Giving Patients Access to Their Medical Records via the Internet: The PCASSO Experience

Masys, Daniel R.; Baker, Dixie B.; Butros, Amy; Cowles, Kevin Esme

doi:10.1197/jamia.m1005

Cited by 122 publications

(72 citation statements)

References 3 publications

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“…All of these technology studies have demonstrated the ability to provide patients with access to their records in a secure and confidential manner (Cimino et al, 2000;Ueckert et al, 2003). Nevertheless, many patients and health care professionals still have concerns regarding security and confidentiality (Fowles et al, 2004;Masys et al, 2002 conclusive, with at least one study demonstrating a strong polarity between patients who would and who would not want the ability to access their records online (Fowles et al, 2004;Ross et al, 2005). For the patients who do want to access their records online, little is known about how and when they would like to access their records, what they would like to see, and what support they would require to access and understand their electronic health record.…”

Section: Introductionmentioning

confidence: 99%

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Getting results for hematology patients through access to the electronic health record

Wiljer¹,

Bogomilsky²,

Catton³

et al. 2006

CONJ

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Section: Introductionmentioning

confidence: 99%

“…These systems include PCASSO (Masys, Baker, Butros, & Cowles, 2002), PatCIS (Cimino, Patel, & Kushniruk, 2002) and SPPARO (Ross, 2004). All of these technology studies have demonstrated the ability to provide patients with access to their records in a secure and confidential manner (Cimino et al, 2000;Ueckert et al, 2003).…”

Section: Introductionmentioning

confidence: 99%

Getting results for hematology patients through access to the electronic health record

Wiljer¹,

Bogomilsky²,

Catton³

et al. 2006

CONJ

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“…Previous research demonstrated that such systems can be feasible, secure, and well accepted by patients. 6,7,9,11,13,[15][16][17] Laboratory results and e-mail typically have been the most popular features.Fewer systems have been developed specifically for pediatrics. General pediatrics has lagged behind other specialties in uptake of electronic health tools.…”

mentioning

confidence: 99%

Pediatric Personal Health Records: Current Trends and Key Challenges

Britto

Wimberg

2009

Pediatrics

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Personal health records may enhance pediatric care and outcomes. Few systems have been developed or customized for pediatrics, and evaluations are scarce. Special considerations in pediatrics include pediatric content such as growth charts, complex privacy and confidentiality considerations, and the changing developmental needs of children and adolescents. Pediatrics 2009;123:S97-S99 P EDIATRICIANS HAVE LONG used tools such as immunization cards and well-child booklets to provide families with access to key information about their children's health. In the past 15 years, electronic records and the Internet have become increasingly important and available mechanisms through which to provide families with data about their children's health and to assist families in tracking their children's health and development. Families also create their own paper and electronic records of their children's health and health care needs. Electronic systems, known as personal health records (PHRs), may play key roles in enhancing partnerships between families and health care providers, promoting self-care, and enhancing family decision-making regarding the health of children and adolescents. Furthermore, they can provide key health information when a child becomes ill away from home or in a disaster. This article reviews PHR types and characteristics, summarizes some existing systems, and describes special challenges for PHRs in pediatrics.PHRs have been defined by the Markle Foundation as an "electronic application through which individuals can access, manage and share their health information, and that of others for whom they are authorized, in a private, secure, and confidential environment." 1 An ideal PHR would be lifelong and would integrate information from many sources, such as health care systems, pharmacies, and insurers, as well as family-entered information such as symptoms, health concerns, and self-monitoring findings. It would be controlled by the patient or family, and it would be private and secure. It would facilitate communication between families and providers, using functions such as secure e-mail. 1 No existing systems meet all of these criteria, partly because of the difficulty of merging data from multiple sources into a single data system. Privacy concerns and lack of a strong business case for PHRs have also hindered their development.In the early 1990s, many commercial vendors developed Internet-based, stand-alone systems. These systems required consumers to enter and to maintain their own health information. Although some of these systems remain, they have never become popular, likely because of the onerous nature of maintaining the information. Therefore, PHRs linked to electronic health records (EHRs) and other sources of health information have become the preferred model. 1,2 Recently, several large software makers announced their plans to develop secure PHRs that could link to physicians ' and hospitals' EHRs. 3,4 Once these systems overcome the technical challenges of integrating informatio...

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“…Patients withdrew from the study because they were sensitive to the nature of the information in the record and because of crises in psychosocial circumstances. In summary, patients will use media that will improve their health given that they are dynamic and easy to use [49]. However, patients welcome computerassisted care as an augmentation and not a replacement of individualized health care.…”

Section: The Patient Perspectivementioning

confidence: 96%

The Role of Patients in Designing Health Information Systems: The Case of Applying Simulation Techniques to Design an Electronic Patient Record (EPR) Interface

Leonard

2004

Health Care Manage Sci

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One overall objective of Electronic Patient Records (EPRs) is to improve patient education and to enhance the patient experience through the use of information technology (IT) so as to facilitate the sharing of information between providers and their patients. The research project reported on herein took place at University Health Network (UHN) in Toronto (Canada), which is a large academic health science center with multiple hospital sites in the city. As a first step in this process, we examined the literature to investigate the human factors issues related to healthcare as well as other settings. Subsequently, we interviewed a number of interested stakeholders from two groups: the physicians (both family and attending) and the patients themselves. Finally, using a simulation environment, we explored the content that UHN lung-transplant patients would be interested in having within their own EPRs. In this paper, we report on the research, the methodology and the findings pertaining to the both the content and the design of an electronic patient record.

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Giving Patients Access to Their Medical Records via the Internet: The PCASSO Experience

Abstract: High-assurance systems that serve both patients and providers will need to address differing expectations regarding security and ease of use.

Cited by 122 publications

References 3 publications

Getting results for hematology patients through access to the electronic health record

Getting results for hematology patients through access to the electronic health record

Pediatric Personal Health Records: Current Trends and Key Challenges

The Role of Patients in Designing Health Information Systems: The Case of Applying Simulation Techniques to Design an Electronic Patient Record (EPR) Interface

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