2001
DOI: 10.1590/s0102-311x2001000300014
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Abstract: Hemophilia is an important hemorrhagic disease in Brazil, affecting about 1 out of every 10,000 males. Patient's self-perception of hemophilia and interaction with the community are relevant to the clinical management of this disease. We investigated several social, psychological, and community aspects of hemophilia in a Brazilian population (Campinas, São Paulo State), interviewing 30 hemophiliac males, a control sample comprised of 73 non-hemophiliac brothers, and 641 individuals from the community. Accordin… Show more

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Cited by 14 publications
(30 citation statements)
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References 21 publications
(29 reference statements)
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“…Caio et al [17] reported that there were no significant differences between the levels of education among patients with hemophilia and their nonhemophilia siblings. The results of the research carried out by Ferreira et al [20] demonstrated that 21 (53.8%) patients with hemophilia had the highest number of years of study (ranging from 9 to ≥12 years).…”
Section: Discussionmentioning
confidence: 99%
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“…Caio et al [17] reported that there were no significant differences between the levels of education among patients with hemophilia and their nonhemophilia siblings. The results of the research carried out by Ferreira et al [20] demonstrated that 21 (53.8%) patients with hemophilia had the highest number of years of study (ranging from 9 to ≥12 years).…”
Section: Discussionmentioning
confidence: 99%
“…Caio et al [17] mentioned that the constitution of a family represents an important point of support for the adult with hemophilia. However, the lack of access to a satisfactory regular employment is the major factor of social inadequacy.…”
Section: Discussionmentioning
confidence: 99%
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“…Uso de recurso segundo You et al (2009) terfere gravemente na qualidade de vida das pessoas com essa condição. As hemorragias geralmente ocorrem nas grandes articulações, podendo causar muita dor e danos permanentes e incapacitantes se não forem tratadas adequadamente (Caio et al, 2001;Pacheco et al, 2002). Três componentes podem afetar esses pacientes: o primeiro corresponde à atitude do indiví-duo perante sua enfermidade, seu sentimento de impotência diante dos sangramentos e a visão de não ser uma pessoa normal.…”
Section: Discussionunclassified