme (NIHR award ref: NIHR128070) and is published in full in Health and Social Care Delivery Research; Vol. 12, No. 14. See the NIHR Funding and Awards website for further award information.

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Section: Pen Portrait Analytical Processmentioning

confidence: 77%

A service-user digital intervention to collect real-time safety information on acute, adult mental health wards: the WardSonar mixed-methods study

Baker,

Kendal,

Bojke

et al. 2024

Health Soc Care Deliv Res

View full text Add to dashboard Cite

show abstract

“…361-363;Parker, 2003, pp. 17-18;Wetherell, 2003Wetherell, , 2005, as well as reflective accounts of the method's use (Elliott et al, 2012;Gadd, 2004;Garfield et al, 2010;Sutton and Gates, 2019). The analysis and data reported on provides evidence of how social work professionals working in children's services experience being the subject of research when a FANIM informed approach is used.…”

Section: Notesmentioning

confidence: 86%

“…Ideas about how research interviewing can be informed by the practice of psychoanalytic therapy have been subject to growing attention in recent years across a range of disciplines, including social work (see, for example, Archard, 2020aArchard, , 2021cBoyle et al, 2009;Garfield et al, 2010;Gregor et al, 2015;Guest, 2012;McAndrew and Warne, 2010;Nicholls, 2009;Nicholson et al, 2012;Storey et al, 2012;Sutton and Gates, 2019). Within this work, it has been acknowledged that research participation can be experienced as cathartic and therapeutic, which can be connected to contemporaneous non-psychoanalytic contributions addressing the topic of research beneficence, as well as earlier writing on the relationships between psychoanalysis and social research, and psychotherapeutic practice and research interviewing (see, for example, Birch and Miller, 2000;Hendin, 1964;Hendin et al, 1965;Herdt and Stoller, 1990;Hutchinson and Wilson, 1994).…”

Section: Introductionmentioning

confidence: 99%

Containment and beneficence in psychoanalytically informed social work research

Archard

O’Reilly

2022

SWSSR

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This article adds to literature addressing research beneficence from a psychoanalytic perspective, providing reflections focussing on notions of containment and container-contained dynamics as derived from the Kleinian/post-Kleinian tradition of psychoanalysis. It does so by reference to the accounts of participants in a study which explored how professionals working in local authority children’s services in England experience the suffering of parents. In this research, a psychoanalytically informed interview approach was used, and space was provided for participants to reflect on the experience of participation. The variable representation of this experience is considered along with the experience of the researcher carrying out the interviews. Questions are raised about using the language of containment in the context of this research approach and whether this may say more about a researcher’s desire to be helpful to participants and less about participants’ actual experiences (and a genuinely psychoanalytically based understanding of them).

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“…Hollway andJefferson's (2000, 2013) 'Free Association Narrative Interview Method' (FANIM) is arguably the most influential example of the use of psychotherapeutic principles in qualitative social science research of the past twenty-five years, at least in a UK context (Hoggett 2015, Midgley 2006. Hollway andJefferson's (2000, 2013) writings setting out FANIM have informed research studies across various fields including nursing (Elliott et al 2007, Graham 2007, Boyle et al 2009, McAndrew and Warne 2010, Nicholson et al 2012, Capri and Buckle 2015, Sutton and Gates 2018. Indeed, FANIM is viewed as providing a helpful framework for interview-based research seeking to attend to the emotional complexity of research relationships and illuminate unconscious processes in healthcare work.…”

Section: Why You Should Read This Articlementioning

confidence: 99%

Qualitative research interviewing: application and use of free association

Archard¹,

O’Reilly²

2023

Nurse Researcher

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Background: The focus of this discussion centres on the theory and practice of psychoanalytically informed interviewing, and its application in nursing research.Aim: To examine the relationship between the framing of the psychoanalytic concept of free association in the contexts of qualitative research interviewing, clinical psychoanalysis, and psychoanalytically orientated psychotherapy.Discussion: Free association is a core concept in Hollway and Jefferson's (2000, 2013) 'Free Association Narrative Interview Method'an approach that is well-known amongst researchers in the United Kingdom who are interested in making use of psychoanalytic ideas in qualitative psycho-social research. Conclusion:Differences in the contexts of research, clinical psychoanalysis and psychotherapy should be carefully considered to avoid makeshift integrations of clinical concepts. Implications:The free association narrative interview method is an attractive approach for nursing researchers interested in the application of psychoanalytic ideas. However, researchers should carefully reflect on the meanings of the clinical ideas and terminology they use.

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Giving voice to adults with intellectual disabilities and experience of mental ill-health: validity of a psychosocial approach

Cited by 7 publications

References 28 publications

A service-user digital intervention to collect real-time safety information on acute, adult mental health wards: the WardSonar mixed-methods study

A service-user digital intervention to collect real-time safety information on acute, adult mental health wards: the WardSonar mixed-methods study

Containment and beneficence in psychoanalytically informed social work research

Qualitative research interviewing: application and use of free association

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