Giving hope in brain injury. An exploration of families' experiences with the brainwave organisation and therapy

Abstract

This exploratory study examined families' experiences during the care of brain-injured children being treated with therapy from the Brainwave organisation. Families highlighted areas of dissatisfaction with existing services. The friendly and positive attitudes they received from Brainwave staff were an indication of hope for the future. Involvement in their children's care and being valued during decision making were advantages attributed to the Brainwave organisation. The study has produced recommendations for the Brainwave Centre to improve their service delivery as well as important areas within conventional care that could be improved and developed to help families with brain injury.