Gestão familiar de crianças com condições crónicas: Perspetivas dos cuidadores

Pinto, Marina Guedes; Santos, Verônica; Junior, Jayro Guimarães; Gesteira, Elaine Cristina Rodrigues; Duarte, Elysângela Dittz; Braga, Patrícia Pinto

doi:10.12707/rvi22100

Cited by 1 publication

(1 citation statement)

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“…It should be noted that each family has unique characteristics and deals with chronic conditions according to specific social, individual and/or cultural patterns and behaviors. In this context, nursing plays a crucial role in providing a deeper understanding of the needs of affected children and their families (27) .…”

Section: Discussionmentioning

confidence: 99%

Families’ situation of caring for a child with a chronic condition: a mixed methods study

Felizardo,

Macêdo,

Henriques

et al. 2024

Rev. esc. enferm. USP

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Objective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF). Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component “Definition of the Situation”. Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis. Results: Family members reported a view of normality in relation to CCC, also verified by the Child’s Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child’s care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales. Conclusion: Families have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child.

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Section: Discussionmentioning

confidence: 99%