Genomic susceptibility‐testing and pregnancy: something old, something new

Saukko, Paula

doi:10.1080/1463677042000305075

Cited by 10 publications

(6 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Out of the 3600 posts analysed, a quarter or 900 focused directly on anticoagulants. The second most popular topic was symptoms or experiences of deep vein thrombosis (375 posts), followed by pregnancy (330 posts), as thrombophilia is also associated with miscarriage and stillbirth (on this thread see Saukko 2004). The fourth most popular theme or category was newcomers (270 posts), referring to threads initiated by a new member or 'newbie' to the list introducing her/himself.…”

Section: Online Focus On Medicationsmentioning

confidence: 98%

Genetic risk online and offline: Two ways of being susceptible to blood clots

Saukko

2009

Health, Risk & Society

Self Cite

View full text Add to dashboard Cite

Social science research into online health groups often studies characteristics of Internet communication, such as anonymity and ability to connect individuals across distance, which facilitate unique modes of support between people with similar illnesses. This article compares discussion in an online group for people with a genetic susceptibility for deep vein thrombosis with offline interviews with individuals with the same condition. Active participants in the online group were mostly acutely or chronically ill, and the intense discussion revolved around the use of anticoagulant medications with potentially serious side-effects. Most of the individuals interviewed offline were healthy and described themselves as 'blase´' about the condition, even if they were sometimes poorly informed. The findings indicate that online groups do indeed support their members but the support may focus on specific practices, such as the use of drugs. Drawing on multi-sited ethnography this article suggests studying online groups in relation to other possible ways of relating to health. Discerning what kinds of health identities and practices online groups cultivate is particularly important when investigating new 'at risk' conditions, which open up a broad range of possible identities and preventive actions.

show abstract

Section: Online Focus On Medicationsmentioning

confidence: 98%

Genetic risk online and offline: Two ways of being susceptible to blood clots

Saukko

2009

Health, Risk & Society

Self Cite

View full text Add to dashboard Cite

show abstract

“…The consumer genomics market and development of Internet networks marks the historically specific emergence of forms of affect mediated through electronic communication technologies (Anagnost 2004, Ong 2006), and science and technology studies theorists have argued that the Internet serves as a host of new forms of genetic subjectivity and knowledge building by allowing individuals “translocal engagements” around shared genetic and biomedical experiences (Clarke et al 2003, Heath et al 2004, Novas and Rose 2000, Saukko 2004). Since DTC personal genome scanning presents as a risk assessment and self-surveillance technology born of the genomics and Internet age, we were also interested to explore how early users of the technique made use of the Internet as a tool to purchase the product but also to commentate on it.…”

Section: Introductionmentioning

confidence: 99%

Personal genomics and individual identities: motivations and moral imperatives of early users

McGowan

Fishman

Lambrix

2010

New Genetics and Society

105

129

View full text Add to dashboard Cite

Since 2007, consumer genomics companies have marketed personal genome scanning services to assess users’ genetic predispositions to a variety of complex diseases and traits. This study investigates early users’ reasons for utilizing personal genome services, their evaluation of the technology, how they interpret the results, and how they incorporate the results into health-related decision-making. The analysis contextualizes early users’ relationships to the technology, the knowledge generated by it, and how it mediates their relationship to their own health and to biomedicine more broadly. The results reveal that early users approach personal genome scanning with both optimism for genomic research and scepticism about the technology’s current capabilities, which runs contrary to concerns that consumers may be ill equipped to interpret and understand genome scan results. These findings provide important qualitative insight into early users’ conceptualizations of personal genomic risk assessment and illuminate their involvement in configuring this technology in the making.

show abstract

“…By providing its users with scientific literacy, validation of personal experience, and social support and advocacy networks, the Internet aids individuals in becoming proactive partners with the medical establishment (Hardey 1999, 2000, Nettleton et al 2004, Rajendran 2001, Saukko 2004). Users not only gain knowledge, but become co‐producers of that knowledge and gain a sense of their own personal agency.…”

Section: Introductionmentioning

confidence: 99%

Producing genetic knowledge and citizenship through the Internet: mothers, pediatric genetics, and cybermedicine

Schaffer

Kuczynski

Skinner

2007

Sociology Health & Illness

100

View full text Add to dashboard Cite

This article analyses data from a longitudinal, ethnographic study conducted in the United States to examine how 100 mothers of children with genetic disorders used the Internet to interpret, produce, and circulate genetic knowledge pertaining to their child's condition. We describe how they came to value their own experiential knowledge, helped shift the boundaries of what counts as authoritative knowledge, and assumed the role of genetic citizen, fighting for specific rights while shouldering and contesting concomitant duties and obligations. This exploration of e-health use contributes to our understanding of the social practices and power relations that cut across online and off-line worlds to co-produce genetic knowledge and genetic citizenship in multiple contexts.

show abstract

Genomic susceptibility‐testing and pregnancy: something old, something new

Cited by 10 publications

References 20 publications

Genetic risk online and offline: Two ways of being susceptible to blood clots

Genetic risk online and offline: Two ways of being susceptible to blood clots

Personal genomics and individual identities: motivations and moral imperatives of early users

Producing genetic knowledge and citizenship through the Internet: mothers, pediatric genetics, and cybermedicine

Contact Info

Product

Resources

About